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The Tuberous Sclerosis Association

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Official record Companies House · updated 4th October 2026 · Sources

Network

The large node is The Tuberous Sclerosis Association. Red nodes are organisations, white nodes are people. Sign in free to explore further.

Who leads it

Previous officers 54

  1. Maxine Tracy Smeaton 2024-2026 Director View profile
  2. Rajan Khullar 2020-2023 Director View profile
  3. Robert Woodthorpe Browne MBE 2018-2022 Director View profile
  4. Jayne Marie Spink 2017-2018 Director View profile
  5. Isabel Divanna 2016-2018 Director View profile
  6. Patrick Farrar Bolton 2016-2022 Director View profile
  7. Lisa Ann Clark Parker Suchet 2015-2022 Director View profile
  8. Sophie Christine Lording 2013-2017 Director View profile
  9. Ann Margaret Jones 2013-2015 Director View profile
  10. Jean Ellen Willson OBE 2013-2018 Director View profile
  11. David Robin Vaughan 2011-2021 Director View profile
  12. Rev Martin Peter Short 2010-2025 Director View profile
  13. Martin James Philip Balfour-Allen 2010-2018 Director View profile
  14. Nicholas Peter Dale 2010-2016 Director View profile
  15. Stephen Geoffrey Tyler 2007-2011 Director View profile
  16. Helen Janet Bower 2005-2015 Director View profile
  17. Professor Harold Baum 2003-2010 Director View profile
  18. Roxana Ann Clark 2003-2006 Director View profile
  19. Agnes Forrest Garrett 2003-2007 Director View profile
  20. Carole Jane Hagan 2001-2010 Director View profile
  21. Angela Mary Huber 2001-2012 Director View profile
  22. Philip Joseph Moshi 2001-2006 Director View profile
  23. Paula Janet Davis 2001-2010 Director View profile
  24. Ann Mercy Hunt 2001-2003 Director View profile
  25. Nicola Algie 1999-2001 Director View profile
  26. Magarita Smith 1999-2001 Director View profile
  27. Peter Francis Noble 1999-2001 Director View profile
  28. Corinne Jane Swainger 1998-2010 Director View profile
  29. Graham Clark 1998-1999 Director View profile
  30. Alexandra Campbell 1998-2015 Director View profile
  31. Jonathan Swainger 1998-2011 Director View profile
  32. Janice Diane Roast 1998-2011 Director View profile
  33. Perry James 1996-2015 Director View profile
  34. Marie Yvonne Durnford 1996-2000 Director View profile
  35. Ann Marie James 1996-2015 Director View profile
  36. Balfour John Durnford 1996-2000 Director View profile
  37. Christine Ann Naylor 1996-2018 Director View profile
  38. Gail Susan Jones 1994-2000 Director View profile
  39. David John Miller 1994-1999 Director View profile
  40. Ann Vaughan 1994-1995 Director View profile
  41. John Stephen Stirk 1994-1998 Director View profile
  42. Maureen Ann Algie 1994-2006 Director View profile
  43. Helen Linda Davey 1994-1998 Director View profile
  44. Guy Holdsworth 1994-1998 Director View profile
  45. Lord John David Henry Kilmaine 1994-2000 Director View profile
  46. Monica Dower 1994-1995 Director View profile
  47. Adrian Sharpham Miles 1994-1999 Director View profile
  48. Alistair Henderson 1994-1996 Director View profile
  49. Maria Helen Papi 1994-1995 Director View profile
  50. Thomas Edmund Carter 1994-2023 Director View profile
  51. John Shepherd 2022-2022 Secretary View profile
  52. Louise Fish 2018-2022 Secretary View profile
  53. Philip Goldenberg 1999-2019 Secretary View profile
  54. Graham Alan Harker 1994-2001 Secretary View profile

Directors and secretaries as filed at Companies House.

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About

Incorporated
18/02/1994
Also a registered charity
The Tuberous Sclerosis Association

Grants received

2 grants · £35,928 total

360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.

Top funders

  • The National Lottery Community Fund · £35,928 (2 grants)

Most recent

  • The National Lottery Community Fund £20,0002025-11-27
  • The National Lottery Community Fund £15,9282024-08-09
Board analysis

Board DNA

How this board is put together, from the Companies House officer record and Charity Commission trustee records - deterministic, no AI.iBoard compositionCounted from the dated Companies House officer record: the current directors only, past directors excluded.

7 directors on the board

9.3y median 7.1y
average tenure
32.1y
longest tenure

Directors past 6 years

First-time vs portfolio directors

First-time (3)

Portfolio (4)

Left in the last 12 months

Where else this board sits iWhere else this board sitsThe charitable fields these directors govern in elsewhere, by Charity Commission classification. Excludes this company and any charity it is the legal face of.

Property 6Finance 2Education 1Health and social care 1Professional services 1

The sectors these directors govern in elsewhere. This company, and any charity it is the legal face of, are excluded - counting them would just tell you what you are already looking at.

Gaps to watch

  • Several long-serving directors could step down together
  • Narrow spread of sectors across the board

Where to look Suggested search: succession planning for long-tenured seats; directors from a wider range of sectors.

Sources

Official record from Companies House. Governance Register calculates the connections.

Record details
Company number
02900107
Status
Active
Type
PRI/LBG/NSC (Private, Limited by guarantee, no share capital, use of 'Limited' exemption)
Edition
Register edition compiled 4th October 2026
Labels
Official record from Companies House · Calculated derived by Governance Register.

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