The Dystonia Society

Registered charity 1062595 Registered since 1997

Operates: Throughout England And Wales, Scotland, Northern Ireland

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

trustees on the board

3.6y median 3y

average tenure

longest tenure

trustees past 6 years

9.2y

average years in governance

8 vs 1 portfolio

first-time trustees

company-linked trustees

Sector coverage

Disability 10The Advancement Of Health Or Saving Of Lives 9Education/training 2Arts/culture/heritage/science 1

Commercial experience

Health and social care 8Arts and leisure 2Business services 1

Boards that share trustees

Dorset Blind Association 1 shared trustee
The Historical Dance Society 1 shared trustee
Bournemouth Music Competitions Festival 1 shared trustee
North West Early Music Forum 1 shared trustee

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Related organisations

Dorset Blind Association 1 shared trustee
The Historical Dance Society 1 shared trustee
Bournemouth Music Competitions Festival 1 shared trustee
North West Early Music Forum 1 shared trustee
BE Free Young Carers LTD Similar size; both Disability
East Sussex Brighton & Hove Crossroads - Caring for Carers Limited Similar size; both Disability

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Website	www.dystonia.org.uk
Email	info@dystonia.org.uk
Phone	02077933656
Address	3rd. FLOOR, 89 ALBERT EMBANKMENT, LONDON, SE1 7TP

Finances

£422,337 latest income

Year	Income	Spending
2021	£421,975	£310,100
2022	£293,052	£262,278
2023	£277,412	£285,775
2024	£692,353	£321,276
2025	£422,337	£402,567

What it does

What

The Advancement Of Health Or Saving Of LivesDisability

Who

People With Disabilities

How

Makes Grants To IndividualsMakes Grants To OrganisationsProvides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes Research

Charitable objects

(1) TO PROMOTE THE WELFARE OF THOSE PERSONS SUFFERING FROM THE MOVEMENT DISORDER KNOWN AS DYSTONIA OR FROM SIMILAR OR RELATED CONDITIONS, AND (2) TO ADVANCE THE EDUCATION OF THE PUBLIC ABOUT ALL ASPECTS OF THE SAID CONDITIONS.

Governing document: MEMORANDUM AND ARTICLES OF ASSOCIATION INCORPORATED 30 JANUARY 1997 as amended on 05 Oct 2019

Trustees (10)

10trustees

56median age

2aged 70+

Christopher Paul Southonage 66 since 2026
Dr Amit Batlaage 50 since 2023
Emily Birdenage 36 since 2023
Fermanda Perez since 2023
Ntonella Macerolla since 2023
Penny Ritchie-Calderage 71 since 2019
Qamar Khan MBE since 2024
Robert Harold William Sempleage 61 since 2021
Sophie Eleanor Normanage 32 since 2023
Timothy John Gannicliffeage 71 since 2019

Linked company (Companies House)

The Dystonia Society · 03309777 · Active

PRI/LBG/NSC (Private, Limited by guarantee, no share capital, use of 'Limited' exemption) · incorporated 30/01/1997

5 governing document(s) held from Companies House.

Connected charities (4)

North West Early Music Forum 1 shared trustee
Dorset Blind Association 1 shared trustee
The Historical Dance Society 1 shared trustee
Bournemouth Music Competitions Festival 1 shared trustee

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