The CJD Support Network

Registered charity 1097173 Registered since 2003

Operates: Throughout England And Wales

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

trustees on the board

1.9y median 1y

average tenure

longest tenure

trustees past 6 years

1.5y

average years in governance

9 vs 0 portfolio

first-time trustees

company-linked trustees

Sector coverage

The Advancement Of Health Or Saving Of Lives 9

Gaps to watch

No commercial or business experience on the board
Narrow spread of causes across the board
Mostly recent joiners - limited long-term continuity

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Related organisations

British Friends of Rambam Medical Centre Similar size; both Health
Asthma Relief Similar size; both Health
Sickle Cell and Thalassaemia Support Project (Wolverhampton) Similar size; both Health
Yorkshire's Brain Tumour Charity Similar size; both Health
Families in Grief (F.I.G.) Similar size; both Health
Dispensaire Francais-Societe Francaise DE Bienfaisance French Clinic and French Benevolent Society Similar size; both Health

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Website	www.cjdsupport.co.uk
Email	admin@cjdsupport.co.uk
Phone	08007747317
Address	CJD Support Network Uk, PO Box 3936, CHESTER, CH1 9NG

Finances

£260,541 latest income

Year	Income	Spending
2021	£57,230	£17,570
2022	£35,269	£44,070
2023	£61,299	£34,990
2024	£101,052	£83,728
2025	£260,541	£38,640

What it does

What

The Advancement Of Health Or Saving Of Lives

Who

Children/young PeopleElderly/old PeoplePeople With Disabilities

How

Makes Grants To IndividualsProvides ServicesProvides Advocacy/advice/information

Charitable objects

1. TO RELIEVE PERSONS AND THEIR CARERS AFFECTED BY CREUTZFELDT JAKOB DISEASE AND ALL HUMAN PRION DISEASES (CJD* FOR THE REST OF THE CONSTITUTION) BY THE PROVISION OF INFORMATION, ADVICE AND SUPPORT.2. TO ADVANCE SCIENTIFIC AND MEDICAL EDUCATION AND RESEARCH IN TOPICS RELATED TO CREUTZFELDT JAKOB DISEASE AND ALL PRION DISEASE (CJD*) INCLUDING, BUT NOT EXCLUSIVELY BY THE PROVISION OF CONFERENCES, TRAINING, WORKSHOPS AND TALKS.

Governing document: CONSTITUTION ADOPTED 15 JANUARY 2003 AS AMENDED 17 MARCH 2003 as amended on 03 Nov 2012 as amended on 24 Nov 2025

Trustees (9)

9trustees

0aged 70+

Richard Sydney Godfrey Knight Chair since 2017
Andrew Paul Takoushis since 2025
Bethan Rose Marsh since 2025
Daniel Michael Schonberg since 2025
Dr Diane Louise Ritchie since 2025
Elizabeth Amy Hill since 2025
Katherine Dahill since 2025
Professor Simon Harvey Mead since 2025
Sean Kevan Horstead since 2025

Connected charities (0)

No charities share a trustee (from current data).

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