The Neurofibromatosis Association

Registered charity 1078790 Registered since 2000

Operates: Throughout England And Wales

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

trustees on the board

5.2y median 5.5y

average tenure

11y

longest tenure

trustees past 6 years

12.6y

average years in governance

6 vs 1 portfolio

first-time trustees

company-linked trustees

Sector coverage

Disability 7General Charitable Purposes 7The Advancement Of Health Or Saving Of Lives 7Arts/culture/heritage/science 1Human Rights/religious Or Racial Harmony/equality Or Diversity 1Other Charitable Purposes 1

Commercial experience

Health and social care 8Professional services 5Property 2

Gaps to watch

Several long-serving trustees could step down together

Boards that share trustees

Race Equality First Limited 1 shared trustee
Race Council Cymru 1 shared trustee
The Fitzgerald Foundation 1 shared trustee

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Related organisations

The Fitzgerald Foundation 1 shared trustee
Race Equality First Limited 1 shared trustee
Race Council Cymru 1 shared trustee
African Caribbean Care Group Similar size; both Disability
Jennyruth Workshops LTD Similar size; both Disability
Twilight Kindness Similar size; both Disability

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Website	www.nervetumours.org.uk
Email	info@nervetumours.org.uk
Phone	02084391234
Address	First Floor, 44 Coombe Lane, London, SW20 0LA

Finances

£555,411 latest income

Year	Income	Spending
2021	£397,174	£390,589
2022	£512,516	£448,334
2023	£456,409	£424,665
2024	£487,431	£485,887
2025	£555,411	£548,010

What it does

What

General Charitable PurposesThe Advancement Of Health Or Saving Of LivesDisability

Who

Children/young PeopleElderly/old PeoplePeople With DisabilitiesOther Charities Or Voluntary BodiesThe General Public/mankind

How

Provides Human ResourcesProvides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes Research

Charitable objects

TO RELIEVE PERSONS SUFFERING FROM NEUROFIBROMATOSIS.

Governing document: MEMORANDUM AND ARTICLES OF ASSOCIATION INCORPORATED 30TH JUNE 1999 AS AMENDED BY SPECIAL RESOLUTION DATED 7 FEBRUARY 2009

Trustees (8)

8trustees

73median age

4aged 70+

Succession outlook: 4 of 8 trustees are aged 70 or over.

Richard Eric Greenway Goodeage 73 Chair since 2015
Alexis Rohan Chanmugamage 74 since 2020
Dr Sheelagh Harwell since 2026
Jeremy Howard Bogushage 57 since 2026
Jonathan Peter Bruceage 59 since 2020
Matthew William Buchan Jonesage 36 since 2021
Professor Meena Upadhyaya since 2021
Professor Rosalie Elaine Fernerage 73 since 2017

Linked company (Companies House)

The Neurofibromatosis Association · 03798407 · Active

PRI/LBG/NSC (Private, Limited by guarantee, no share capital, use of 'Limited' exemption) · incorporated 30/06/1999

4 governing document(s) held from Companies House.

Connected charities (3)

Race Equality First Limited 1 shared trustee
Race Council Cymru 1 shared trustee
The Fitzgerald Foundation 1 shared trustee

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