The Governance RegisterEdition 2026 · Compiled 30th August 2026

The CJD Support Network

Registered charity 1097173 Registered since 2003

Operates: Throughout England And Wales

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

1.9y median 1y
average tenure
9y
longest tenure

Trustees past 6 years

1.7y
average years in governance

First-time vs portfolio trustees

First-time (9)

0
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

The Advancement Of Health Or Saving Of Lives 9

Gaps to watch

  • No commercial or business experience on the board
  • Narrow spread of causes across the board
  • Mostly recent joiners - limited long-term continuity

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Health of the organisation facts side by side - the conclusion is yours

Income v spending, filed accountsiIncome v spendingTotal gross income and expenditure from filed annual returns, Charity Commission, last 5 years.
2021
2022
2023
2024
2025
incomespending£261k latest income · income exceeded spending in 2024 and 2025

Related organisations iRelated organisationsTwo groups, both deterministic from public records. Related organisations share two or more trustees with this board - a real structural link, such as a subsidiary or sister charity. Connected through a shared trustee share exactly one person - a genuine connection, but not the same group. A board with no shared trustee at all may still appear here when it is active in the same charitable field.

Also active in the same field

Deterministic, from public records.

Contact

Websitewww.cjdsupport.co.uk
Emailadmin@cjdsupport.co.uk
Phone08007747317
AddressCJD Support Network Uk, PO Box 3936, CHESTER, CH1 9NG

Finances

£260,541 latest income

YearIncomeSpending
2021£57,230£17,570
2022£35,269£44,070
2023£61,299£34,990
2024£101,052£83,728
2025£260,541£38,640

What it does

What

The Advancement Of Health Or Saving Of Lives

Who

Children/young PeopleElderly/old PeoplePeople With Disabilities

How

Makes Grants To IndividualsProvides ServicesProvides Advocacy/advice/information

Charitable objects

1. TO RELIEVE PERSONS AND THEIR CARERS AFFECTED BY CREUTZFELDT JAKOB DISEASE AND ALL HUMAN PRION DISEASES (CJD* FOR THE REST OF THE CONSTITUTION) BY THE PROVISION OF INFORMATION, ADVICE AND SUPPORT.2. TO ADVANCE SCIENTIFIC AND MEDICAL EDUCATION AND RESEARCH IN TOPICS RELATED TO CREUTZFELDT JAKOB DISEASE AND ALL PRION DISEASE (CJD*) INCLUDING, BUT NOT EXCLUSIVELY BY THE PROVISION OF CONFERENCES, TRAINING, WORKSHOPS AND TALKS.

Governing document: CONSTITUTION ADOPTED 15 JANUARY 2003 AS AMENDED 17 MARCH 2003 as amended on 03 Nov 2012 as amended on 24 Nov 2025

Trustees (9)

9trustees
0aged 70+

Connected charities (0)

No charities share a trustee (from current data).

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