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Registered charity · Exeter

The Tuberous Sclerosis Association

The Tuberous Sclerosis Association is a registered charity (number 1039549) based in Exeter, governed by 7 trustees and chaired by Dr Frances Elmslie since 2019. Latest income £478k (2025). Source: Charity Commission register, updated 18th October 2026.

Also known as TSA (Charity Commission)

  • 7 trustees
  • Income £478k (2025)
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Official record Charity Commission · updated 18th October 2026 · Sources · Free, no card or password

Network

The large node is The Tuberous Sclerosis Association. Red nodes are organisations, white nodes are people. Dashed links are historical or inferred. Click any node to explore.

Who leads it

Current trustees as listed by the Charity Commission, which does not publish previous trustees.

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Similar charities are matched by type of organisation or purpose and listed by latest income; shared trustees are formal board links. Neither is proof the organisations work together.

About

What it does
General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability
Where
Throughout England And Wales, Scotland, Northern Ireland
Website
www.tuberous-sclerosis.org (opens in a new tab)
Linked company
The Tuberous Sclerosis Association
Registered
1994

Income and spending

  • YearIncomeSpending
  • 2025£478k£539k
  • 2024£657k£468k
  • 2023£362k£325k
Earlier years
  • 2022£285k£359k
  • 2021£443k£476k

Income trend, 2021 to 2025.

Income source mix, 2021: Government grants 17%. From the charity's annual return.

Charitable objects

TO PROMOTE THE CARE WELFARE TREATMENT INTEREST EDUCATION AND ADVANCEMENT OF PERSONS SUFFERING FROM TUBEROUS SCLEROSIS AND RESEARCH INTO ITS CAUSE AND CURE INCLUDING THE DISSEMINATION OF THE USEFUL RESULTS OF SUCH RESEARCH

Grants received

3 grants · £45,928 total

360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.

Top funders

  • The National Lottery Community Fund · £35,928 (2 grants)
  • Department for Digital, Culture, Media & Sport · £10,000

Most recent

  • The National Lottery Community Fund £20,0002025-11-27
  • The National Lottery Community Fund £15,9282024-08-09
  • Department for Digital, Culture, Media & Sport £10,0002020-08-07
Board analysis

Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

7 trustees on the board

5.7y median 7y
average tenure
8y
longest tenure

Trustees past 6 years

10.1y
average years in governance

First-time vs portfolio trustees

First-time (5)

Portfolio (2)

6
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

Education/training 7General Charitable Purposes 7The Advancement Of Health Or Saving Of Lives 7

Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.

Health and social care 7Property 6Finance 2

Gaps to watch

  • Several long-serving trustees could step down together

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Health of the organisation facts side by side - the conclusion is yours

Income v spending, filed accountsiIncome v spendingTotal gross income and expenditure from filed annual returns, Charity Commission, last 5 years.
2020
2021
2022
2023
2024
incomespending£657k latest income · income exceeded spending in 2023 and 2024
ReservesiReserves12 x free reserves / annual expenditure, from the Part B annual return. The sector median is computed across all Part B filers in the same income band.

18.4 months of spending held in free reserves · median for charities its size: 4.0 months

9
EmployeesiEmployeesHeadcount as filed in Part B annual returns, per financial year. Shown exactly as filed; year-on-year figures may be filed on different bases, so a comparison is only shown when the filings are plausibly comparable.

Sources

Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.

Record details
Registered charity number
1039549
Status
Registered
Governing document
MEMORANDUM AND ARTICLES INCORPORATED 18/02/1994AS AMENDED BY SPECIAL RESOLUTION(S) DATED 06/11/1999AS AMENDED BY SPECIAL RESOLUTION(S) DATED 17/11/2001AS AMENDED BY SPECIAL RESOLUTION(S) DATED 12/11/2011
Companies House
Company number 02900107 · Active
Contact on the register
0300 222 5737 · admin@tuberous-sclerosis.org
Edition
Register edition compiled 18th October 2026
Labels
Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.

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