Skip to content
Governance Register
Sign inFind yourself
Find yourselfSign in
Search How it works For organisations For professionals

Edition

United Kingdom (current)IrelandUnited StatesNew ZealandCanadaAustraliaScotlandNorthern Ireland

Company

The International Alliance of ALS/MND Associations

How am I connected?
More
View network map Report an issue

Official record Companies House · updated 4th October 2026 · Sources

Network

The large node is The International Alliance of ALS/MND Associations. Red nodes are organisations, white nodes are people. Sign in free to explore further.

Who leads it

Previous officers 57

  1. Angela Harris 2024-2025 Director View profile
  2. Gethin Thomas 2023-2025 Director View profile
  3. Sabine Turgeman 2022-2024 Director View profile
  4. Dr Hilmi Uysal 2021-2024 Director View profile
  5. Lung Kuo 2021-2024 Director View profile
  6. Andrea Pauls Backman 2019-2022 Director View profile
  7. Nicholas Carl Goldup 2019-2023 Director View profile
  8. Pablo Agustin Aquino 2019-2024 Director View profile
  9. David Imam Ali 2017-2023 Director View profile
  10. Calaneet Hadassah Balas 2017-2025 Director View profile
  11. Craig William Francis Stockton 2017-2021 Director View profile
  12. Robert Goldstein 2016-2018 Director View profile
  13. Gorrit-Jan Blonk 2015-2021 Director View profile
  14. Ying "Kiki" Qu 2014-2020 Director View profile
  15. Barbara Newhouse 2014-2017 Director View profile
  16. Sara Marie Feldman 2013-2019 Director View profile
  17. Lindee Ellen David 2013-2014 Director View profile
  18. Efrat Carmi 2012-2018 Director View profile
  19. Dr Alper Kaya 2012-2015 Director View profile
  20. Robert Bestow 2011-2017 Director View profile
  21. Tsai, Ching Piao, Assoc Prof 2011-2014 Director View profile
  22. Maria Teresa Salas 2011-2017 Director View profile
  23. Jane Hansen Gilbert 2011-2013 Director View profile
  24. Steven Richard Bell 2010-2018 Director View profile
  25. Carol Elizabeth Birks 2010-2017 Director View profile
  26. Jens Spanfelt 2009-2015 Director View profile
  27. Dr Ales Praznikar 2008-2012 Director View profile
  28. Dr Monica Cattani 2008-2010 Director View profile
  29. Dr Jeffrey Deitch 2008-2013 Director View profile
  30. Yumiko Shimada Kawaguchi 2008-2011 Director View profile
  31. Tellechea Rotta, Francisco, Md 2008-2011 Director View profile
  32. Sharon Matland 2008-2011 Director View profile
  33. Prof Paolo Bongioanni 2006-2008 Director View profile
  34. Jette Gudrun Birgitta Moeller 2006-2009 Director View profile
  35. Gudjon Sigurdsson 2005-2024 Director View profile
  36. David Cameron 2005-2011 Director View profile
  37. Stevic, Zorica, Associate Professor 2005-2008 Director View profile
  38. Eithne Frost 2004-2005 Director View profile
  39. Alan Philip Graham 2001-2010 Director View profile
  40. Suzanne Lawson 2000-2003 Director View profile
  41. Rodney Neville Harris 1999-2008 Director View profile
  42. Mauro Codini 1999-2000 Director View profile
  43. Marie Jeanne Six-Spiritus 1999-2000 Director View profile
  44. Wendy Abrams 1999-2013 Director View profile
  45. Andrew Hayes Fleeson 1999-2010 Director View profile
  46. Sostarko, Marija, M D Ph D 1999-2003 Director View profile
  47. Dr Andrew Ian Weir 1999-2004 Director View profile
  48. Mavis Gallienne 1999-1999 Director View profile
  49. Diane Helen Heron 1999-2004 Director View profile
  50. Andrew Julian Blake 1999-1999 Director View profile
  51. Christine Margaret Rigby 1999-1999 Director View profile
  52. Con Alexander 1999-1999 Director View profile
  53. Mary Josephine Groom 1999-1999 Director View profile
  54. Rachel Marie Patterson Moles 2012-2018 Secretary View profile
  55. Donna Suzanne Corbett 2011-2011 Secretary View profile
  56. Malcolm Geoffrey Watkins 1999-2011 Secretary View profile
  57. Philip Duncan John Kirkpatrick 1999-1999 Secretary View profile

Directors and secretaries as filed at Companies House.

Do you help lead this organisation? Set up its network · How it works

About

Incorporated
24/03/1999
Also a registered charity
The International Alliance of ALS / MND Associations
Board analysis

Board DNA

How this board is put together, from the Companies House officer record and Charity Commission trustee records - deterministic, no AI.iBoard compositionCounted from the dated Companies House officer record: the current directors only, past directors excluded.

12 directors on the board

3.7y median 1.5y
average tenure
15.6y
longest tenure

Directors past 6 years

First-time vs portfolio directors

First-time (12)

1
also govern a charity

Left in the last 12 months

Gaps to watch

  • No director brings board experience from anywhere else
  • Narrow spread of sectors across the board

Where to look Suggested search: a director with board experience elsewhere; directors from a wider range of sectors.

Sources

Official record from Companies House. Governance Register calculates the connections.

Record details
Company number
03739783
Status
Active
Type
PRI/LBG/NSC (Private, Limited by guarantee, no share capital, use of 'Limited' exemption)
Edition
Register edition compiled 4th October 2026
Labels
Official record from Companies House · Calculated derived by Governance Register.

Contains public sector information licensed under the Open Government Licence v3.0. Report an issue · How we handle data