The Governance RegisterEdition 2026 · Compiled 12th July 2026

Cdls Foundation UK & Ireland

Registered charity 1054033 Registered since 1996

Operates: Throughout England And Wales, Scotland, Northern Ireland

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

9
trustees on the board
8.2y median 9y
average tenure
14y
longest tenure
6
trustees past 6 years
8.2y
average years in governance
8 vs 0 portfolio
first-time trustees
0
company-linked trustees

Sector coverage

Disability 9The Advancement Of Health Or Saving Of Lives 9General Charitable Purposes 1

Gaps to watch

  • No commercial or business experience on the board
  • Several long-serving trustees could step down together

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Related organisations

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Contact

Websitewww.cdls.org.uk
Emailinfo@cdls.org.uk
Phone01375376439
AddressC D L S Foundation, PO Box 8368, RIPLEY, DE5 4DA

Finances

£53,629 latest income

YearIncomeSpending
2021£45,243£33,220
2022£51,735£54,234
2023£61,959£63,874
2024£49,256£46,292
2025£53,629£47,139

What it does

What

The Advancement Of Health Or Saving Of LivesDisability

Who

People With Disabilities

How

Provides Advocacy/advice/informationSponsors Or Undertakes Research

Charitable objects

TO ENSURE EARLY AND ACCURATE DIAGNOSIS OF CDLS THROUGHOUT THE WORLD TO PROMOTE RESEARCH AND TO ENABLE FAMILIES FRIENDS AND PROFESSIONALS TO MAKE AN INFORMED DECISION AND PLAN FOR THE AFFECTED PERSON'S PRESENT AND FUTURE

Governing document: CONSTITUTION ADOPTED 20 NOVEMBER 1994 as amended on 27 Apr 2019 as amended on 26 Aug 2020

Trustees (9)

9trustees
0aged 70+

Connected charities (1)

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