The Governance RegisterEdition 2026 · Compiled 12th July 2026

Galactosaemia Support Group

Registered charity 1020167 Registered since 1993

Operates: Throughout England And Wales

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

9
trustees on the board
7.4y median 4y
average tenure
13y
longest tenure
2
trustees past 6 years
4.8y
average years in governance
9 vs 0 portfolio
first-time trustees
1
company-linked trustees

Sector coverage

Disability 9The Advancement Of Health Or Saving Of Lives 9

Commercial experience

Finance 1Professional services 1

Gaps to watch

  • Narrow spread of causes across the board
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Related organisations

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Websitewww.galactosaemia.org
Emailsue@galactosaemia.org
Phone 01213785143
Address757 MANCHESTER ROAD, STOCKSBRIDGE, SHEFFIELD, S36 1DQ

Finances

£40,403 latest income

YearIncomeSpending
2021£18,658£18,969
2022£20,678£20,498
2023£23,432£22,735
2024£19,629£21,893
2025£40,403£26,599

What it does

What

The Advancement Of Health Or Saving Of LivesDisability

Who

Children/young PeoplePeople With Disabilities

How

Provides Advocacy/advice/informationSponsors Or Undertakes Research

Charitable objects

TO ALLEVIATE THE SUFFERING AND PROMOTE THE RELIEF AND CARE OF PERSONS SUFFERING FROM THE METABOLIC DISEASE KNOWN AS GALACTOSAEMIA. TO ADVANCE EDUCATION CONCERNING THIS DISEASE. TO ENGAGE IN ANY CHARITABLE ACTIVITIES WHICH MAY LESSEN THE SUFFERING OF SUCH PEOPLE AND ANCILLARY THERETO, TO PROTECT AND PRESERVE THE HEALTH OF THEIR FAMILIES FRIENDS AND CARERS

Governing document: CONSTITUTION ADOPTED 24 OCTOBER 1992 AS AMENDED 14 MARCH 1993

Trustees (9)

9trustees
38median age
0aged 70+

Connected charities (0)

No charities share a trustee (from current data).

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