The Governance RegisterEdition 2026 · Compiled 30th August 2026

The British Porphyria Association

Registered charity 1089609 Registered since 2001

Operates: Throughout England And Wales, Scotland, Northern Ireland

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

7 trustees on the board

9.3y median 3y
average tenure
25y
longest tenure

Trustees past 6 years

9.2y
average years in governance

First-time vs portfolio trustees

First-time (6)

Portfolio (1)

2
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

Education/training 7The Advancement Of Health Or Saving Of Lives 7Religious Activities 1

Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.

Education 2Retail and trade 1

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

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Health of the organisation facts side by side - the conclusion is yours

Income v spending, filed accountsiIncome v spendingTotal gross income and expenditure from filed annual returns, Charity Commission, last 5 years.
2021
2022
2023
2024
2025
incomespending£86k latest income

Related organisations iRelated organisationsTwo groups, both deterministic from public records. Related organisations share two or more trustees with this board - a real structural link, such as a subsidiary or sister charity. Connected through a shared trustee share exactly one person - a genuine connection, but not the same group. A board with no shared trustee at all may still appear here when it is active in the same charitable field.

Connected through a shared trustee

Also active in the same field

Deterministic, from public records.

Contact

Websitewww.porphyria.org.uk
Emailhelpline@porphyria.org.uk
Phone0300 30 200 30
Address4 Festival Villas, Woodland, BISHOP AUCKLAND, County Durham, DL13 5RG

Finances

£86,063 latest income

YearIncomeSpending
2021£25,650£22,597
2022£23,062£23,111
2023£43,549£48,132
2024£38,654£44,162
2025£86,063£52,609

What it does

What

Education/trainingThe Advancement Of Health Or Saving Of Lives

Who

Other Defined Groups

How

Makes Grants To IndividualsProvides Advocacy/advice/informationSponsors Or Undertakes ResearchActs As An Umbrella Or Resource Body

Charitable objects

THE RELIEF OF SICKNESS AND THE PROTECTION AND PRESERVATION OF THE HEALTH OF PERSONS AFFECTED BY PORPHYRIA AND ANY RELATED CONDITION AND THEIR FAMILIES AND CARERS IN PARTICULAR BY BUT NOT RESTRICTED TO:(A)THE ADVANCEMENT OF THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC INTO PORPHYRIA AND ITS IMPLICATIONS FOR THE FAMILY;(B)THE PROMOTION OF RESEARCH INTO THE CAUSES, EFFECTS, TREATMENT AND MANAGEMENT OF PORPHYRIA AND TO DISSEMINATE THE USEFUL RESULTS THEREOF.

Governing document: CONSTITUTION ADOPTED ON 24 JUNE, 2001. as amended on 30 Sept 2024

Trustees (7)

7trustees
72median age
1aged 70+

Connected charities (1)

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