Aniridia Network
Registered charity 1176792 CIO Registered since 2018
Operates: Throughout England And Wales, Ireland, Scotland, Northern Ireland
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Sector coverage
Commercial experience
Gaps to watch
- Several long-serving trustees could step down together
- Small board - little cover if a trustee leaves
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Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.
Contact
| Website | https://aniridia.org.uk |
| info@aniridia.org.uk | |
| Phone | 07792867949 |
| Address | 22 CORNISH HOUSE, ADELAIDE LANE, SHEFFIELD, SOUTH YORKSHIRE, S3 8BJ |
Finances
£11,090 latest income
| Year | Income | Spending |
|---|---|---|
| 2021 | £5,394 | £1,402 |
| 2022 | £22,186 | £19,535 |
| 2023 | £3,183 | £2,813 |
| 2024 | £4,365 | £7,635 |
| 2025 | £11,090 | £2,564 |
What it does
What
The Advancement Of Health Or Saving Of LivesDisabilityWho
People With DisabilitiesHow
Provides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes ResearchCharitable objects
THE OBJECTS OF THE CIO ARE, FOR THE PUBLIC BENEFIT, IN THE BRITISH ISLES AND ELSEWHERE: (1) THE PROTECTION AND ADVANCEMENT OF HEALTH, OF PEOPLE WITH ANIRIDIA, IN PARTICULAR BUT NOT EXCLUSIVELY BY:(A) PROMOTING AND FACILITATING RESEARCH INTO THE CAUSES, EFFECTS AND TREATMENTS OF ANIRIDIA(B) PROVIDING INFORMATION TO EDUCATE PEOPLE WITH ANIRIDIA, THEIR FAMILY MEMBERS AND RELEVANT PROFESSIONALS ABOUT THE CAUSES, EFFECTS, TREATMENTS AND MANAGEMENT OF ANIRIDIA.(2) THE RELIEF OF PEOPLE SUFFERING FROM ANIRIDIA AND THEIR FAMILIES, IN PARTICULAR BUT NOT EXCLUSIVELY BY:(A) PROVIDING A NETWORK OF FAMILIES, INDIVIDUALS AND PROFESSIONALS IN ORDER TO SHARE: IDEAS, KNOWLEDGE AND EXPERIENCES PLUS GIVE PRACTICAL AND EMOTIONAL SUPPORT(B) PROVIDING INFORMATION AND SERVICES TO PEOPLE WITH ANIRIDIA, THEIR FAMILY MEMBERS AND RELEVANT PROFESSIONALS REGARDING EDUCATION, HEALTH, EMPLOYMENT AND SOCIAL SECURITY PLUS LIFE SKILLS RELEVANT TO HAVING ANIRIDIA. (3) THE EDUCATION OF THE PUBLIC, IN ALL AREAS RELATING TO ANIRIDIA BY:(A) PUBLICISING THE NEEDS, STORIES AND ACHIEVEMENTS OF PEOPLE AFFECTED BY AND WORKING WITH ANIRIDIA FOR THE PURPOSE OF THIS CLAUSE 'ANIRIDIA' MEANS THE GENETIC CONDITIONS CAUSING IRIS DEFECTS (SUCH AS ANIRIDIA AND IRIS HYPOPLASIA) USUALLY CAUSING VISUAL IMPAIRMENT. WHERE THEY OCCUR IN PEOPLE WITH ANIRIDIA IT ALSO ENCOMPASSES RELATED CONDITIONS SUCH AS: DRY EYE, KERATOPATHY, NYSTAGMUS, CATARACTS, GLAUCOMA, AUDITORY PROCESSING DISORDER AND WAGR.
Governing document: CIO - ASSOCIATION Registered 23 Jan 2018
Trustees (3)
- Katherine Atkinson Chair since 2018
- Andrew Baghurst since 2021
- James Bullerage 47 since 2018
Connected charities (0)
No charities share a trustee (from current data).
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