The Governance RegisterEdition 2026 · Compiled 12th July 2026

Stickler Syndrome UK

Registered charity 1060421 Registered since 1997

Operates: Throughout England And Wales, Scotland, Northern Ireland, Ireland

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

3
trustees on the board
3y median 3y
average tenure
3y
longest tenure
0
trustees past 6 years
3.3y
average years in governance
2 vs 0 portfolio
first-time trustees
1
company-linked trustees

Sector coverage

Education/training 3General Charitable Purposes 3The Advancement Of Health Or Saving Of Lives 3

Commercial experience

Business services 1Health and social care 1

Gaps to watch

  • Small board - little cover if a trustee leaves

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Related organisations

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Websitewww.stickler.org.uk
Emailcontact@stickler.org.uk
Phone08000668273
Address30 Juniper Close, MAIDSTONE, Kent, ME16 0XP

Finances

£42,754 latest income

YearIncomeSpending
2021£5,738£7,772
2022£10,385£10,682
2023£11,882£8,701
2024£46,388£32,619
2025£42,754£57,289

What it does

What

General Charitable PurposesEducation/trainingThe Advancement Of Health Or Saving Of LivesDisability

Who

Children/young PeopleElderly/old PeoplePeople With DisabilitiesOther Charities Or Voluntary BodiesOther Defined GroupsThe General Public/mankind

How

Provides Advocacy/advice/informationOther Charitable Activities

Charitable objects

TO PROTECT AND PRESERVE HEALTH BY INFORMING THE PUBLIC OF THE DANGERS OF RETINAL DETACHMENT AND THE IMPORTANCE OF EARLY DIAGNOSIS AND TREATMENT; TO ADVANCE THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC ON THE SUBJECT OF STICKLER SYNDROME AND ITS IMPLICATIONS FOR THE FAMILY; TO RELIEVE PERSONS SUFFERING FROM STICKLER SYNDROME AND ASSOCIATED CONDITIONS.

Governing document: CONSTITUTION ADOPTED 29 NOVEMBER 1994 AS AMENDED ON 18 JANUARY 1997 as amended on 11 Oct 2023

Trustees (3)

3trustees
53median age
0aged 70+

Connected charities (1)

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