Niemann-Pick UK

Registered charity 1144406 Registered since 2011

Operates: Throughout England And Wales

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

trustees on the board

10.5y median 13y

average tenure

15y

longest tenure

trustees past 6 years

11y

average years in governance

10 vs 0 portfolio

first-time trustees

company-linked trustees

Sector coverage

Education/training 11The Advancement Of Health Or Saving Of Lives 11General Charitable Purposes 10Disability 1

Commercial experience

Tech and media 9Business services 1Property 1

Gaps to watch

Several long-serving trustees could step down together

Boards that share trustees

MLD Support Association UK 1 shared trustee

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Related organisations

MLD Support Association UK 1 shared trustee
Metabolic Support Similar size; both Disability
M.L.T. Belz Similar size; both Disability
Ability Dogs 4 Young People IOW Similar size; both Disability
Belvoir Vale RDA Similar size; both Disability
Medics Across Continents Similar size; both Disability

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Website	www.npuk.org
Email	info@npuk.org
Phone	01914150693
Address	Suite 2E, NORTH SANDS BUSINESS CENTRE, Liberty Way, Roker, SUNDERLAND, SR6 0QA

Finances

£479,696 latest income

Year	Income	Spending
2021	£350,918	£331,592
2022	£416,403	£337,827
2023	£306,594	£440,372
2024	£373,655	£456,159
2025	£479,696	£476,175

What it does

What

General Charitable PurposesEducation/trainingThe Advancement Of Health Or Saving Of LivesDisability

Who

Children/young PeoplePeople With DisabilitiesOther Charities Or Voluntary Bodies

How

Provides ServicesProvides Advocacy/advice/information

Charitable objects

TO RELIEVE SICKNESS AMONGST FAMILIES AFFLICTED BY NIEMANN-PICK DISEASE AND ANY DISTRESS WHICH MAY ARISE THEREFROM AND TO ADVANCE THE EDUCATION OF SUCH FAMILIES, INTERESTED PROFESSIONALS AND THE GENERAL PUBLIC IN ALL MATTERS CONCERNING THE DISEASE AS THE COMMITTEE MAY DETERMINE ("THE OBJECTS")THIS CHARITY IS THE INCORPORATED SUCCESSOR TO REGISTERED CHARITY 1061881 - NIEMANN-PICK DISEASE GROUP UK

Governing document: MEMORANDUM AND ARTICLES INCORPORATED 15 SEP 2011AS AMENDED BY CERTIFICATE OF INCORPORATION ON CHANGE OF NAME DATED 12 APR 2017

Trustees (11)

11trustees

65median age

3aged 70+

Succession outlook: 3 of 11 trustees are aged 70 or over.

Helen Carterage 50 Chair since 2011
Anthony Mead-Wynne since 2023
David Robertsage 82 since 2011
Fiona Dunneage 62 since 2019
Jacqueline Imrieage 69 since 2013
Janice Brooksage 78 since 2011
Joella Melvilleage 40 since 2016
Professor Frances Mary Plattage 65 since 2023
Thomas Kirkegaard Jense since 2022
William Owenage 83 since 2011
William Ralph Henry Evansage 47 since 2011

Linked company (Companies House)

Niemann-Pick UK · 07775835 · Active

PRI/LBG/NSC (Private, Limited by guarantee, no share capital, use of 'Limited' exemption) · incorporated 15/09/2011

4 governing document(s) held from Companies House.

Connected charities (1)

MLD Support Association UK 1 shared trustee

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