The Governance RegisterEdition 2026 · Compiled 6th September 2026

The International Alliance of ALS / MND Associations

Registered charity 1079504 Registered since 2000

Operates: Northamptonshire, Belgium, Canada, China, Colombia, Croatia, France, Germany, Iceland, India, Israel, Netherlands

Connected trustee network

The connection graph needs a free account.

This charity's record is public. The network of who else its trustees govern is compiled from the registers by us, and an account keeps it out of bulk scrapers.

Sign in, free

Find a path from this charity →

Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

12 trustees on the board

1.8y median 1y
average tenure
6y
longest tenure
1
trustees past 6 years
4.4y
average years in governance

First-time vs portfolio trustees

First-time (12)

11
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

The Advancement Of Health Or Saving Of Lives 12

Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.

Other services 11

Gaps to watch

  • Narrow spread of causes across the board

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Health of the organisation facts side by side - the conclusion is yours

Income v spending, filed accountsiIncome v spendingTotal gross income and expenditure from filed annual returns, Charity Commission, last 5 years.
2021
2022
2023
2024
2025
incomespending£700k latest income · spending exceeded income in 2024 and 2025
ReservesiReserves12 x free reserves / annual expenditure, from the Part B annual return. The sector median is computed across all Part B filers in the same income band.

1.2 months of spending held in free reserves · median for charities its size: 4.0 months · was 4.3 in 2021

0
EmployeesiEmployeesHeadcount as filed in Part B annual returns, per financial year. Shown exactly as filed; year-on-year figures may be filed on different bases, so a comparison is only shown when the filings are plausibly comparable.

Related organisations iRelated organisationsTwo groups, both deterministic from public records. Related organisations share two or more trustees with this board - a real structural link, such as a subsidiary or sister charity. Connected through a shared trustee share exactly one person - a genuine connection, but not the same group. A board with no shared trustee at all may still appear here when it is active in the same charitable field.

Also active in the same field

Deterministic, from public records.

Contact

Websitewww.alsmndalliance.org
Emailalliance@als-mnd.org
Phone+1-647-203-2117
AddressFrancis Crick House, 6 Summerhouse Road, Moulton Park, Northampton, ENGLAND, NN3 6BJ

Finances

£699,821 latest income

YearIncomeSpending
2021£164,202£228,139
2022£374,814£345,565
2023£633,871£585,958
2024£595,025£693,541
2025£699,821£737,463

What it does

What

The Advancement Of Health Or Saving Of Lives

Who

Other Charities Or Voluntary BodiesOther Defined Groups

How

Makes Grants To OrganisationsProvides Advocacy/advice/informationActs As An Umbrella Or Resource Body

Charitable objects

1) FOR THE RELIEF OF PERSONS WORLDWIDE WHO ARE OR WHO ARE SUSPECTED OF BEING AFFECTED BY AMYOTROPHIC LATERAL SCLEROSIS (ALS)/ MOTOR NEURONE DISEASE (MND) AND ASSOCIATED CONDITIONS; AND2) THE ADVANCEMENT OF THE EDUCATION OF THE PUBLIC IN MATTERS RELATING TO ALS/MND

Governing document: MEMORANDUM AND ARTICLES OF ASSOCIATION INCORPORATED ON 24TH MARCH 1999 AS AMENDED BY SPECIAL RESOLUTIONS PASSED ON 12TH NOVEMBER 1999 AND 31ST OCTOBER 2008AS AMENDED BY SPECIAL RESOLUTION(S) DATED 04 DEC 2016 as amended on 01 Dec 2019 as amended on 19 Nov 2020

Trustees (12)

12trustees
50median age
0aged 70+

Linked company (Companies House)

The International Alliance of ALS/MND Associations · 03739783 · Active

PRI/LBG/NSC (Private, Limited by guarantee, no share capital, use of 'Limited' exemption) · incorporated 24/03/1999

6 governing document(s) held from Companies House.

Connected charities (0)

No charities share a trustee (from current data).

For recruiters

Tools for approaching charities and finding candidates - free with an account.

Create your free account ->

Report an error in this record - let us know.