The Governance RegisterEdition 2026 · Compiled 12th July 2026

Action for A-T

Registered charity 1145303 Registered since 2012

Operates: Throughout England And Wales

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

8
trustees on the board
12.2y median 12y
average tenure
15y
longest tenure
8
trustees past 6 years
13.3y
average years in governance
7 vs 0 portfolio
first-time trustees
1
company-linked trustees

Sector coverage

Disability 8The Advancement Of Health Or Saving Of Lives 8

Commercial experience

Health and social care 2Education 1Professional services 1

Gaps to watch

  • Several long-serving trustees could step down together
  • Narrow spread of causes across the board

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Contact

Websitewww.actionforAT.org
Emailinfo@actionforAT.org
Phone01428853313
AddressACTION FOR A-T, ARUNA HOUSE, 2 KINGS ROAD, HASLEMERE, SURREY, GU27 2QA

Finances

£905,048 latest income

YearIncomeSpending
2021£593,451£440,191
2022£949,804£1,106,145
2023£1,092,490£384,330
2024£1,168,113£1,846,493
2025£905,048£444,162

What it does

What

The Advancement Of Health Or Saving Of LivesDisability

Who

Other Defined GroupsThe General Public/mankind

How

Makes Grants To IndividualsMakes Grants To OrganisationsProvides Advocacy/advice/information

Charitable objects

THE OBJECTS OF THE CHARITY (THE OBJECTS) ARE THE RELIEF OF SICKNESS AND THE PROMOTION AND PRESERVATION OF GOOD HEALTH IN THE UNITED KINGDOM, IN PARTICULAR BUT NOT EXCLUSIVELY, BY:A) THE FUNDING AND PROMOTION OF MEDICAL AND/OR SCIENTIFIC RESEARCH INTO ATAXIA TELANGIECTASIA (A-T) WITH THE AIM OF DEVELOPING A CURE FOR THE CONDITION AND TO IDENTIFY LINKS BETWEEN A-T AND OTHER GENETIC DISEASES OR CONDITIONS AND TO PUBLISH THE USEFUL RESULTS ARISING FROM SUCH RESEARCH;B) PREVENTING A-T, INCLUDING THROUGH, BUT NOT LIMITED TO, ANTENATAL SCREENING FOR A-T;C) THE PROVISION OF INFORMATION, ADVICE, SUPPORT AND WHERE, APPROPRIATE, FINANCIAL ASSISTANCE TO ANYONE IN THE UK AFFECTED BY A-T (INCLUDING, WHERE APPROPRIATE, THE FUNDING OF EQUIPMENT WHICH CAN BE USED FOR THE DIAGNOSIS OR DETECTION OF A-T OR FOR TREATING, MITIGATING OR RELIEVING THE SYMPTOMS OF A-T); AND D) ADVANCING THE EDUCATION OF THE PUBLIC ABOUT A-T.

Governing document: TRUST DEED DATED 06/01/2012AS AMENDED ON 02/02/2012

Trustees (8)

8trustees
60median age
0aged 70+

Connected charities (1)

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