Diamond Blackfan Anaemia Support Group UK

Registered charity 1083179 Registered since 2000

Operates: Throughout England And Wales, Northern Ireland

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

trustees on the board

9.2y median 11y

average tenure

12y

longest tenure

trustees past 6 years

7.6y

average years in governance

5 vs 0 portfolio

first-time trustees

company-linked trustees

Sector coverage

Disability 5The Advancement Of Health Or Saving Of Lives 5

Gaps to watch

No commercial or business experience on the board
Several long-serving trustees could step down together
Narrow spread of causes across the board

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Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Website	http://www.diamondblackfan.org.uk
Email	info@diamondblackfan.org.uk
Phone	07797841489
Address	31 Roman Place, Leeds, LS8 2DS

Finances

£70,635 latest income

Year	Income	Spending
2020	£78,976	£76,735
2021	£71,326	£30,598
2022	£64,409	£57,200
2023	£78,663	£71,268
2024	£70,635	£86,584

What it does

What

The Advancement Of Health Or Saving Of LivesDisability

Who

People With Disabilities

How

Provides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes Research

Charitable objects

A) FOR THE RELIEF OF SICKNESS OF THOSE SUFFERING EITHER DIRECTLY OR INDIRECTLY FROM DIAMOND BLACKFAN ANAEMIA (DBA), AND ASSOCIATED CONDITIONS.B) TO EDUCATE THE GENERAL PUBLIC THROUGH PROMOTION OF RESEARCH AND THE DISSEMINATION OF KNOWLEDGE ABOUT DIAMOND BLACKFAN ANAEMIA (DBA).

Governing document: CONSTITUTION ADOPTED 22 JULY 2000 AS AMENDED 16 SEPTEMBER 2000 as amended on 09 Jul 2019

Trustees (5)

5trustees

0aged 70+

Leisa Batkin Chair since 2014
Eleanor May Hudson since 2023
Jayson Whitaker
Joanne Hubbard since 2016
Peter Redmond since 2014

Connected charities (0)

No charities share a trustee (from current data).

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