Registered charity · Sunderland
Niemann-Pick UK
- 11 trustees
- Income £480k (2025)
Official record Charity Commission · updated 13th September 2026 · Sources
Who leads it
- Helen CarterChair · since 2011
- Anthony Mead-WynneTrustee · since 2023
- David RobertsTrustee · since 2011
- Fiona DunneTrustee · since 2019
- Jacqueline ImrieTrustee · since 2013
- Janice BrooksTrustee · since 2011
- Joella MelvilleTrustee · since 2016
- Professor Frances Mary PlattTrustee · since 2023
Show all 11 trustees
- Thomas Kirkegaard JenseTrustee · since 2022
- William OwenTrustee · since 2011
- William Ralph Henry EvansTrustee · since 2011
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
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How it connects
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People on this board also serve on 1 other charity:
- MLD Support Association UK · 1 shared trustee
Shared trustees are formal board links, not proof the organisations work together.
About
- What it does
- General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- Where
- Throughout England And Wales
- Website
- www.npuk.org (opens in a new tab)
- Linked company
- Niemann-Pick UK
- Registered
- 2011
Income and spending
- YearIncomeSpending
- 2025£480k£476k
- 2024£374k£456k
- 2023£307k£440k
Earlier years
- 2022£416k£338k
- 2021£351k£332k
Charitable objects
TO RELIEVE SICKNESS AMONGST FAMILIES AFFLICTED BY NIEMANN-PICK DISEASE AND ANY DISTRESS WHICH MAY ARISE THEREFROM AND TO ADVANCE THE EDUCATION OF SUCH FAMILIES, INTERESTED PROFESSIONALS AND THE GENERAL PUBLIC IN ALL MATTERS CONCERNING THE DISEASE AS THE COMMITTEE MAY DETERMINE ("THE OBJECTS")THIS CHARITY IS THE INCORPORATED SUCCESSOR TO REGISTERED CHARITY 1061881 - NIEMANN-PICK DISEASE GROUP UK
Board analysis for researchers
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
11 trustees on the board
- Helen Carter Chair since 2011
- Anthony Mead-Wynne since 2023
- David Roberts since 2011
- Fiona Dunne since 2019
- Jacqueline Imrie since 2013
- Janice Brooks since 2011
- Joella Melville since 2016
- Professor Frances Mary Platt since 2023
- Thomas Kirkegaard Jense since 2022
- William Owen since 2011
- William Ralph Henry Evans since 2011
Trustees past 6 years
- Helen Carter Chair since 2011
- David Roberts since 2011
- Fiona Dunne since 2019
- Jacqueline Imrie since 2013
- Janice Brooks since 2011
- Joella Melville since 2016
- William Owen since 2011
- William Ralph Henry Evans since 2011
First-time vs portfolio trustees
First-time (10)
- Helen Carter Chair since 2011
- Anthony Mead-Wynne since 2023
- David Roberts since 2011
- Fiona Dunne since 2019
- Janice Brooks since 2011
- Joella Melville since 2016
- Professor Frances Mary Platt since 2023
- Thomas Kirkegaard Jense since 2022
- William Owen since 2011
- William Ralph Henry Evans since 2011
Portfolio (1)
- Jacqueline Imrie since 2013
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.
Gaps to watch
- Several long-serving trustees could step down together
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1144406
- Status
- Registered
- Governing document
- MEMORANDUM AND ARTICLES INCORPORATED 15 SEP 2011AS AMENDED BY CERTIFICATE OF INCORPORATION ON CHANGE OF NAME DATED 12 APR 2017
- Companies House
- Company number 07775835 · Active
- Contact on the register
- 01914150693 · info@npuk.org
- Edition
- Register edition compiled 13th September 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
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