Registered charity · Milton Keynes
The PSP Association
The primary object for which the Association is established is the relief of persons suffering from Progressive Supranuclear Palsy, known otherwise as Steele Richardson Olswzewski Syndrome (hereinafter referred to as PSP) and Corticobasal...
- 10 trustees
- Income £2.1m (2025)
Official record Charity Commission · updated 4th October 2026 · Sources
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Who leads it
- Alison Rodger JamesTrustee · since 2021
- Dr Boyd GhoshTrustee · since 2021
- Dr Maria Elizabeth TennantTrustee · since 2024
- Fiona Ann LindopTrustee · since 2025
- Greg Alexander RichardsonTrustee · since 2024
- John RedfernTrustee · since 2025
- Laura GalyerTrustee · since 2026
- Professor Heather Angus-LeppanTrustee · since 2025
- Rowena Helen IronsideTrustee · since 2021
- Thomas IAN WhittleTrustee · since 2025
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
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About
- What it does
- The Advancement Of Health Or Saving Of Lives, Disability
- Where
- Throughout England And Wales, Scotland, Northern Ireland
- Website
- www.pspassociation.org.uk (opens in a new tab)
- Linked company
- The PSP Association
- Registered
- 1994
Income and spending
- YearIncomeSpending
- 2025£2.1m£1.7m
- 2024£2.0m£1.5m
- 2023£1.5m£1.4m
Earlier years
- 2022£1.6m£1.0m
- 2021£1.2m£909k
Income trend, 2021 to 2025.
Charitable objects
The primary object for which the Association is established is the relief of persons suffering from Progressive Supranuclear Palsy, known otherwise as Steele Richardson Olswzewski Syndrome (hereinafter referred to as PSP) and Corticobasal Degeneration/Corticobasal Syndrome (hereinafter both referred to as CBD) and the promotion of research into the causes, prevention and cure of these diseases and the dissemination of the results of the research for the benefit of the public
Grants received
13 grants · £68,100 total360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.
Top funders
- Masonic Charitable Foundation · £31,000
- Garfield Weston Foundation · £30,000 (2 grants)
- SHAREGIFT · £5,000
- Essex Community Foundation · £1,750 (7 grants)
- The Grocers' Charity · £250
Most recent
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
10 trustees on the board
- Alison Rodger James since 2021
- Dr Boyd Ghosh since 2021
- Dr Maria Elizabeth Tennant since 2024
- Fiona Ann Lindop since 2025
- Greg Alexander Richardson since 2024
- John Redfern since 2025
- Laura Galyer since 2026
- Professor Heather Angus-Leppan since 2025
- Rowena Helen Ironside since 2021
- Thomas IAN Whittle since 2025
First-time vs portfolio trustees
First-time (9)
- Alison Rodger James since 2021
- Dr Maria Elizabeth Tennant since 2024
- Fiona Ann Lindop since 2025
- Greg Alexander Richardson since 2024
- John Redfern since 2025
- Laura Galyer since 2026
- Professor Heather Angus-Leppan since 2025
- Rowena Helen Ironside since 2021
- Thomas IAN Whittle since 2025
Portfolio (1)
- Dr Boyd Ghosh since 2021
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
12.9 months of spending held in free reserves · median for charities its size: 3.9 months · was 17.6 in 2021
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1037087
- Status
- Registered
- Governing document
- MEMORANDUM AND ARTICLES OF ASSOCIATION INCORPORATED 19 APRIL 1994 AS AMENDED BY SPECIAL RESOLUTIONS DATED 15 MAY 2007 AND 11 NOVEMBER 2009. as amended on 10 Nov 2025 as amended on 10 Nov 2025
- Companies House
- Company number 02920581 · Active
- Contact on the register
- 01327322410 · info@pspassociation.org.uk
- Edition
- Register edition compiled 4th October 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
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