Skip to content
Governance Register
Sign inFind yourself
Find yourselfSign in
Search How it works For organisations For professionals

Edition

United Kingdom (current)IrelandUnited StatesNew ZealandCanadaAustraliaScotlandNorthern Ireland

Company · London

The Neurofibromatosis Association

Other human health activities

How am I connected?
More
View network map Report an issue

Official record Companies House · updated 27th September 2026 · Sources

Network

The large node is The Neurofibromatosis Association. Red nodes are organisations, white nodes are people. Sign in free to explore further.

Who leads it

Previous officers 41

  1. Marc Christian Crank 2015-2016 Director View profile
  2. Michael Ezran Fry 2014-2026 Director View profile
  3. Professor Daffydd Gareth Richard Evans 2014-2017 Director View profile
  4. Dr Timothy Henry Corn 2013-2023 Director View profile
  5. Emily Louise Owen 2012-2023 Director View profile
  6. Sophie-Anne Rees 2012-2014 Director View profile
  7. Davina Lorraine Smith 2012-2014 Director View profile
  8. Stewart Edward Lee 2011-2024 Director View profile
  9. Michael Peter Mills 2011-2016 Director View profile
  10. Markus Gilges 2010-2013 Director View profile
  11. Lindsey Helen Mackay 2010-2011 Director View profile
  12. Ann Christine De Winter 2008-2010 Director View profile
  13. Iain Barry Harper 2008-2011 Director View profile
  14. Richard Charles Taylor 2008-2013 Director View profile
  15. Dr Susan Huson 2007-2012 Director View profile
  16. Anne Elizabeth Bonnar 2007-2012 Director View profile
  17. Diana Ollis 2007-2012 Director View profile
  18. Maria Toman 2006-2008 Director View profile
  19. Martin Leslie Reynolds 2006-2008 Director View profile
  20. Clare Margaret Webb 2005-2007 Director View profile
  21. Elizabeth Ann Tucker 2005-2007 Director View profile
  22. Jennifer Patricia Lang 2005-2009 Director View profile
  23. Richard Patrick Collisson 2003-2006 Director View profile
  24. Diane Susan Lane 2001-2004 Director View profile
  25. Andrew John Axelsen 2001-2008 Director View profile
  26. Anthony Paul Lewis 2001-2004 Director View profile
  27. Bramwell Selwyn Bennetta 2001-2006 Director View profile
  28. Susan Carolyn Helal 2001-2006 Director View profile
  29. Karen Anne Over 1999-2001 Director View profile
  30. Robert Bestow 1999-2006 Director View profile
  31. Leslie Alan Turnbull 1999-2003 Director View profile
  32. Sandra Turnbull 1999-2003 Director View profile
  33. Wendy Ann Wallis 1999-2002 Director View profile
  34. David Walker 1999-2002 Director View profile
  35. Susan Fildes 1999-2002 Director View profile
  36. Susan Christina Almond 1999-2001 Director View profile
  37. Andrew Axelsen 2007-2008 Secretary View profile
  38. Andrew Tween 2007-2010 Secretary View profile
  39. Margaret Ann Ponder 2006-2007 Secretary View profile
  40. Carol Louise Hassall 2006-2007 Secretary View profile
  41. Philip Ray Scales 1999-2006 Secretary View profile

Directors and secretaries as filed at Companies House.

Do you help lead this organisation? Set up its network · How it works

About

What it does
Other human health activities
Incorporated
30/06/1999
Registered office
London
Also a registered charity
The Neurofibromatosis Association

Grants received

7 grants · £63,248 total

360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.

Top funders

  • The National Lottery Community Fund · £63,248 (7 grants)

Most recent

  • The National Lottery Community Fund £18,8532025-02-27
  • The National Lottery Community Fund £5,2252020-04-17
  • The National Lottery Community Fund £10,0002020-02-24
  • The National Lottery Community Fund £10,0002018-08-31
  • The National Lottery Community Fund £4,6352017-01-25
Board analysis

Board DNA

How this board is put together, from the Companies House officer record and Charity Commission trustee records - deterministic, no AI.iBoard compositionCounted from the dated Companies House officer record: the current directors only, past directors excluded.

7 directors on the board

4.5y median 5.1y
average tenure
9.1y
longest tenure

Directors past 6 years

First-time vs portfolio directors

First-time (2)

Portfolio (5)

Left in the last 12 months

Where else this board sits iWhere else this board sitsThe charitable fields these directors govern in elsewhere, by Charity Commission classification. Excludes this company and any charity it is the legal face of.

Professional services 2Health and social care 1Property 1Tech and media 1

The sectors these directors govern in elsewhere. This company, and any charity it is the legal face of, are excluded - counting them would just tell you what you are already looking at.

Gaps to watch

  • No director brings board experience from anywhere else
  • Narrow spread of sectors across the board

Where to look Suggested search: a director with board experience elsewhere; directors from a wider range of sectors.

Sources

Official record from Companies House. Governance Register calculates the connections.

Record details
Company number
03798407
Status
Active
Type
PRI/LBG/NSC (Private, Limited by guarantee, no share capital, use of 'Limited' exemption)
Accounts next due
31/07/2027
Edition
Register edition compiled 27th September 2026
Labels
Official record from Companies House · Calculated derived by Governance Register.

Contains public sector information licensed under the Open Government Licence v3.0. Report an issue · How we handle data