Registered charity · London
The Society for the Study of Inborn Errors of Metabolism
The Society for the Study of Inborn Errors of Metabolism is a registered charity (number 1010639) based in London, governed by 14 trustees and chaired by Prof Manuel Schiff since 2016. Latest income £2.5m (2024). Source: Charity Commission register, updated 18th October 2026.
Also known as S S I E M (Charity Commission)
- 14 trustees
- Income £2.5m (2024)
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Official record Charity Commission · updated 18th October 2026 · Sources · Free, no card or password
Network
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Who leads it
- Prof Manuel SchiffChair · since 2016
- Alice Dianin RDTrustee · since 2025
- Ann SmithTrustee · since 2026
- Dr Andrea Elena DardisTrustee · since 2023
- Dr Elaine Mary MurphyTrustee · since 2025
- Dr Helen MichelakakisTrustee · since 2016
- Dr Hugo RochaTrustee · since 2026
- Dr Stephanie GrunewaldTrustee · since 2022
- Prof Dr Med Ina Maria KnerrTrustee · since 2022
- Prof Dr med Matthias Rudolf BaumgartnerTrustee · since 2025
- Prof Dr Mirjam LangeveldTrustee · since 2025
- Prof Dr Stefan KoelkerTrustee · since 2026
- Prof Philippa Beth MillsTrustee · since 2020
- Prof Tomas HonzikTrustee · since 2025
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
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Similar charities are matched by type of organisation or purpose and listed by latest income; shared trustees are formal board links. Neither is proof the organisations work together.
About
- What it does
- Education/training, The Advancement Of Health Or Saving Of Lives
- Where
- Throughout England And Wales, Algeria, Argentina, Australia and more
- Website
- www.ssiem.org (opens in a new tab)
- Linked company
- The Society for the Study of Inborn Errors of Metabolism
- Registered
- 1992
Income and spending
- YearIncomeSpending
- 2024£2.5m£2.0m
- 2023£584k£530k
- 2022£2.4m£2.0m
Earlier years
- 2021£509k£576k
- 2020£633k£714k
Income trend, 2020 to 2024.
Charitable objects
TO FOSTER THE STUDY OF INHERITED METABOLIC DISORDERS AND RELATED TOPICS.
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
14 trustees on the board
- Prof Manuel Schiff Chair since 2016
- Alice Dianin RD since 2025
- Ann Smith since 2026
- Dr Andrea Elena Dardis since 2023
- Dr Elaine Mary Murphy since 2025
- Dr Helen Michelakakis since 2016
- Dr Hugo Rocha since 2026
- Dr Stephanie Grunewald since 2022
- Prof Dr Med Ina Maria Knerr since 2022
- Prof Dr Mirjam Langeveld since 2025
- Prof Dr Stefan Koelker since 2026
- Prof Dr med Matthias Rudolf Baumgartner since 2025
- Prof Philippa Beth Mills since 2020
- Prof Tomas Honzik since 2025
Trustees past 6 years
- Prof Manuel Schiff Chair since 2016
- Dr Helen Michelakakis since 2016
First-time vs portfolio trustees
First-time (14)
- Prof Manuel Schiff Chair since 2016
- Alice Dianin RD since 2025
- Ann Smith since 2026
- Dr Andrea Elena Dardis since 2023
- Dr Elaine Mary Murphy since 2025
- Dr Helen Michelakakis since 2016
- Dr Hugo Rocha since 2026
- Dr Stephanie Grunewald since 2022
- Prof Dr Med Ina Maria Knerr since 2022
- Prof Dr Mirjam Langeveld since 2025
- Prof Dr Stefan Koelker since 2026
- Prof Dr med Matthias Rudolf Baumgartner since 2025
- Prof Philippa Beth Mills since 2020
- Prof Tomas Honzik since 2025
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.
Gaps to watch
- Narrow spread of causes across the board
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
18.3 months of spending held in free reserves · median for charities its size: 3.9 months · was 41.2 in 2020
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1010639
- Status
- Registered
- Governing document
- MEMORANDUM AND ARTICLES INCORPORATED 12/12/1990AS AMENDED BY RESOLUTIONS ON 13/9/1991, 6/9/2007, 31/8/2011 AND 03/09/2014
- Companies House
- Company number 02567711 · Active
- Contact on the register
- 07949497576 · admin@ssiem.org
- Edition
- Register edition compiled 18th October 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
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