Registered charity · London
Cystic Fibrosis Trust
- 12 trustees
- Income £12m (2025)
Official record Charity Commission · updated 4th October 2026 · Sources
Network
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Who leads it
- Richard Hunt CBEChair · since 2018
- Anthony HunterTrustee · since 2025
- Daniel BeeverTrustee · since 2025
- Dr Maya DesaiTrustee · since 2024
- Jane WainwrightTrustee · since 2023
- Joanna BarrettTrustee · since 2019
- Martin WalshawTrustee · since 2021
- Michelle ShoreTrustee · since 2019
- Neil PriscottTrustee · since 2023
- Sean CollinsTrustee · since 2017
- Sonya TrivedyTrustee · since 2021
- Sophie PierceTrustee · since 2021
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
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About
- What it does
- The Advancement Of Health Or Saving Of Lives, Disability
- Where
- Throughout England And Wales, Scotland, Northern Ireland
- Website
- www.cysticfibrosis.org.uk (opens in a new tab)
- Linked company
- Cystic Fibrosis Trust
- Registered
- 2000
Income and spending
- YearIncomeSpending
- 2025£12m£14m
- 2024£15m£15m
- 2023£15m£13m
Earlier years
- 2022£16m£16m
- 2021£14m£14m
Income trend, 2021 to 2025.
Charitable objects
1) TO PROMOTE RESEARCH INTO THE CAUSES OF AND A CURE FOR CYSTIC FIBROSIS AND THE DISSEMINATION OF THE USEFUL RESULTS THEREOF FOR THE PUBLIC BENEFIT2) THE CARE, TREATMENT, EDUCATION AND ADVANCEMENT IN SUCH WAYS AS ARE CHARITABLE OF PERSONS SUFFERING FROM CYSTIC FIBROSIS IN ANY FORM AND3) THE EDUCATION OF THE GENERAL PUBLIC ABOUT THE CAUSES AND EFFECTS OF CYSTIC FIBROSIS
Grants received
28 grants · £2,184,240 total360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.
Top funders
- The National Lottery Community Fund · £864,486 (4 grants)
- Joseph Levy Foundation · £498,447 (9 grants)
- Garfield Weston Foundation · £400,000 (2 grants)
- Sport England · £169,103
- BBC Children in Need · £145,730 (2 grants)
Most recent
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
12 trustees on the board
- Richard Hunt CBE Chair since 2018
- Anthony Hunter since 2025
- Daniel Beever since 2025
- Dr Maya Desai since 2024
- Jane Wainwright since 2023
- Joanna Barrett since 2019
- Martin Walshaw since 2021
- Michelle Shore since 2019
- Neil Priscott since 2023
- Sean Collins since 2017
- Sonya Trivedy since 2021
- Sophie Pierce since 2021
Trustees past 6 years
- Richard Hunt CBE Chair since 2018
- Joanna Barrett since 2019
- Michelle Shore since 2019
- Sean Collins since 2017
First-time vs portfolio trustees
First-time (11)
- Anthony Hunter since 2025
- Daniel Beever since 2025
- Dr Maya Desai since 2024
- Jane Wainwright since 2023
- Joanna Barrett since 2019
- Martin Walshaw since 2021
- Michelle Shore since 2019
- Neil Priscott since 2023
- Sean Collins since 2017
- Sonya Trivedy since 2021
- Sophie Pierce since 2021
Portfolio (1)
- Richard Hunt CBE Chair since 2018
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
7.0 months of spending held in free reserves · median for charities its size: 3.7 months
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1079049
- Status
- Registered
- Governing document
- MEMORANDUM AND ARTICLES OF ASSOCIATION INCORPORATED ON 19TH NOVEMBER 1999 AND AS AMENDED BY SPECIAL RESOLUTIONS PASSED ON 18TH JANUARY 2000 AND 8TH DECEMBER 2009AS AMENDED BY SPECIAL RESOLUTION REGISTERED AT COMPANIES HOUSE ON 16 NOV 2017 as amended on 24 Jul 2023
- Companies House
- Company number 03880213 · Active
- Contact on the register
- 020 3795 1555 · enquiries@cysticfibrosis.org.uk
- Edition
- Register edition compiled 4th October 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
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