The Tuberous Sclerosis Association

Registered charity 1039549 Registered since 1994

Operates: Throughout England And Wales, Scotland, Northern Ireland

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

trustees on the board

5.7y median 7y

average tenure

longest tenure

trustees past 6 years

9.9y

average years in governance

6 vs 0 portfolio

first-time trustees

company-linked trustees

Sector coverage

Education/training 7General Charitable Purposes 7The Advancement Of Health Or Saving Of Lives 7

Commercial experience

Health and social care 7Property 6Finance 2

Gaps to watch

Several long-serving trustees could step down together

Boards that share trustees

Wanborough Village Hall 1 shared trustee

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Related organisations

Wanborough Village Hall 1 shared trustee
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Crawley Community Action Similar size; both Disability
The Ataxia-Telangiectasia Society Similar size; both Disability
Smile for Life Childrens Charity Similar size; both Disability

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Website	www.tuberous-sclerosis.org
Email	admin@tuberous-sclerosis.org
Phone	0300 222 5737
Address	The TSA, Courtenay House, Pynes Hill, EXETER, EX2 5AZ

Finances

£656,551 latest income

Year	Income	Spending
2020	£418,746	£614,314
2021	£443,454	£476,367
2022	£284,640	£359,049
2023	£361,627	£325,334
2024	£656,551	£468,469

What it does

What

General Charitable PurposesEducation/trainingThe Advancement Of Health Or Saving Of LivesDisability

Who

People With Disabilities

How

Makes Grants To IndividualsMakes Grants To OrganisationsProvides Human ResourcesProvides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes Research

Charitable objects

TO PROMOTE THE CARE WELFARE TREATMENT INTEREST EDUCATION AND ADVANCEMENT OF PERSONS SUFFERING FROM TUBEROUS SCLEROSIS AND RESEARCH INTO ITS CAUSE AND CURE INCLUDING THE DISSEMINATION OF THE USEFUL RESULTS OF SUCH RESEARCH

Governing document: MEMORANDUM AND ARTICLES INCORPORATED 18/02/1994AS AMENDED BY SPECIAL RESOLUTION(S) DATED 06/11/1999AS AMENDED BY SPECIAL RESOLUTION(S) DATED 17/11/2001AS AMENDED BY SPECIAL RESOLUTION(S) DATED 12/11/2011

Trustees (7)

7trustees

54median age

0aged 70+

Dr Frances Elmslieage 64 Chair since 2019
Annemarie Cottonage 56 since 2019
DR Chris Kingswood
Jane Rogersage 51 since 2019
Sanjay Sethiage 49 since 2018
Simon John Jamesage 59 since 2023
Stacey Louise Roseage 34 since 2024

Linked company (Companies House)

The Tuberous Sclerosis Association · 02900107 · Active

PRI/LBG/NSC (Private, Limited by guarantee, no share capital, use of 'Limited' exemption) · incorporated 18/02/1994

6 governing document(s) held from Companies House.

Connected charities (1)

Wanborough Village Hall 1 shared trustee

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