The International Alliance of ALS / MND Associations
Registered charity 1079504 Registered since 2000
Operates: Northamptonshire, Argentina, Belgium, Canada, China, Colombia, Croatia, France, Germany, Iceland, India, Israel
Connected trustee network
The connection graph needs a free account.
This charity's record is public. The network of who else its trustees govern is compiled from the registers by us, and an account keeps it out of bulk scrapers.
Sign in, freeBoard DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.
Sector coverage
Commercial experience
Gaps to watch
- Narrow spread of causes across the board
Related organisations
- Bagri Foundation Similar size; both Health
- International Headache Society Similar size; both Health
- Kapella Similar size; both Health
- Doncaster and Bassetlaw Hospitals NHS Foundation Trust Charitable Fund Similar size; both Health
- Avert Similar size; both Health
- Neuroendocrine Cancer UK Similar size; both Health
Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.
Contact
| Website | www.alsmndalliance.org |
| alliance@als-mnd.org | |
| Phone | +1-647-203-2117 |
| Address | Francis Crick House, 6 Summerhouse Road, Moulton Park, Northampton, ENGLAND, NN3 6BJ |
Finances
£699,821 latest income
| Year | Income | Spending |
|---|---|---|
| 2021 | £164,202 | £228,139 |
| 2022 | £374,814 | £345,565 |
| 2023 | £633,871 | £585,958 |
| 2024 | £595,025 | £693,541 |
| 2025 | £699,821 | £737,463 |
What it does
What
The Advancement Of Health Or Saving Of LivesWho
Other Charities Or Voluntary BodiesOther Defined GroupsHow
Makes Grants To OrganisationsProvides Advocacy/advice/informationActs As An Umbrella Or Resource BodyCharitable objects
1) FOR THE RELIEF OF PERSONS WORLDWIDE WHO ARE OR WHO ARE SUSPECTED OF BEING AFFECTED BY AMYOTROPHIC LATERAL SCLEROSIS (ALS)/ MOTOR NEURONE DISEASE (MND) AND ASSOCIATED CONDITIONS; AND2) THE ADVANCEMENT OF THE EDUCATION OF THE PUBLIC IN MATTERS RELATING TO ALS/MND
Governing document: MEMORANDUM AND ARTICLES OF ASSOCIATION INCORPORATED ON 24TH MARCH 1999 AS AMENDED BY SPECIAL RESOLUTIONS PASSED ON 12TH NOVEMBER 1999 AND 31ST OCTOBER 2008AS AMENDED BY SPECIAL RESOLUTION(S) DATED 04 DEC 2016 as amended on 01 Dec 2019 as amended on 19 Nov 2020
Trustees (12)
- Clare Sullivanage 45 since 2025
- Evy Reviersage 38 since 2025
- Jennifer Bedfordage 55 since 2025
- Jennifer Hjelleage 48 since 2025
- Marcela Santosage 36 since 2020
- Mary Ellen Benchage 69 since 2025
- Nina Riffath Barakzaiage 64 since 2026
- Pablo Aquinoage 53 since 2025
- Riccardo Zuccarinoage 50 since 2025
- Tammy Mooreage 55 since 2023
- Valeria Gerbinoage 40 since 2025
- Yohei Yomada since 2022
Linked company (Companies House)
The International Alliance of ALS/MND Associations · 03739783 · Active
PRI/LBG/NSC (Private, Limited by guarantee, no share capital, use of 'Limited' exemption) · incorporated 24/03/1999
6 governing document(s) held from Companies House.
Connected charities (0)
No charities share a trustee (from current data).
For recruiters
Tools for approaching charities and finding candidates. In development - register to get early access.
Report an error in this record - let us know.
Related record