MLD Support Association UK

Registered charity 1150542 CIO Registered since 2013

Operates: Throughout England And Wales

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

trustees on the board

7.8y median 8y

average tenure

14y

longest tenure

trustees past 6 years

8.3y

average years in governance

4 vs 0 portfolio

first-time trustees

company-linked trustees

Sector coverage

Disability 5Education/training 5The Advancement Of Health Or Saving Of Lives 5

Commercial experience

Tech and media 1

Gaps to watch

Several long-serving trustees could step down together

Boards that share trustees

Niemann-Pick UK 1 shared trustee

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Related organisations

Niemann-Pick UK 1 shared trustee
Cdls Foundation UK & Ireland Similar size; both Disability
The Bartle Family Charitable Trust Similar size; both Disability
Contact 88 Similar size; both Disability
Kids First Similar size; both Disability
Brightstars Similar size; both Disability

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Website	MLDSupportUK.org.uk
Email	admin@MLDSupportUK.org.uk
Phone	01227372424
Address	Need More Time Ltd, 35 Marine Terrace, MARGATE, Kent, CT9 1XJ

Finances

£53,341 latest income

Year	Income	Spending
2021	£9,254	£13,405
2022	£26,573	£16,680
2023	£32,266	£37,019
2024	£35,495	£25,681
2025	£53,341	£31,197

What it does

What

Education/trainingThe Advancement Of Health Or Saving Of LivesDisability

Who

Children/young PeoplePeople With DisabilitiesOther Defined Groups

How

Provides Advocacy/advice/informationSponsors Or Undertakes Research

Charitable objects

1.TO ADVANCE THE EDUCATION OF THE PUBLIC IN THE SUBJECT OF THE DIAGNOSIS, PROGRESSION, AND TREATMENT FOR ALL FORMS OF METACHROMATIC LEUKODYSTROPHY (M.L.D.).2. TO RELIEVE THE MENTAL AND PHYSICAL SICKNESS OF PERSONS RESIDENT IN THE UNITED KINGDOM, SUFFERING FROM BEREAVEMENT OR LOSS OF A FAMILY MEMBER THROUGH METACHROMATIC LEUKODYSTROPHY (M.L.D.) BY THE PROVISION OF COUNSELLING AND SUPPORT FOR SUCH PERSONS.3. TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF SUFFERERS OF METACHROMATIC LEUKODYSTROPHY (M.L.D.) IN THE UNITED KINGDOM THROUGH THE PROVISION OF SUPPORT, EDUCATION AND PRACTICAL ADVICE TO THEIR FAMILIES; AND THROUGH THE PROVISION OF FINANCIAL ASSISTANCE TO BONA FIDE CLINICIANS AND RESEARCH BODIES WHO ARE SEEKING THERAPEUTIC TREATMENT FOR THIS CONDITION.

Governing document: CIO - FOUNDATION REGISTERED ON 21/01/2013 as amended on 27 Feb 2026

Trustees (5)

5trustees

69median age

0aged 70+

Daniel Erskine since 2024
Elizabeth Davenport since 2022
Jacqueline Imrieage 69 since 2015
Nicola Jane Elson since 2018
Twila D'Cruz since 2012

Connected charities (1)

Niemann-Pick UK 1 shared trustee

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