The Governance RegisterEdition 2026 · Compiled 6th September 2026

Myhre Syndrome UK & Europe

Registered charity 1187443 Registered since 2020

Operates: Throughout England And Wales

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

2 trustees on the board

6y median 6y
average tenure
6y
longest tenure

Trustees past 6 years

6.7y
average years in governance

First-time vs portfolio trustees

First-time (2)

1
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

Disability 2General Charitable Purposes 2Other Charitable Purposes 2

Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.

Education 2

Gaps to watch

  • Several long-serving trustees could step down together
  • Small board - little cover if a trustee leaves

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Health of the organisation facts side by side - the conclusion is yours

Income v spending, filed accountsiIncome v spendingTotal gross income and expenditure from filed annual returns, Charity Commission, last 5 years.
2021
2022
2023
2024
2025
incomespending£1k latest income

Related organisations iRelated organisationsTwo groups, both deterministic from public records. Related organisations share two or more trustees with this board - a real structural link, such as a subsidiary or sister charity. Connected through a shared trustee share exactly one person - a genuine connection, but not the same group. A board with no shared trustee at all may still appear here when it is active in the same charitable field.

Also active in the same field

Deterministic, from public records.

Contact

Websitewww.myhresyndrome.com
Emailmyhresyndrome@btinternet.com
Phone07771541080
Address42 Coronel Close, SWINDON, SN3 4FW

Finances

£1,200 latest income

YearIncomeSpending
2021£2,402£329
2022£3,347£2,815
2023£558£1,823
2024£516£1,636
2025£1,200£585

What it does

What

General Charitable PurposesDisabilityOther Charitable Purposes

Who

Children/young PeopleElderly/old PeoplePeople With Disabilities

How

Makes Grants To IndividualsMakes Grants To OrganisationsProvides ServicesProvides Advocacy/advice/informationActs As An Umbrella Or Resource Body

Charitable objects

1) THE RELIEF OF SICKNESS AND PRESERVATION OF HEALTH AMONG THOSE SUFFERING FROM MYHRE SYNDROME, WHO PRIMARILY (BUT NO EXCLUSIVELY) RESIDE IN THE UK, THROUGH THE PROVISION OF: A) ADVICE, COUNSELLING AND SUPPORT TO THOSE SUFFERING FROM MYHRE SYNDROME. B) INFORMATION SHARING PROGRAMMES TO RAISE AWARENESS ON ALL ASPECTS OF MYHRE SYNDROME. C) SUPPORT TO DEVELOP MEDICAL PRACTICES RELATING TO THE DIAGNOSES AND TREATMENT OF MYHRE SYNDROME. 2) TO RELIEVE THE NEEDS OF THOSE SUFFERING FROM MYHRE SYNDROME, AND THEIR FAMILIES, WHO PRIMARILY (BUT NO EXCLUSIVELY) RESIDE IN THE UK, THROUGH THE PROVISION OF RESPITE, ADVICE AND SUPPORT.

Governing document: TRUST DEED DATED 14 JAN 2020

Trustees (2)

2trustees
52median age
0aged 70+

Connected charities (0)

No charities share a trustee (from current data).

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