The Tuberous Sclerosis Association

Registered charity 1039549 Registered since 1994

Operates: Throughout England And Wales, Scotland, Northern Ireland

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

7 trustees on the board

Dr Frances Elmslie Chair since 2019
Annemarie Cotton since 2019
DR Chris Kingswood
Jane Rogers since 2019
Sanjay Sethi since 2018
Simon John James since 2023
Stacey Louise Rose since 2024

5.7y median 7y

average tenure

longest tenure

Trustees past 6 years

Dr Frances Elmslie Chair since 2019
Annemarie Cotton since 2019
Jane Rogers since 2019
Sanjay Sethi since 2018

10y

average years in governance

First-time vs portfolio trustees

First-time (5)

Portfolio (2)

Jane Rogers since 2019
Simon John James since 2023

company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

Education/training 7General Charitable Purposes 7The Advancement Of Health Or Saving Of Lives 7

Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.

Health and social care 7Property 6Finance 2

Gaps to watch

Several long-serving trustees could step down together

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Health of the organisation facts side by side - the conclusion is yours

Income v spending, filed accountsiIncome v spendingTotal gross income and expenditure from filed annual returns, Charity Commission, last 5 years.

2020

2021

2022

2023

2024

incomespending£657k latest income · income exceeded spending in 2023 and 2024

ReservesiReserves12 x free reserves / annual expenditure, from the Part B annual return. The sector median is computed across all Part B filers in the same income band.

18.4 months of spending held in free reserves · median for charities its size: 4.0 months

EmployeesiEmployeesHeadcount as filed in Part B annual returns, per financial year. Shown exactly as filed; year-on-year figures may be filed on different bases, so a comparison is only shown when the filings are plausibly comparable.

Related organisations iRelated organisationsTwo groups, both deterministic from public records. Related organisations share two or more trustees with this board - a real structural link, such as a subsidiary or sister charity. Connected through a shared trustee share exactly one person - a genuine connection, but not the same group. A board with no shared trustee at all may still appear here when it is active in the same charitable field.

Connected through a shared trustee

Wanborough Village Hall 1 shared trustee

Also active in the same field

Wales Mobility Driving Assessment Service Similar size; both Disability
Bibic Similar size; both Disability
Crawley Community Action Similar size; both Disability
The Ataxia-Telangiectasia Society Similar size; both Disability
Smile for Life Childrens Charity Similar size; both Disability

Deterministic, from public records.

Contact

Website	www.tuberous-sclerosis.org
Email	admin@tuberous-sclerosis.org
Phone	0300 222 5737
Address	The TSA, Courtenay House, Pynes Hill, EXETER, EX2 5AZ

Finances

£656,551 latest income

Year	Income	Spending
2020	£418,746	£614,314
2021	£443,454	£476,367
2022	£284,640	£359,049
2023	£361,627	£325,334
2024	£656,551	£468,469

What it does

What

General Charitable PurposesEducation/trainingThe Advancement Of Health Or Saving Of LivesDisability

Who

People With Disabilities

How

Makes Grants To IndividualsMakes Grants To OrganisationsProvides Human ResourcesProvides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes Research

Charitable objects

TO PROMOTE THE CARE WELFARE TREATMENT INTEREST EDUCATION AND ADVANCEMENT OF PERSONS SUFFERING FROM TUBEROUS SCLEROSIS AND RESEARCH INTO ITS CAUSE AND CURE INCLUDING THE DISSEMINATION OF THE USEFUL RESULTS OF SUCH RESEARCH

Governing document: MEMORANDUM AND ARTICLES INCORPORATED 18/02/1994AS AMENDED BY SPECIAL RESOLUTION(S) DATED 06/11/1999AS AMENDED BY SPECIAL RESOLUTION(S) DATED 17/11/2001AS AMENDED BY SPECIAL RESOLUTION(S) DATED 12/11/2011

Trustees (7)

7trustees

54median age

0aged 70+

Dr Frances Elmslieage band 60-64 Chair since 2019
Annemarie Cottonage band 55-59 since 2019
DR Chris Kingswood
Jane Rogersage band 50-54 since 2019
Sanjay Sethiage band 45-49 since 2018
Simon John Jamesage band 55-59 since 2023
Stacey Louise Roseage band 30-34 since 2024

Linked company (Companies House)

The Tuberous Sclerosis Association · 02900107 · Active

PRI/LBG/NSC (Private, Limited by guarantee, no share capital, use of 'Limited' exemption) · incorporated 18/02/1994

6 governing document(s) held from Companies House.

Connected charities (2)

The Parochial Church Council of the Ecclesiastical Parish of Holy Trinity & Christ Church, Stalybridge 1 shared trustee
Wanborough Village Hall 1 shared trustee

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