Skip to content
Governance Register
Sign inFind yourself
Find yourselfSign in
Search How it works For organisations For professionals

Edition

United Kingdom (current)IrelandUnited StatesNew ZealandCanadaAustraliaScotlandNorthern Ireland

Registered charity · Leeds

Diamond Blackfan Anaemia Support Group UK

  • 5 trustees
  • Income £71k (2024)
How am I connected?
More
View network map Report an issue

Official record Charity Commission · updated 27th September 2026 · Sources

Network

The large node is Diamond Blackfan Anaemia Support Group UK. Red nodes are organisations, white nodes are people. Sign in free to explore further.

Who leads it

Current trustees as listed by the Charity Commission, which does not publish previous trustees.

Do you help lead this organisation? Set up its network · How it works

About

What it does
The Advancement Of Health Or Saving Of Lives, Disability
Where
Throughout England And Wales, Northern Ireland
Website
www.diamondblackfan.org.uk (opens in a new tab)
Registered
2000

Income and spending

  • YearIncomeSpending
  • 2024£71k£87k
  • 2023£79k£71k
  • 2022£64k£57k
Earlier years
  • 2021£71k£31k
  • 2020£79k£77k

Income trend, 2020 to 2024.

Charitable objects

A) FOR THE RELIEF OF SICKNESS OF THOSE SUFFERING EITHER DIRECTLY OR INDIRECTLY FROM DIAMOND BLACKFAN ANAEMIA (DBA), AND ASSOCIATED CONDITIONS.B) TO EDUCATE THE GENERAL PUBLIC THROUGH PROMOTION OF RESEARCH AND THE DISSEMINATION OF KNOWLEDGE ABOUT DIAMOND BLACKFAN ANAEMIA (DBA).

Board analysis

Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

5 trustees on the board

9.2y median 11y
average tenure
12y
longest tenure

Trustees past 6 years

7.8y
average years in governance

First-time vs portfolio trustees

First-time (5)

0
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

Disability 5The Advancement Of Health Or Saving Of Lives 5

Gaps to watch

  • No commercial or business experience on the board
  • Several long-serving trustees could step down together
  • Narrow spread of causes across the board

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Health of the organisation facts side by side - the conclusion is yours

Income v spending, filed accountsiIncome v spendingTotal gross income and expenditure from filed annual returns, Charity Commission, last 5 years.
2020
2021
2022
2023
2024
incomespending£71k latest income

Sources

Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.

Record details
Registered charity number
1083179
Status
Registered
Governing document
CONSTITUTION ADOPTED 22 JULY 2000 AS AMENDED 16 SEPTEMBER 2000 as amended on 09 Jul 2019
Contact on the register
07797841489 · info@diamondblackfan.org.uk
Edition
Register edition compiled 27th September 2026
Labels
Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.

Contains public sector information licensed under the Open Government Licence v3.0. Report an issue · How we handle data