The Governance RegisterEdition 2026 · Compiled 12th July 2026

Krabbe UK

Registered charity 1174472 CIO Registered since 2017

Operates: Throughout England And Wales, Scotland, Northern Ireland

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

2
trustees on the board
9y median 9y
average tenure
9y
longest tenure
2
trustees past 6 years
13.2y
average years in governance
2 vs 0 portfolio
first-time trustees
1
company-linked trustees

Sector coverage

Disability 2The Advancement Of Health Or Saving Of Lives 2

Commercial experience

Education 1Other services 1

Gaps to watch

  • Several long-serving trustees could step down together
  • Small board - little cover if a trustee leaves
🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Related organisations

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Websitewww.krabbeuk.org
Emailinfo@krabbeuk.org
Phone07766 558480
AddressLyncol, Largo Road, Leven, Fife, KY8 4TB

Finances

£5,669 latest income

YearIncomeSpending
2021£13,298£1,439
2022£10,992£709
2023£7,146£1,193
2024£9,220£923
2025£5,669£873

What it does

What

The Advancement Of Health Or Saving Of LivesDisability

Who

Children/young PeoplePeople With Disabilities

How

Makes Grants To IndividualsMakes Grants To OrganisationsProvides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes Research

Charitable objects

THE OBJECTS OF THE CIO ARE TO RELIEVE SICKNESS AND PRESERVE AND PROTECT THE HEALTH OF CHILDREN AND ADULTS SUFFERING FROM KRABBE DISEASE IN THE UNITED KINGDOM, IN PARTICULAR BUT NOT EXCLUSIVELY BY SUPPORTING AND FUNDING RESEARCH AND PROMOTING THE EXTENSION OF NEWBORN SCREENING FOR KRABBE DISEASE.TO PRESERVE AND PROTECT THE HEALTH OF THE FAMILIES CARING FOR CHILDREN AND ADULTS SUFFERING FROM KRABBE DISEASE IN THE UNITED KINGDOM BY SUCH MEANS AS THE TRUSTEES MAY DETERMINETO SUPPORT BEREAVED FAMILIES WHO HAVE LOST FAMILY MEMBERS TO KRABBE DISEASE IN THE UNITED KINGDOM BY SUCH MEANS AS THE CHARITY TRUSTEES MAY DETERMINE.

Governing document: CIO - FOUNDATION Registered 01 Sep 2017

Trustees (2)

2trustees
53median age
0aged 70+

Connected charities (0)

No charities share a trustee (from current data).

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