The Osteopetrosis Support Trust

Registered charity 1013052 Registered since 1992

Operates: Throughout England And Wales

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

trustees on the board

8y median 8.5y

average tenure

11y

longest tenure

trustees past 6 years

6.6y

average years in governance

5 vs 0 portfolio

first-time trustees

company-linked trustees

Sector coverage

Disability 5General Charitable Purposes 5The Advancement Of Health Or Saving Of Lives 5

Commercial experience

Education 1

Gaps to watch

Several long-serving trustees could step down together

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Related organisations

Papworth Surgery Patients' Link Similar size; both Disability
Rutland Provincial Grand Lodge Benevolent Fund Similar size; both Disability
The Kirschel Foundation Similar size; both Disability
Sulgrave Relief in Need Charity Similar size; both Disability
Royal AIR Forces Association Rugby Branch Similar size; both Disability
Best Mates Trust Similar size; both Disability

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Website	Www.osteopetrosis-support-trust.org.uk
Email	info@osteopetrosis-support-trust.org.uk
Phone	01285821051
Address	Blue Haze, Notch Road, Winstone, CIRENCESTER, GL7 7JU

Finances

£75 latest income

Year	Income	Spending
2021	£163	£360
2022	£175	£710
2023	£34	£729
2024	£716	£1,360
2025	£75	£382

What it does

What

General Charitable PurposesThe Advancement Of Health Or Saving Of LivesDisability

Who

Children/young PeoplePeople With DisabilitiesOther Defined Groups

How

Makes Grants To IndividualsMakes Grants To OrganisationsProvides Advocacy/advice/informationSponsors Or Undertakes Research

Charitable objects

1.THE RELIEF OF SICKNESS OF PERSONS SUFFERING FROM OSTEOPETROSIS. 2.THE RELIEF OF POVERTY AMONGST PERSONS SUFFERING FROM OSTEOPETROSIS AND THEIR FAMILIES WHO ARE IN NEED.

Governing document: TRUST DEED DATED 25TH APRIL 1992

Trustees (5)

5trustees

36median age

0aged 70+

Wendy Jayne Wilson Chair since 2015
Alison Pope
Alexander Wilsonage 36 since 2020
Michelle Edser since 2022
Sarah Sullivan since 2015

Connected charities (0)

No charities share a trustee (from current data).

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