The Society for the Study of Inborn Errors of Metabolism

Registered charity 1010639 Registered since 1992

Operates: Throughout England And Wales, Algeria, Argentina, Australia, Austria, Belarus, Belgium, Brazil, Canada, Chile, China, Colombia

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

trustees on the board

4.2y median 4y

average tenure

10y

longest tenure

trustees past 6 years

average years in governance

13 vs 0 portfolio

first-time trustees

company-linked trustees

Sector coverage

Education/training 13The Advancement Of Health Or Saving Of Lives 13

Commercial experience

Professional services 8

Gaps to watch

Narrow spread of causes across the board

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World Obesity Federation Similar size; both Health
Three Pillars Trust Similar size; both Health

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Website	www.ssiem.org
Email	admin@ssiem.org
Phone	07949497576
Address	C/O STONE KING LLP, BOUNDARY HOUSE, 91-93 CHARTERHOUSE STREET, LONDON, EC1M 6HR

Finances

£2,473,605 latest income

Year	Income	Spending
2020	£632,521	£713,641
2021	£509,193	£576,100
2022	£2,394,873	£1,965,701
2023	£584,394	£529,972
2024	£2,473,605	£2,004,507

What it does

What

Education/trainingThe Advancement Of Health Or Saving Of Lives

Who

Other Charities Or Voluntary BodiesOther Defined Groups

How

Makes Grants To IndividualsMakes Grants To OrganisationsProvides Advocacy/advice/information

Charitable objects

TO FOSTER THE STUDY OF INHERITED METABOLIC DISORDERS AND RELATED TOPICS.

Governing document: MEMORANDUM AND ARTICLES INCORPORATED 12/12/1990AS AMENDED BY RESOLUTIONS ON 13/9/1991, 6/9/2007, 31/8/2011 AND 03/09/2014

Trustees (13)

13trustees

55median age

1aged 70+

Prof Manuel Schiffage 51 Chair since 2016
Alice Dianin RD since 2025
Dr Andrea Elena Dardis since 2023
Dr Angeles Garcia - Cazorla since 2020
Dr Elaine Mary Murphyage 54 since 2025
Dr Helen Michelakakisage 73 since 2016
Dr Risto Juhani Lapattoage 62 since 2020
Dr Stephanie Grunewald since 2022
Prof Dr Med Ina Maria Knerr since 2022
Prof Dr Mirjam Langeveldage 48 since 2025
Prof Dr med Matthias Rudolf Baumgartner since 2025
Prof Philippa Beth Millsage 55 since 2020
Prof Tomas Honzikage 52 since 2025

Linked company (Companies House)

The Society for the Study of Inborn Errors of Metabolism · 02567711 · Active

PRI/LBG/NSC (Private, Limited by guarantee, no share capital, use of 'Limited' exemption) · incorporated 12/12/1990

6 governing document(s) held from Companies House.

Connected charities (0)

No charities share a trustee (from current data).

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