The Governance RegisterEdition 2026 · Compiled 12th July 2026

Wolf Hirschhorn Syndrome Trust

Registered charity 1038219 Registered since 1994

Operates: Throughout England And Wales, Ireland, Scotland

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

4
trustees on the board
1.8y median 2y
average tenure
3y
longest tenure
0
trustees past 6 years
1.8y
average years in governance
4 vs 0 portfolio
first-time trustees
0
company-linked trustees

Sector coverage

Disability 4

Gaps to watch

  • No commercial or business experience on the board
  • Narrow spread of causes across the board
  • Mostly recent joiners - limited long-term continuity
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Related organisations

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Websitewww.whs4pminus.co.uk
Emailchair@whs4pminus.co.uk
Phone07917334407
Address71 Blacon Avenue, Blacon, CHESTER, CH1 5BB

Finances

£15,706 latest income

YearIncomeSpending
2021£6,505£3,542
2022£11,685£17,511
2023£8,696£2,915
2024£17,680£26,408
2025£15,706£843

What it does

What

Disability

Who

People With Disabilities

How

Makes Grants To IndividualsMakes Grants To OrganisationsProvides Other FinanceProvides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes ResearchOther Charitable Activities

Charitable objects

THE RELIEF OF PERSONS WITH WOLF HIRSCHHORN SYNDROME 4P- (HEREINAFTER "WOLF SYNDROME") BY PROMOTING AND ASSISTING IN THE PROVISION OF THEIR CARE AND TREATMENT; (FOR FURTHER DETAILS SEE CLAUSE 4 OF TRUST DEED)

Governing document: TRUST DEED DATED 10/05/1994AS AMENDED BY DEED DATED 16/09/2012

Trustees (4)

4trustees
0aged 70+

Connected charities (0)

No charities share a trustee (from current data).

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