Registered charity · County Durham
The British Porphyria Association
- 7 trustees
- Income £179k (2026)
Official record Charity Commission · updated 4th October 2026 · Sources
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Who leads it
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
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About
- What it does
- Education/training, The Advancement Of Health Or Saving Of Lives
- Where
- Throughout England And Wales, Scotland, Northern Ireland
- Website
- www.porphyria.org.uk (opens in a new tab)
- Registered
- 2001
Income and spending
- YearIncomeSpending
- 2026£179k£67k
- 2025£86k£53k
- 2024£39k£44k
Earlier years
- 2023£44k£48k
- 2022£23k£23k
Income trend, 2022 to 2026.
Charitable objects
THE RELIEF OF SICKNESS AND THE PROTECTION AND PRESERVATION OF THE HEALTH OF PERSONS AFFECTED BY PORPHYRIA AND ANY RELATED CONDITION AND THEIR FAMILIES AND CARERS IN PARTICULAR BY BUT NOT RESTRICTED TO:(A)THE ADVANCEMENT OF THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC INTO PORPHYRIA AND ITS IMPLICATIONS FOR THE FAMILY;(B)THE PROMOTION OF RESEARCH INTO THE CAUSES, EFFECTS, TREATMENT AND MANAGEMENT OF PORPHYRIA AND TO DISSEMINATE THE USEFUL RESULTS THEREOF.
Grants received
2 grants · £27,060 total360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.
Top funders
- The National Lottery Community Fund · £27,060 (2 grants)
Most recent
- The National Lottery Community Fund
- The National Lottery Community Fund
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
7 trustees on the board
- Dr Victoria Anne Mcguire Chair since 2024
- Anne Newton since 2001
- Claire Jarvis since 2024
- John Walter Chamberlayne MA since 2024
- Karen Elizabeth Harris since 2001
- Natassja Chadwick since 2020
- Victoria Harrold since 2023
Trustees past 6 years
- Anne Newton since 2001
- Karen Elizabeth Harris since 2001
- Natassja Chadwick since 2020
First-time vs portfolio trustees
First-time (6)
- Dr Victoria Anne Mcguire Chair since 2024
- Anne Newton since 2001
- Claire Jarvis since 2024
- Karen Elizabeth Harris since 2001
- Natassja Chadwick since 2020
- Victoria Harrold since 2023
Portfolio (1)
- John Walter Chamberlayne MA since 2024
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1089609
- Status
- Registered
- Governing document
- CONSTITUTION ADOPTED ON 24 JUNE, 2001. as amended on 30 Sept 2024
- Contact on the register
- 0300 30 200 30 · helpline@porphyria.org.uk
- Edition
- Register edition compiled 4th October 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
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