Proteus Syndrome Foundation UK

Registered charity 1077796 Registered since 1999

Operates: Throughout England And Wales

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

trustees on the board

20.5y median 20.5y

average tenure

27y

longest tenure

trustees past 6 years

13.6y

average years in governance

3 vs 0 portfolio

first-time trustees

company-linked trustees

Sector coverage

Education/training 3General Charitable Purposes 3The Advancement Of Health Or Saving Of Lives 3

Commercial experience

Tech and media 1

Gaps to watch

Several long-serving trustees could step down together
Small board - little cover if a trustee leaves

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Related organisations

Baytree School Fund Similar size; both Disability
Archdiocese of Birmingham Catholic Handicapped Fellowship Oxford Similar size; both Disability
Conwy County Society and Gateway Club (Llandudno) for People With Learning Difficulties Similar size; both Disability
Cornilo Group Riding for the Disabled Association Similar size; both Disability
The Will to Work Workshop Limited Similar size; both Disability
South Bucks Down's Syndrome Group Similar size; both Disability

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Website	www.proteus-syndrome.org
Email	traceywhitewoodneal@yahoo.co.uk
Phone	07740 085919
Address	2 watermill close, Bexhill, East Sussex, TN39 5EJ

Finances

£7,448 latest income

Year	Income	Spending
2021	£3,016	£2,540
2022	£3,317	£2,062
2023	£2,782	£479
2024	£9,229	£570
2025	£7,448	£15,496

What it does

What

General Charitable PurposesEducation/trainingThe Advancement Of Health Or Saving Of LivesDisability

Who

Children/young PeoplePeople With Disabilities

How

Makes Grants To IndividualsProvides Advocacy/advice/informationSponsors Or Undertakes Research

Charitable objects

1) THE RELIEF OF PERSONS WITH PROTEUS SYNDROME AND THE RELIEF OF THEIR FAMILIES AND CARERS.2) THE ADVANCEMENT OF THE EDUCATION OF THE PUBLIC IN THE SUBJECT OF PROTEUS SYNDROME.3) THE PROMOTION OF RESEARCH INTO THE CAUSE AND TREATMENT OF PROTEUS SYNDROME ENSURING THAT USEFUL RESULTS ARE PUBLISHED.

Governing document: DECLARATION OF TRUST DATED 7 SEPTEMBER 1999

Trustees (3)

3trustees

60median age

0aged 70+

Connected charities (0)

No charities share a trustee (from current data).

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