The Governance RegisterEdition 2026 · Compiled 12th July 2026

Association for Multiple Endocrine Neoplasia Disorders

Registered charity 1153890 CIO Registered since 2013

Operates: Throughout England And Wales, Scotland, Northern Ireland

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

10
trustees on the board
6y median 4.5y
average tenure
13y
longest tenure
4
trustees past 6 years
8.2y
average years in governance
10 vs 0 portfolio
first-time trustees
1
company-linked trustees

Sector coverage

The Advancement Of Health Or Saving Of Lives 10

Commercial experience

Education 1

Gaps to watch

  • Narrow spread of causes across the board
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Related organisations

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Contact

Websitewww.amend.org.uk
Emailinfo@amend.org.uk
Phone01892516076
AddressAMEND, Tyler House, 58-66 Morley Road, Tonbridge, Kent, TN9 1RA

Finances

£95,173 latest income

YearIncomeSpending
2020£109,814£111,355
2021£93,239£129,637
2022£130,264£139,397
2023£80,668£112,292
2024£95,173£106,016

What it does

What

The Advancement Of Health Or Saving Of Lives

Who

People With Disabilities

How

Provides Advocacy/advice/informationSponsors Or Undertakes Research

Charitable objects

TO RELIEVE PEOPLE WHO SUFFER FROM MULTIPLE ENDOCRINE NEOPLASIA (M.E.N.) OF ALL TYPES, THEIR FAMILIES, FRIENDS AND CARERS BY ALL OR ANY OF THE FOLLOWING MEANS:(1) ACTING AS A RELIABLE AND ACCURATE SOURCE OF INFORMATION FOR THE PUBLIC CONCERNING M.E.N. AND ITS ASSOCIATED SPORADIC GROWTHS, BY:(A) WORKING WITHIN THE APPROVAL OF MEMBERS OF THE MEDICAL PROFESSION WHO ARE DIRECTLY INVOLVED IN THE TREATMENT OF AND RESEARCH INTO M.E.N.(B) COLLECTING, COLLATING AND DISTRIBUTING APPROPRIATE AND APPROVED INFORMATION.(C) PRODUCING THE CHARITY’S OWN PATIENT-AIMED APPROVED INFORMATION.(2) PROMOTING A WIDER KNOWLEDGE OF THE ILLNESS AMONG THE MEDICAL PROFESSION TO ASSIST IN EARLY AND ACCURATE DIAGNOSIS.(3) PROVIDING RELIABLE AND ACCURATE INFORMATION WITH REGARD TO GENETIC TESTING FOR PEOPLE WITH M.E.N. AND ITS ASSOCIATED FAMILIAL GROWTHS, THEIR FAMILIES, FRIENDS AND CARERS.(4) PROVIDING EMOTIONAL SUPPORT TO PATIENTS, THEIR FAMILIES, FRIENDS AND CARERS IN THE FORM OF CONTACT WITH OTHERS IN SIMILAR SITUATIONS IN ORDER TO FACILITATE THE SHARING OF EXPERIENCES.

Governing document: CIO - ASSOCIATION REGISTERED 20 SEP 2013AMENDED ON 09 MAY 2016

Trustees (10)

10trustees
73median age
1aged 70+

Connected charities (0)

No charities share a trustee (from current data).

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