Alstrom Syndrome UK
Registered charity 1071196 Registered since 1998
Operates: Throughout England And Wales
Connected trustee network
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How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
10 trustees on the board
- Sharon Bates Chair since 2019
- Alexandra Rayson Line since 2024
- Alisha Sadique since 2025
- Carol Prescott since 2022
- Haris Hamid since 2022
- Jane Elizabeth Biglin since 2022
- Mathilde Victoria Yates since 2022
- Prof. Timothy Barrett since 2019
- Trevor Parkin since 2023
- Tarekegn Hiwot since 2023
Trustees past 6 years
- Sharon Bates Chair since 2019
- Prof. Timothy Barrett since 2019
First-time vs portfolio trustees
First-time (8)
- Alexandra Rayson Line since 2024
- Alisha Sadique since 2025
- Carol Prescott since 2022
- Haris Hamid since 2022
- Jane Elizabeth Biglin since 2022
- Prof. Timothy Barrett since 2019
- Trevor Parkin since 2023
- Tarekegn Hiwot since 2023
Portfolio (2)
- Sharon Bates Chair since 2019
- Mathilde Victoria Yates since 2022
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
Related organisations iRelated organisationsTwo groups, both deterministic from public records. Related organisations share two or more trustees with this board - a real structural link, such as a subsidiary or sister charity. Connected through a shared trustee share exactly one person - a genuine connection, but not the same group. A board with no shared trustee at all may still appear here when it is active in the same charitable field.
Connected through a shared trustee
- North Devon Against Domestic Abuse Limited 1 shared trustee
- The Friends of Polebrook School 1 shared trustee
Also active in the same field
- Princess of Wales's Royal Regiment (Queen's and Royal Hampshires) Benevolent Fund Similar size; both Disability
- Hertfordshire Hearing Advisory Service Similar size; both Disability
- Trip Community Transport Association Similar size; both Disability
- Lambeth & Southwark Community Transport Similar size; both Disability
Deterministic, from public records.
Contact
| Website | www.alstrom.org.uk |
| steve.scoffield@alstrom.org.uk | |
| Phone | 07980122404 |
| Address | The Rectory, Barnstaple Hill, Swimbridge, BARNSTAPLE, Devon, EX32 0PH |
Finances
£379,388 latest income
| Year | Income | Spending |
|---|---|---|
| 2021 | £375,024 | £232,270 |
| 2022 | £300,024 | £303,193 |
| 2023 | £370,768 | £364,836 |
| 2024 | £354,666 | £340,985 |
| 2025 | £379,388 | £335,401 |
What it does
What
General Charitable PurposesEducation/trainingThe Advancement Of Health Or Saving Of LivesDisabilityWho
Children/young PeoplePeople With DisabilitiesHow
Provides Human ResourcesProvides Buildings/facilities/open SpaceProvides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes ResearchCharitable objects
1. To promote the health and wellbeing of people with Alstr?m Syndrome - particularly (but not exclusively) through the provision of awareness raising, support, advice and information for people living with Alstr?m Syndrome, their families, carers and those working with them. 2. To promote research into Alstr?m Syndrome and related conditions in the UK and abroad and disseminate the results to the public.
Governing document: MEMORANDUM AND ARTICLES OF ASSOCIATION INCORPORATED ON 1ST MAY 1998. as amended on 09 Apr 2025
Trustees (10)
- Sharon Batesage band 55-59 Chair since 2019
- Alexandra Rayson Lineage band 30-34 since 2024
- Alisha Sadiqueage band 20-24 since 2025
- Carol Prescottage band 55-59 since 2022
- Haris Hamidage band 20-24 since 2022
- Jane Elizabeth Biglinage band 65-69 since 2022
- Mathilde Victoria Yatesage band 65-69 since 2022
- Prof. Timothy Barrettage band 60-64 since 2019
- Trevor Parkinage band 55-59 since 2023
- Tarekegn Hiwotage band 60-64 since 2023
Linked company (Companies House)
Alstrom Syndrome UK · 03557191 · Active
PRI/LBG/NSC (Private, Limited by guarantee, no share capital, use of 'Limited' exemption) · incorporated 01/05/1998
1 governing document(s) held from Companies House.
Connected charities (2)
- North Devon Against Domestic Abuse Limited 1 shared trustee
- The Friends of Polebrook School 1 shared trustee
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