The Governance RegisterEdition 2026 · Compiled 6th September 2026

Action for A-T

Registered charity 1145303 Registered since 2012

Operates: Throughout England And Wales

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

8 trustees on the board

12.2y median 12y
average tenure
15y
longest tenure

Trustees past 6 years

13.4y
average years in governance

First-time vs portfolio trustees

First-time (7)

Portfolio (1)

1
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

Disability 8The Advancement Of Health Or Saving Of Lives 8

Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.

Health and social care 2Education 1Professional services 1

Gaps to watch

  • Several long-serving trustees could step down together
  • Narrow spread of causes across the board

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Health of the organisation facts side by side - the conclusion is yours

Income v spending, filed accountsiIncome v spendingTotal gross income and expenditure from filed annual returns, Charity Commission, last 5 years.
2021
2022
2023
2024
2025
incomespending£905k latest income
ReservesiReserves12 x free reserves / annual expenditure, from the Part B annual return. The sector median is computed across all Part B filers in the same income band.

4.1 months of spending held in free reserves · median for charities its size: 4.0 months · was 8.7 in 2021

2 from 2 in 2021
EmployeesiEmployeesHeadcount as filed in Part B annual returns, per financial year. Shown exactly as filed; year-on-year figures may be filed on different bases, so a comparison is only shown when the filings are plausibly comparable.

Related organisations iRelated organisationsTwo groups, both deterministic from public records. Related organisations share two or more trustees with this board - a real structural link, such as a subsidiary or sister charity. Connected through a shared trustee share exactly one person - a genuine connection, but not the same group. A board with no shared trustee at all may still appear here when it is active in the same charitable field.

Connected through a shared trustee

Also active in the same field

Deterministic, from public records.

Contact

Websitewww.actionforAT.org
Emailinfo@actionforAT.org
Phone01428853313
AddressACTION FOR A-T, ARUNA HOUSE, 2 KINGS ROAD, HASLEMERE, SURREY, GU27 2QA

Finances

£905,048 latest income

YearIncomeSpending
2021£593,451£440,191
2022£949,804£1,106,145
2023£1,092,490£384,330
2024£1,168,113£1,846,493
2025£905,048£444,162

What it does

What

The Advancement Of Health Or Saving Of LivesDisability

Who

Other Defined GroupsThe General Public/mankind

How

Makes Grants To IndividualsMakes Grants To OrganisationsProvides Advocacy/advice/information

Charitable objects

THE OBJECTS OF THE CHARITY (THE OBJECTS) ARE THE RELIEF OF SICKNESS AND THE PROMOTION AND PRESERVATION OF GOOD HEALTH IN THE UNITED KINGDOM, IN PARTICULAR BUT NOT EXCLUSIVELY, BY:A) THE FUNDING AND PROMOTION OF MEDICAL AND/OR SCIENTIFIC RESEARCH INTO ATAXIA TELANGIECTASIA (A-T) WITH THE AIM OF DEVELOPING A CURE FOR THE CONDITION AND TO IDENTIFY LINKS BETWEEN A-T AND OTHER GENETIC DISEASES OR CONDITIONS AND TO PUBLISH THE USEFUL RESULTS ARISING FROM SUCH RESEARCH;B) PREVENTING A-T, INCLUDING THROUGH, BUT NOT LIMITED TO, ANTENATAL SCREENING FOR A-T;C) THE PROVISION OF INFORMATION, ADVICE, SUPPORT AND WHERE, APPROPRIATE, FINANCIAL ASSISTANCE TO ANYONE IN THE UK AFFECTED BY A-T (INCLUDING, WHERE APPROPRIATE, THE FUNDING OF EQUIPMENT WHICH CAN BE USED FOR THE DIAGNOSIS OR DETECTION OF A-T OR FOR TREATING, MITIGATING OR RELIEVING THE SYMPTOMS OF A-T); AND D) ADVANCING THE EDUCATION OF THE PUBLIC ABOUT A-T.

Governing document: TRUST DEED DATED 06/01/2012AS AMENDED ON 02/02/2012

Trustees (8)

8trustees
60median age
0aged 70+

Connected charities (1)

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