Alstrom Syndrome UK
Registered charity 1071196 Registered since 1998
Operates: Throughout England And Wales
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Boards that share trustees
- The Friends of Polebrook School 1 shared trustee
- North Devon Against Domestic Abuse Limited 1 shared trustee
Related organisations
- North Devon Against Domestic Abuse Limited 1 shared trustee
- The Friends of Polebrook School 1 shared trustee
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Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.
Contact
| Website | www.alstrom.org.uk |
| steve.scoffield@alstrom.org.uk | |
| Phone | 07980122404 |
| Address | The Rectory, Barnstaple Hill, Swimbridge, BARNSTAPLE, Devon, EX32 0PH |
Finances
£379,388 latest income
| Year | Income | Spending |
|---|---|---|
| 2021 | £375,024 | £232,270 |
| 2022 | £300,024 | £303,193 |
| 2023 | £370,768 | £364,836 |
| 2024 | £354,666 | £340,985 |
| 2025 | £379,388 | £335,401 |
What it does
What
General Charitable PurposesEducation/trainingThe Advancement Of Health Or Saving Of LivesDisabilityWho
Children/young PeoplePeople With DisabilitiesHow
Provides Human ResourcesProvides Buildings/facilities/open SpaceProvides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes ResearchCharitable objects
1. To promote the health and wellbeing of people with Alstr?m Syndrome - particularly (but not exclusively) through the provision of awareness raising, support, advice and information for people living with Alstr?m Syndrome, their families, carers and those working with them. 2. To promote research into Alstr?m Syndrome and related conditions in the UK and abroad and disseminate the results to the public.
Governing document: MEMORANDUM AND ARTICLES OF ASSOCIATION INCORPORATED ON 1ST MAY 1998. as amended on 09 Apr 2025
Trustees (10)
- Sharon Batesage 57 Chair since 2019
- Alexandra Rayson Lineage 34 since 2024
- Alisha Sadiqueage 21 since 2025
- Carol Prescottage 58 since 2022
- Haris Hamidage 23 since 2022
- Jane Elizabeth Biglinage 68 since 2022
- Mathilde Victoria Yatesage 65 since 2022
- Prof. Timothy Barrettage 64 since 2019
- Trevor Parkinage 58 since 2023
- Tarekegn Hiwotage 62 since 2023
Linked company (Companies House)
Alstrom Syndrome UK · 03557191 · Active
PRI/LBG/NSC (Private, Limited by guarantee, no share capital, use of 'Limited' exemption) · incorporated 01/05/1998
1 governing document(s) held from Companies House.
Connected charities (2)
- North Devon Against Domestic Abuse Limited 1 shared trustee
- The Friends of Polebrook School 1 shared trustee
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