Haemochromatosis UK

Registered charity 1001307 Registered since 1990

Operates: Throughout England And Wales, Scotland, Northern Ireland

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

trustees on the board

1.6y median 2y

average tenure

longest tenure

trustees past 6 years

4.8y

average years in governance

3 vs 0 portfolio

first-time trustees

company-linked trustees

Sector coverage

The Advancement Of Health Or Saving Of Lives 4Arts/culture/heritage/science 1Education/training 1Environment/conservation/heritage 1Other Charitable Purposes 1

Commercial experience

Health and social care 6Business services 1Manufacturing 1

Boards that share trustees

Home-Start Cambridgeshire 1 shared trustee
Friends of Lincoln Castle 1 shared trustee

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Related organisations

Home-Start Cambridgeshire 1 shared trustee
Friends of Lincoln Castle 1 shared trustee
Take Heart Similar size; both Health
The Patients Association Similar size; both Health
WYE Valley NHS Trust Umbrella Charity Similar size; both Health
Youth Talk Limited Similar size; both Health

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Website	http://www.haemochromatosis.org.uk
Email	office@huk.org.uk
Phone	03030401101
Address	The Flaxmill, Flaxmill Lane, Pinchbeck, Spalding, Lincolnshire, PE11 3YP

Finances

£575,107 latest income

Year	Income	Spending
2020	£317,667	£229,432
2021	£366,138	£326,020
2022	£436,806	£457,303
2023	£423,698	£394,085
2024	£575,107	£622,646

What it does

What

The Advancement Of Health Or Saving Of Lives

Who

Other Defined Groups

How

Makes Grants To OrganisationsProvides Other FinanceProvides ServicesProvides Advocacy/advice/information

Charitable objects

1)TO PROVIDE FOR PERSONS WITH HEREDITARY HAEMOCHROMATOSIS OR ASSOCIATED DISEASES HELP WITH THOSE PROBLEMS(INCLUDING BUT NOT LIMITED TO DIAGNOSIS,MEDICAL CARE,TREATMENT & FINANCIAL BURDEN) RESULTING FROM THE DISEASES & TO PROVIDE SUCH OTHERS CHARITABLE RELIEF AS THE SOCIETY MAY THINK FIT.2.)TO UNDERTAKE FOR THE PUBLIC BENEFIT RESEARCH INTO THE DISEASES & TO PUBLISH THE USEFUL RESULTS OF SUCH RESEARCH. 3.)TO ADVANCE THE EDUCATION OF THE GENERAL PUBLIC & THE MEDICAL PROFESSION INTO THE CAUSES OF:(A) INCREASING THE PROPORTION OF HAEMOCHROMATOTICS DIAGNOSED AS SUCH (B) PROMOTING DIAGNOSIS AT AN EARLY STAGE BEFORE THE ONSET OF IRREVERSIBLE ORGAN DAMAGE.

Governing document: MEMORANDUM & ARTICLES OF ASSOCIATION INCORPORATED 20 SEPTEMBER 1990, AMENDED BY SPECIAL RESOLUTION DATED 29 NOVEMBER 1990 AND 19 JUNE 2010AS REGISTERED AT COMPANIES HOUSE ON 12 JUL 2016 as amended on 24 Jul 2019 as amended on 28 Jun 2024

Trustees (5)

5trustees

49median age

1aged 70+

Aaron Venablesage 48 since 2025
Dieter Krappage 69 since 2024
Guillaume Filliasage 44 since 2025
Pippa Randolphage 73 since 2024
Sarah Vousdenage 49 since 2024

Linked company (Companies House)

Haemochromatosis UK · 02541361 · Active

PRI/LBG/NSC (Private, Limited by guarantee, no share capital, use of 'Limited' exemption) · incorporated 20/09/1990

6 governing document(s) held from Companies House.

Connected charities (2)

Home-Start Cambridgeshire 1 shared trustee
Friends of Lincoln Castle 1 shared trustee

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