Hhugs-UK Hypothalamic Hamartoma Uncontrolled Gelastic Seizures United Kingdom
Registered charity 1098698 Registered since 2003
Operates: Throughout England And Wales
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Sector coverage
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- Small board - little cover if a trustee leaves
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Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.
Contact
| Website | www.hhugs-uk.com |
| hhugsuk@hotmail.com | |
| Phone | 0734143219 |
| Address | 7 POND CLOSE, WINCHMORE HILL, AMERSHAM, HP7 0NU |
Finances
£2,750 latest income
| Year | Income | Spending |
|---|---|---|
| 2020 | £4,587 | £180 |
| 2021 | £4,587 | £360 |
| 2022 | £3,867 | £360 |
| 2023 | £3,867 | £360 |
| 2024 | £2,750 | £380 |
What it does
What
General Charitable PurposesDisabilityOther Charitable PurposesWho
Children/young PeopleHow
Provides Advocacy/advice/informationOther Charitable ActivitiesCharitable objects
THE RELIEF OF PERSONS SUFFERING FROM HYPOTHALAMIC HAMARTOMA PARTICULARLY BY;A) THE PROVISION OF INFORMATION, SUPPORT AND ADVICE TO THESE PEOPLE;B) RAISING AWARENESS OF THE PUBLIC AND THE MEDICAL PROFESSION OF THE EFFECTS AND CONDITIONS OF EFFECTIVE TREATMENT;C) PROMPTING RESEARCH INTO THE CAUSES, EFFECTS AND TREATMENT OF HH AND DISSEMINATING THE USEFUL RESULTS THEREOF AND ASSIST IN THE PROVISION OF SUCH FACILITIES OR ITEMS FOR EDUCATION AT THE SCHOOL (NOT PROVIDED FROM STATUTORY FUNDS) AS THE COMMITTEE IN CONSULTATION WITH THE GOVERNING BODY SHALL FROM TIME TO TIME DETERMINE
Governing document: CONSTITUTION ADOPTED 20 JUNE 2003
Trustees (3)
- Vivianne Gattoc Chair
- David Thomas Ambrose since 2011
- Stephen Henry Parker
Connected charities (0)
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