Ectodermal Dysplasia Society
Registered charity 1089135 Registered since 2001
Operates: Throughout England And Wales
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Sector coverage
Gaps to watch
- No commercial or business experience on the board
- Several long-serving trustees could step down together
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Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.
Contact
| Website | www.edsociety.co.uk |
| diana@edsociety.co.uk | |
| Phone | 01242261332 |
| Address | UNIT 1 MAIDA VALE BUSINESS CENTRE, LECKHAMPTON, CHELTENHAM, GLOS, GL53 7ER |
Finances
£107,407 latest income
| Year | Income | Spending |
|---|---|---|
| 2021 | £34,163 | £43,857 |
| 2022 | £71,573 | £50,984 |
| 2023 | £62,771 | £71,229 |
| 2024 | £77,208 | £72,613 |
| 2025 | £107,407 | £115,098 |
What it does
What
Education/trainingThe Advancement Of Health Or Saving Of LivesDisabilityWho
Children/young PeopleElderly/old PeoplePeople With DisabilitiesThe General Public/mankindHow
Provides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes ResearchCharitable objects
THE RELIEF OF SICKNESS AND THE PROTECTION AND PRESERVATION OF THE HEALTH OF PERSONS AFFECTED BY ECTODERMAL DYSPLASIA AND ANY RELATED CONDITION AND THEIR FAMILIES AND CARERS IN PARTICULAR BY BUT NOT RESTRICTED TOA) THE ADVANCEMENT OF THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC INTO ECTODERMAL DYSPLASIA AND ITS IMPLICATIONS FOR THE FAMILY.B) THE PROMOTION OF RESEARCH INTO THE CAUSES, EFFECTS, TREATMENT AND MANAGEMENT OF ECTODERMAL DYSPLASIA AND TO DISSEMINATE THE USEFUL RESULTS THEREOF.
Governing document: CONSTITUTION ADOPTED 14 JULY 2001 AS AMENDED ON 8 MAY 2004AS AMENDED ON 07 MAY 2016 as amended on 15 Oct 2022
Trustees (13)
- Paul Collacott Chair
- Alan Waller since 2013
- Alison Smith since 2026
- Andy Ponting since 2017
- Diana Perry
- Elaine Aylward since 2025
- Helen Wickins since 2025
- Larissa Donna Pelham since 2020
- Nick Briggs since 2020
- Sharon Cooper since 2012
- Sarah James since 2026
- Scott Gallacher since 2015
- Stuart Atkiss since 2016
Connected charities (0)
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