Registered charity · London
Keratoconus Self-Help and Support Association
- 9 trustees
- Income £12k (2025)
Official record Charity Commission · updated 4th October 2026 · Sources
Network
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Who leads it
- Batcho Kaur NotayTrustee · since 2019
- Caroline Loise CondillacTrustee · since 2019
- David GableTrustee · since 2014
- Dr Susan Patricia DanksTrustee · since 2024
- Dr Udupi Sangeetha RaoTrustee · since 2026
- Elaine Elizabeth NickolayTrustee
- John SmithTrustee
- John ThatcherTrustee · since 2017
- Peter John FieldTrustee · since 2025
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
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About
- What it does
- General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- Where
- Throughout England And Wales, Scotland
- Website
- www.keratoconus-group.org.uk (opens in a new tab)
- Registered
- 1996
Income and spending
- YearIncomeSpending
- 2025£12k£11k
- 2024£8k£10k
- 2023£9k£15k
Earlier years
- 2022£14k£17k
- 2021£11k£14k
Income trend, 2021 to 2025.
Charitable objects
THE RELIEF OF THOSE PERSONS, PRIMARILY IN THE UNITED KINGDOM, SUFFERING FROM KERATOCONUS IN PARTICULAR BUT NOT EXCLUSIVELY BY THE PROVISION OF ADVICE, SUPPORT AND ASSISTANCE TO SUCH PERSONS.
Grants received
7 grants · £38,264 total360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.
Top funders
- The National Lottery Community Fund · £38,264 (7 grants)
Most recent
- The National Lottery Community Fund
- The National Lottery Community Fund
- The National Lottery Community Fund
- The National Lottery Community Fund
- The National Lottery Community Fund
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
9 trustees on the board
- Batcho Kaur Notay since 2019
- Caroline Loise Condillac since 2019
- David Gable since 2014
- Dr Susan Patricia Danks since 2024
- Dr Udupi Sangeetha Rao since 2026
- Elaine Elizabeth Nickolay
- John Smith
- John Thatcher since 2017
- Peter John Field since 2025
Trustees past 6 years
- Batcho Kaur Notay since 2019
- Caroline Loise Condillac since 2019
- David Gable since 2014
- John Thatcher since 2017
First-time vs portfolio trustees
First-time (8)
- Caroline Loise Condillac since 2019
- David Gable since 2014
- Dr Susan Patricia Danks since 2024
- Dr Udupi Sangeetha Rao since 2026
- Elaine Elizabeth Nickolay
- John Smith
- John Thatcher since 2017
- Peter John Field since 2025
Portfolio (1)
- Batcho Kaur Notay since 2019
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1057629
- Status
- Registered
- Governing document
- CONSTITUTION ADOPTED 10TH MARCH 1994, AS AMENDED 23RD MAY 1996 AND, 25TH MARCH 2006 AND AS AMENDED BY RESOLUTION DATED 15 MARCH 2008 as amended on 18 Mar 2017
- Contact on the register
- 02089934759 · info@keratoconus-group.org.uk
- Edition
- Register edition compiled 4th October 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
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