The British Porphyria Association
Registered charity 1089609 Registered since 2001
Operates: Throughout England And Wales, Scotland, Northern Ireland
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Contact
| Website | www.porphyria.org.uk |
| helpline@porphyria.org.uk | |
| Phone | 0300 30 200 30 |
| Address | 4 Festival Villas, Woodland, BISHOP AUCKLAND, County Durham, DL13 5RG |
Finances
£86,063 latest income
| Year | Income | Spending |
|---|---|---|
| 2021 | £25,650 | £22,597 |
| 2022 | £23,062 | £23,111 |
| 2023 | £43,549 | £48,132 |
| 2024 | £38,654 | £44,162 |
| 2025 | £86,063 | £52,609 |
What it does
What
Education/trainingThe Advancement Of Health Or Saving Of LivesWho
Other Defined GroupsHow
Makes Grants To IndividualsProvides Advocacy/advice/informationSponsors Or Undertakes ResearchActs As An Umbrella Or Resource BodyCharitable objects
THE RELIEF OF SICKNESS AND THE PROTECTION AND PRESERVATION OF THE HEALTH OF PERSONS AFFECTED BY PORPHYRIA AND ANY RELATED CONDITION AND THEIR FAMILIES AND CARERS IN PARTICULAR BY BUT NOT RESTRICTED TO:(A)THE ADVANCEMENT OF THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC INTO PORPHYRIA AND ITS IMPLICATIONS FOR THE FAMILY;(B)THE PROMOTION OF RESEARCH INTO THE CAUSES, EFFECTS, TREATMENT AND MANAGEMENT OF PORPHYRIA AND TO DISSEMINATE THE USEFUL RESULTS THEREOF.
Governing document: CONSTITUTION ADOPTED ON 24 JUNE, 2001. as amended on 30 Sept 2024
Trustees (7)
- Dr Victoria Anne Mcguire Chair since 2024
- Anne Newtonage 74 since 2001
- Claire Jarvis since 2024
- John Walter Chamberlayne MA since 2024
- Karen Elizabeth Harrisage 69 since 2001
- Natassja Chadwick since 2020
- Victoria Harrold since 2023
Connected charities (1)
- Durham City Methodists 1 shared trustee
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