Registered charity · Glasgow
Soft UK
- 10 trustees
- Income £70k (2025)
Official record Charity Commission · updated 27th September 2026 · Sources
Network
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Who leads it
- MRS J FowlerChair · since 2011
- Alison PearsonTrustee · since 2016
- Deborah Louise KadumTrustee · since 2022
- DR D RobbinsTrustee · since 2011
- John Christopher O'TooleTrustee · since 2024
- Larry CroftonTrustee · since 2025
- Laura PetrieTrustee · since 2020
- MRS L EganTrustee · since 2014
- Rebecca Margaret WirthTrustee · since 2021
- Sunil SinghTrustee · since 2026
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
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About
- What it does
- Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- Where
- Throughout England And Wales, Scotland, Northern Ireland
- Website
- www.soft.org.uk (opens in a new tab)
- Registered
- 1991
Income and spending
- YearIncomeSpending
- 2025£70k£67k
- 2024£80k£55k
- 2023£45k£67k
Earlier years
- 2022£74k£59k
- 2021£63k£33k
Income trend, 2021 to 2025.
Charitable objects
TO RELIEVE THE SICKNESS OF CHILDREN WITH CHROMOSOMATIC ABNORMALITY AND OTHER RARE MEDICAL CONDITIONS (FOR FURTHER DETAILS SEE CLAUSE 2 OF DECLARATION OF TRUST
Grants received
10 grants · £77,332 total360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.
Top funders
- The National Lottery Community Fund · £71,762 (8 grants)
- True Colours Trust · £5,570 (2 grants)
Most recent
- The National Lottery Community Fund
- The National Lottery Community Fund
- The National Lottery Community Fund
- The National Lottery Community Fund
- The National Lottery Community Fund
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
10 trustees on the board
- MRS J Fowler Chair since 2011
- Alison Pearson since 2016
- DR D Robbins since 2011
- Deborah Louise Kadum since 2022
- John Christopher O'Toole since 2024
- Larry Crofton since 2025
- Laura Petrie since 2020
- MRS L Egan since 2014
- Rebecca Margaret Wirth since 2021
- Sunil Singh since 2026
Trustees past 6 years
- MRS J Fowler Chair since 2011
- Alison Pearson since 2016
- DR D Robbins since 2011
- MRS L Egan since 2014
First-time vs portfolio trustees
First-time (9)
- MRS J Fowler Chair since 2011
- Alison Pearson since 2016
- DR D Robbins since 2011
- Deborah Louise Kadum since 2022
- John Christopher O'Toole since 2024
- Larry Crofton since 2025
- Laura Petrie since 2020
- MRS L Egan since 2014
- Rebecca Margaret Wirth since 2021
Portfolio (1)
- Sunil Singh since 2026
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Gaps to watch
- No commercial or business experience on the board
- Several long-serving trustees could step down together
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1002918
- Status
- Registered
- Governing document
- TRUST DEED DATED 26/04/1991AS AMENDED BY ORDER DATED 23/09/2003AS AMENDED BY DEED DATED 16/03/2012
- Contact on the register
- 07748772061 · enquiries@soft.org.uk
- Edition
- Register edition compiled 27th September 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
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