The Governance RegisterEdition 2026 · Compiled 30th August 2026

The Ataxia-Telangiectasia Society

Registered charity 1105528 Registered since 2004

Operates: Throughout England And Wales, Scotland, Northern Ireland

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

8 trustees on the board

6.9y median 5y
average tenure
12y
longest tenure

Trustees past 6 years

9.9y
average years in governance

First-time vs portfolio trustees

First-time (8)

8
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

Arts/culture/heritage/science 8Disability 8The Advancement Of Health Or Saving Of Lives 8

Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.

Health and social care 8

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Health of the organisation facts side by side - the conclusion is yours

Income v spending, filed accountsiIncome v spendingTotal gross income and expenditure from filed annual returns, Charity Commission, last 5 years.
2020
2021
2022
2023
2024
incomespending£657k latest income
ReservesiReserves12 x free reserves / annual expenditure, from the Part B annual return. The sector median is computed across all Part B filers in the same income band.

8.5 months of spending held in free reserves · median for charities its size: 4.0 months

9
EmployeesiEmployeesHeadcount as filed in Part B annual returns, per financial year. Shown exactly as filed; year-on-year figures may be filed on different bases, so a comparison is only shown when the filings are plausibly comparable.
20%
Income from governmentiIncome from governmentGovernment contracts plus government grants as a share of total gross income, latest Part A annual return.

Related organisations iRelated organisationsTwo groups, both deterministic from public records. Related organisations share two or more trustees with this board - a real structural link, such as a subsidiary or sister charity. Connected through a shared trustee share exactly one person - a genuine connection, but not the same group. A board with no shared trustee at all may still appear here when it is active in the same charitable field.

Also active in the same field

Deterministic, from public records.

Contact

Websitewww.atsociety.org.uk
Emailinfo@atsociety.org.uk
Phone01582760733
AddressUnit 54, Thrales End Business Centre, Thrales End Lane, Harpenden, Herts, AL5 3NS

Finances

£657,491 latest income

YearIncomeSpending
2020£320,758£505,594
2021£368,340£500,634
2022£429,145£481,406
2023£478,337£662,593
2024£657,491£571,908

What it does

What

The Advancement Of Health Or Saving Of LivesDisabilityArts/culture/heritage/science

Who

People With Disabilities

How

Makes Grants To IndividualsMakes Grants To OrganisationsProvides Advocacy/advice/informationSponsors Or Undertakes Research

Charitable objects

THE RELIEF OF SICKNESS AND DISTRESS AMONG PERSONS SUFFERING FROM ATAXIA-TELANGIECTASIA.

Governing document: MEMORANDUM AND ARTICLES OF ASSOCIATION INCORPORATED 12 JULY 2004 as amended on 24 Mar 2022 as amended on 24 Mar 2022 as amended on 24 Mar 2022

Trustees (8)

8trustees
54median age
2aged 70+

Linked company (Companies House)

The Ataxia-Telangiectasia Society · 05177145 · Active

PRI/LBG/NSC (Private, Limited by guarantee, no share capital, use of 'Limited' exemption) · incorporated 12/07/2004

3 governing document(s) held from Companies House.

Connected charities (0)

No charities share a trustee (from current data).

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