The Acoustic Neuroma and Meningioma Network ( Amnet )

TO PROVIDE A SELF-HELP MEMBERSHIP NETWORK, WITH LINKS TO ADDENBROOKE’S HOSPITAL, CAMBRIDGE UK, FOR:(A)PATIENTS, PRIMARILY THOSE DIAGNOSED WITH SKULL BASED TUMOURS INCLUDINGACOUSTIC NEUROMA OR MENINGIOMA LIVING IN EAST ANGLIA(B)THEIR PARTNERS, FAMILIES, CARERS AND FRIENDSTHE NETWORK TO GIVE SUPPORT AS A FORUM FOR INFORMATION AND A MUTUAL EXCHANGE OF PATIENTS' EXPERIENCE IN THE WIDE RANGE OF SYMPTOMS AND POST-TREATMENT EFFECTS OF THIS TYPE TUMOUR, TO ACCUMULATE AND PROVIDE INFORMATIVE LITERATURE, ORGANISE TALKS BY SPECIALISTS, PARTICIPATE IN STATISTICAL AND OTHER RESEARCH AND OTHER FORMS OF ACTIVITY - ALL DIRECTED TO THE RELIEF OF PAIN, DISCOMFORT AND AN IMPROVING QUALITY OF LIFE FOR THE PATIENT, DIAGNOSED WITH THESE COMPARATIVELY RARE HEAD TUMOURS. WHERE APPROPRIATE, THE NETWORK TO PROVIDE INFORMATION TO MEDICAL PROFESSIONALS AND CLINICAL STAFF AT ADDENBROOKE’S HOSPITAL.TO ASSIST IN THE ALLEVIATION OF ANXIETY AND TO PROVIDE INFORMATION TO PATIENTS ON 'WATCH, WAIT AND RESCAN' PROGRAMME, OR CONSIDERING OR RECEIVING TREATMENT FOR ACOUSTIC NEUROMA OR MENINGIOMA TUMOUR.