Phelan-Mcdermid Syndrome Foundation UK

Registered charity 1157423 CIO Registered since 2014

Operates: Camden, Ireland, Scotland, Northern Ireland

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

trustees on the board

4.8y median 5y

average tenure

10y

longest tenure

trustees past 6 years

7.5y

average years in governance

6 vs 0 portfolio

first-time trustees

company-linked trustees

Sector coverage

Disability 6

Commercial experience

Arts and leisure 1Health and social care 1

Gaps to watch

Several long-serving trustees could step down together
Narrow spread of causes across the board

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Derbyshire Parent Carer Voice Similar size; both Disability

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Website	www.pmsf.org.uk
Email	info@pmsf.org.uk
Phone	02074194554
Address	99 HIGHGATE WEST HILL, LONDON, N6 6NR

Finances

£63,259 latest income

Year	Income	Spending
2020	£41,138	£35,805
2021	£43,749	£33,346
2022	£94,538	£60,559
2023	£89,017	£60,857
2024	£63,259	£103,738

What it does

What

Disability

Who

Children/young PeoplePeople With Disabilities

How

Makes Grants To IndividualsProvides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes ResearchActs As An Umbrella Or Resource Body

Charitable objects

THE OBJECT OF THE CIO IS:THE RELIEF OF NEEDS OF PEOPLE WHO HAVE BEEN DIAGNOSED WITH PHELAN-MCDERMID SYNDROME (CHROMOSOME 22Q13.3 DELETION) AND THEIR FAMILIES, IN PARTICULAR BUT NOT EXCLUSIVELY BY PROVIDING SUPPORT, FAMILY DAYS, INFORMATION, FINANCIAL GRANTS FOR DIFFERENT THERAPIES FOR THE PERSON WITH THE SYNDROME AND RESEARCH ENDORSED BY THE INTERNATIONAL PHELAN-MCDERMID SYNDROME FOUNDATION.

Governing document: CIO - Foundation Registered 10 Jun 2014 as amended on 10 Jan 2024

Trustees (6)

6trustees

64median age

1aged 70+

Alison Jane Turnerage 71 Chair since 2017
Katie Greed since 2026
Lynda White since 2016
Natalie Jamesage 57 since 2018
Natalie Lingard since 2026
Tanith Sherwood since 2024

Connected charities (0)

No charities share a trustee (from current data).

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