Myhre Syndrome UK & Europe
Registered charity 1187443 Registered since 2020
Operates: Throughout England And Wales
Connected trustee network
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Sector coverage
Commercial experience
Gaps to watch
- Several long-serving trustees could step down together
- Small board - little cover if a trustee leaves
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Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.
Contact
| Website | www.myhresyndrome.com |
| myhresyndrome@btinternet.com | |
| Phone | 07771541080 |
| Address | 42 Coronel Close, SWINDON, SN3 4FW |
Finances
£1,200 latest income
| Year | Income | Spending |
|---|---|---|
| 2021 | £2,402 | £329 |
| 2022 | £3,347 | £2,815 |
| 2023 | £558 | £1,823 |
| 2024 | £516 | £1,636 |
| 2025 | £1,200 | £585 |
What it does
What
General Charitable PurposesDisabilityOther Charitable PurposesWho
Children/young PeopleElderly/old PeoplePeople With DisabilitiesHow
Makes Grants To IndividualsMakes Grants To OrganisationsProvides ServicesProvides Advocacy/advice/informationActs As An Umbrella Or Resource BodyCharitable objects
1) THE RELIEF OF SICKNESS AND PRESERVATION OF HEALTH AMONG THOSE SUFFERING FROM MYHRE SYNDROME, WHO PRIMARILY (BUT NO EXCLUSIVELY) RESIDE IN THE UK, THROUGH THE PROVISION OF: A) ADVICE, COUNSELLING AND SUPPORT TO THOSE SUFFERING FROM MYHRE SYNDROME. B) INFORMATION SHARING PROGRAMMES TO RAISE AWARENESS ON ALL ASPECTS OF MYHRE SYNDROME. C) SUPPORT TO DEVELOP MEDICAL PRACTICES RELATING TO THE DIAGNOSES AND TREATMENT OF MYHRE SYNDROME. 2) TO RELIEVE THE NEEDS OF THOSE SUFFERING FROM MYHRE SYNDROME, AND THEIR FAMILIES, WHO PRIMARILY (BUT NO EXCLUSIVELY) RESIDE IN THE UK, THROUGH THE PROVISION OF RESPITE, ADVICE AND SUPPORT.
Governing document: TRUST DEED DATED 14 JAN 2020
Trustees (2)
- Nigel Jonathon Greenage 52 Chair since 2020
- Stacey Louise Green since 2020
Connected charities (0)
No charities share a trustee (from current data).
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