VHL UK/Ireland

Registered charity 1160381 Registered since 2015

Operates: Ireland, Scotland, Northern Ireland, Throughout England And Wales

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

trustees on the board

6.4y median 6y

average tenure

13y

longest tenure

trustees past 6 years

6.5y

average years in governance

13 vs 0 portfolio

first-time trustees

company-linked trustees

Sector coverage

The Advancement Of Health Or Saving Of Lives 13

Gaps to watch

No commercial or business experience on the board
Several long-serving trustees could step down together
Narrow spread of causes across the board

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Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Website	http://vhl-uk-ireland.org/
Email	uk@vhl-uk-ireland.org
Phone	07762525561
Address	47 Tiln Lane, RETFORD, DN22 6SN

Finances

£20,076 latest income

Year	Income	Spending
2021	£34,824	£60,619
2022	£18,131	£801
2023	£8,110	£21,514
2024	£38,000	£1,900
2025	£20,076	£38,915

What it does

What

The Advancement Of Health Or Saving Of Lives

Who

People With Disabilities

How

Provides Advocacy/advice/informationSponsors Or Undertakes Research

Charitable objects

TO RELIEVE THE CHARITABLE NEEDS OF PERSONS WHO HAVE VON HIPPEL-LINDAU SYNDROME (VHL) AND SIMILAR GENETIC CONDITIONS SUCH AS HEREDITARY LEIOMYOMATOSIS AND RENAL CELL CANCER (HLRCC) AND BIRT-HOGG-DUBE SYNDROME (BHD) AND THEIR FAMILIES AND CARERS IN THE UK AND IRELAND FOR THE PUBLIC BENEFIT IN PARTICULAR BUT NOT EXCLUSIVELY BY1)PROVIDING SUPPORT AND ADVICE REGARDING THEIR GENETIC CONDITIONS,2)PROVIDING FUNDS FOR RESEARCH INTO THE GENETIC CONDITIONS AND FOR EQUIPMENT TO ASSIST WITH SUCH RESEARCH,3)TO ADVANCE THE EDUCATION OF THE PUBLIC IN ALL MATTERS CONCERNING THE GENETIC CONDITIONS.

Governing document: CONSTITUTION ADOPTED 05/04/2013AS AMENDED ON 06/02/2015AS AMENDED ON 08 APR 2016

Trustees (13)

13trustees

0aged 70+

Mark Ashley Lodge Chair since 2026
Charli Christina Diane Lawton since 2026
Dr Antony Richard Horton Ph D since 2015
Francesca Goddard since 2020
Graham John Lovitt since 2013
Janice Hepworth since 2015
John Allan Hepworth since 2016
Joyce Noreen Bonin since 2026
Kathryn Chapman since 2020
Kim Lara Vaughan since 2020
Nancy Molyneaux-Finley since 2024
Roxanne Mica Daphne Bonin BA Hons since 2014
Tantara Fox-Stillwell since 2020

Connected charities (0)

No charities share a trustee (from current data).

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