The Jessie MAY Trust

The relief of children and young people living with physical conditions which are life-threatening or life-limiting and/or where the child/young person is not considered likely to live into adulthood, and their families and carers, in such ways as the Trustees think fit, in particular (but not exclusively) by: (a) the provision of respite or palliative care in the community for affected children, young people, and their families and carers; (b) the advancement of the education of health professionals, statutory authorities, GP practices and others in the condition of children and young persons with terminal illness, in particular through the representation of such persons and their families to local statutory authorities and professional groups ; (c) the provision of bereavement support to families who have lost a child or young person, and; (d) the provision of advocacy support for the child, young person and their families and carers.