Registered charity · Chester
The CJD Support Network
- 9 trustees
- Income £261k (2025)
Official record Charity Commission · updated 4th October 2026 · Sources
Network
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Who leads it
- Richard Sydney Godfrey KnightChair · since 2017
- Andrew Paul TakoushisTrustee · since 2025
- Bethan Rose MarshTrustee · since 2025
- Daniel Michael SchonbergTrustee · since 2025
- Dr Diane Louise RitchieTrustee · since 2025
- Elizabeth Amy HillTrustee · since 2025
- Katherine DahillTrustee · since 2025
- Professor Simon Harvey MeadTrustee · since 2025
- Sean Kevan HorsteadTrustee · since 2025
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
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About
- What it does
- The Advancement Of Health Or Saving Of Lives
- Where
- Throughout England And Wales
- Website
- www.cjdsupport.co.uk (opens in a new tab)
- Registered
- 2003
Income and spending
- YearIncomeSpending
- 2025£261k£39k
- 2024£101k£84k
- 2023£61k£35k
Earlier years
- 2022£35k£44k
- 2021£57k£18k
Income trend, 2021 to 2025.
Charitable objects
1. TO RELIEVE PERSONS AND THEIR CARERS AFFECTED BY CREUTZFELDT JAKOB DISEASE AND ALL HUMAN PRION DISEASES (CJD* FOR THE REST OF THE CONSTITUTION) BY THE PROVISION OF INFORMATION, ADVICE AND SUPPORT.2. TO ADVANCE SCIENTIFIC AND MEDICAL EDUCATION AND RESEARCH IN TOPICS RELATED TO CREUTZFELDT JAKOB DISEASE AND ALL PRION DISEASE (CJD*) INCLUDING, BUT NOT EXCLUSIVELY BY THE PROVISION OF CONFERENCES, TRAINING, WORKSHOPS AND TALKS.
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
9 trustees on the board
- Richard Sydney Godfrey Knight Chair since 2017
- Andrew Paul Takoushis since 2025
- Bethan Rose Marsh since 2025
- Daniel Michael Schonberg since 2025
- Dr Diane Louise Ritchie since 2025
- Elizabeth Amy Hill since 2025
- Katherine Dahill since 2025
- Professor Simon Harvey Mead since 2025
- Sean Kevan Horstead since 2025
Trustees past 6 years
- Richard Sydney Godfrey Knight Chair since 2017
First-time vs portfolio trustees
First-time (9)
- Richard Sydney Godfrey Knight Chair since 2017
- Andrew Paul Takoushis since 2025
- Bethan Rose Marsh since 2025
- Daniel Michael Schonberg since 2025
- Dr Diane Louise Ritchie since 2025
- Elizabeth Amy Hill since 2025
- Katherine Dahill since 2025
- Professor Simon Harvey Mead since 2025
- Sean Kevan Horstead since 2025
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Gaps to watch
- No commercial or business experience on the board
- Narrow spread of causes across the board
- Mostly recent joiners - limited long-term continuity
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1097173
- Status
- Registered
- Governing document
- CONSTITUTION ADOPTED 15 JANUARY 2003 AS AMENDED 17 MARCH 2003 as amended on 03 Nov 2012 as amended on 24 Nov 2025
- Contact on the register
- 08007747317 · admin@cjdsupport.co.uk
- Edition
- Register edition compiled 4th October 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
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