PNH Support
Registered charity 1161518 CIO Registered since 2015
Operates: Northern Ireland, Throughout England And Wales
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Sector coverage
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- Small board - little cover if a trustee leaves
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Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.
Contact
| Website | www.pnhuk.org |
| contact@pnhuk.org | |
| Phone | 07810352555 |
| Address | Blackwell House, Guildhall Yard, London, EC2V 5AE |
Finances
£16,469 latest income
| Year | Income | Spending |
|---|---|---|
| 2021 | £3,003 | £1,016 |
| 2022 | £4,642 | £1,284 |
| 2023 | £11,732 | £1,446 |
| 2024 | £13,090 | £1,620 |
| 2025 | £16,469 | £12,495 |
What it does
What
The Advancement Of Health Or Saving Of LivesDisabilityWho
Other Defined GroupsHow
Provides Advocacy/advice/informationCharitable objects
(1) TO PROMOTE, PROTECT AND PRESERVE THE PHYSICAL AND MENTAL HEALTH OF THOSE DIAGNOSED WITH PAROXYSMAL NOCTURNAL HAEMOGLOBINURIA ("PNH") WHO RESIDE IN ENGLAND, WALES AND NORTHERN IRELAND (EITHER PERMANENTLY OR TEMPORARILY) THROUGH THE PROVISION OF SUPPORT, EDUCATION, ADVOCACY AND PRACTICAL ADVICE; (2) TO ADVANCE THE EDUCATION OF PATIENTS WITH PNH IN ENGLAND, WALES AND NORTHERN IRELAND IN PARTICULAR BUT NOT EXCLUSIVELY BY THE PROVISION OF ADVICE AND A POINT OF CONTACT FOR NEWLY DIAGNOSED PNH PATIENTS IN ENGLAND, WALES AND NORTHERN IRELAND.
Governing document: CIO - Association Registered 01 May 2015 as amended on 02 Jun 2020
Trustees (3)
- Alexandra Naylor since 2020
- Victoria Solovieva since 2025
- Virginia Bertelli since 2024
Connected charities (0)
No charities share a trustee (from current data).
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