The Governance RegisterEdition 2026 · Compiled 6th September 2026

PNH Support

Registered charity 1161518 CIO Registered since 2015

Operates: Northern Ireland, Throughout England And Wales

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

3 trustees on the board

3y median 2y
average tenure
6y
longest tenure

Trustees past 6 years

3.3y
average years in governance

First-time vs portfolio trustees

First-time (3)

0
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

Disability 3The Advancement Of Health Or Saving Of Lives 3

Gaps to watch

  • Small board - little cover if a trustee leaves

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

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Health of the organisation facts side by side - the conclusion is yours

Income v spending, filed accountsiIncome v spendingTotal gross income and expenditure from filed annual returns, Charity Commission, last 5 years.
2021
2022
2023
2024
2025
incomespending£16k latest income · income exceeded spending in 2024 and 2025

Related organisations iRelated organisationsTwo groups, both deterministic from public records. Related organisations share two or more trustees with this board - a real structural link, such as a subsidiary or sister charity. Connected through a shared trustee share exactly one person - a genuine connection, but not the same group. A board with no shared trustee at all may still appear here when it is active in the same charitable field.

Also active in the same field

Deterministic, from public records.

Contact

Websitewww.pnhuk.org
Emailcontact@pnhuk.org
Phone07810352555
AddressBlackwell House, Guildhall Yard, London, EC2V 5AE

Finances

£16,469 latest income

YearIncomeSpending
2021£3,003£1,016
2022£4,642£1,284
2023£11,732£1,446
2024£13,090£1,620
2025£16,469£12,495

What it does

What

The Advancement Of Health Or Saving Of LivesDisability

Who

Other Defined Groups

How

Provides Advocacy/advice/information

Charitable objects

(1) TO PROMOTE, PROTECT AND PRESERVE THE PHYSICAL AND MENTAL HEALTH OF THOSE DIAGNOSED WITH PAROXYSMAL NOCTURNAL HAEMOGLOBINURIA ("PNH") WHO RESIDE IN ENGLAND, WALES AND NORTHERN IRELAND (EITHER PERMANENTLY OR TEMPORARILY) THROUGH THE PROVISION OF SUPPORT, EDUCATION, ADVOCACY AND PRACTICAL ADVICE; (2) TO ADVANCE THE EDUCATION OF PATIENTS WITH PNH IN ENGLAND, WALES AND NORTHERN IRELAND IN PARTICULAR BUT NOT EXCLUSIVELY BY THE PROVISION OF ADVICE AND A POINT OF CONTACT FOR NEWLY DIAGNOSED PNH PATIENTS IN ENGLAND, WALES AND NORTHERN IRELAND.

Governing document: CIO - Association Registered 01 May 2015 as amended on 02 Jun 2020

Trustees (3)

3trustees
0aged 70+

Connected charities (0)

No charities share a trustee (from current data).

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