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Registered charity · London

The Dystonia Society

  • 9 trustees
  • Income £422k (2025)
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Official record Charity Commission · updated 13th September 2026 · Sources

Who leads it

Current trustees as listed by the Charity Commission, which does not publish previous trustees.

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About

What it does
The Advancement Of Health Or Saving Of Lives, Disability
Where
Throughout England And Wales, Scotland, Northern Ireland
Website
www.dystonia.org.uk (opens in a new tab)
Linked company
The Dystonia Society
Registered
1997

Income and spending

  • YearIncomeSpending
  • 2025£422k£403k
  • 2024£692k£321k
  • 2023£277k£286k
Earlier years
  • 2022£293k£262k
  • 2021£422k£310k
Charitable objects

(1) TO PROMOTE THE WELFARE OF THOSE PERSONS SUFFERING FROM THE MOVEMENT DISORDER KNOWN AS DYSTONIA OR FROM SIMILAR OR RELATED CONDITIONS, AND (2) TO ADVANCE THE EDUCATION OF THE PUBLIC ABOUT ALL ASPECTS OF THE SAID CONDITIONS.

Board analysis for researchers

Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

9 trustees on the board

3.4y median 3y
average tenure
7y
longest tenure

Trustees past 6 years

8y
average years in governance

First-time vs portfolio trustees

First-time (7)

Portfolio (2)

7
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

The Advancement Of Health Or Saving Of Lives 9Disability 8Education/training 2Arts/culture/heritage/science 1

Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.

Health and social care 7Business services 1Education 1

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Health of the organisation facts side by side - the conclusion is yours

Income v spending, filed accountsiIncome v spendingTotal gross income and expenditure from filed annual returns, Charity Commission, last 5 years.
2021
2022
2023
2024
2025
incomespending£422k latest income · income exceeded spending in 2024 and 2025

Sources

Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.

Record details
Registered charity number
1062595
Status
Registered
Governing document
MEMORANDUM AND ARTICLES OF ASSOCIATION INCORPORATED 30 JANUARY 1997 as amended on 05 Oct 2019
Companies House
Company number 03309777 · Active
Contact on the register
02077933656 · info@dystonia.org.uk
Edition
Register edition compiled 13th September 2026
Labels
Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.

Contains public sector information licensed under the Open Government Licence v3.0. Report an issue · How we handle data