Registered charity · East Sussex
Proteus Syndrome Foundation UK
Proteus Syndrome Foundation UK is a registered charity (number 1077796) based in East Sussex, governed by 3 trustees. Latest income £7k (2025). Source: Charity Commission register, updated 4th October 2026.
- 3 trustees
- Income £7k (2025)
Official record Charity Commission · updated 4th October 2026 · Sources
Network
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Who leads it
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
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Similar charities are matched by type of organisation or purpose and listed by latest income; shared trustees are formal board links. Neither is proof the organisations work together.
About
- What it does
- General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- Where
- Throughout England And Wales
- Website
- www.proteus-syndrome.org (opens in a new tab)
- Registered
- 1999
Income and spending
- YearIncomeSpending
- 2025£7k£15k
- 2024£9k£570
- 2023£3k£479
Earlier years
- 2022£3k£2k
- 2021£3k£3k
Income trend, 2021 to 2025.
Charitable objects
1) THE RELIEF OF PERSONS WITH PROTEUS SYNDROME AND THE RELIEF OF THEIR FAMILIES AND CARERS.2) THE ADVANCEMENT OF THE EDUCATION OF THE PUBLIC IN THE SUBJECT OF PROTEUS SYNDROME.3) THE PROMOTION OF RESEARCH INTO THE CAUSE AND TREATMENT OF PROTEUS SYNDROME ENSURING THAT USEFUL RESULTS ARE PUBLISHED.
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
3 trustees on the board
- Amanda Summers since 2012
- Debra Lynn Milton
- Tracey Whitewood-Neal since 1999
Trustees past 6 years
- Amanda Summers since 2012
- Tracey Whitewood-Neal since 1999
First-time vs portfolio trustees
First-time (3)
- Amanda Summers since 2012
- Debra Lynn Milton
- Tracey Whitewood-Neal since 1999
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.
Gaps to watch
- Several long-serving trustees could step down together
- Small board - little cover if a trustee leaves
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1077796
- Status
- Registered
- Governing document
- DECLARATION OF TRUST DATED 7 SEPTEMBER 1999
- Contact on the register
- 07740 085919 · traceywhitewoodneal@yahoo.co.uk
- Edition
- Register edition compiled 4th October 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
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