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Registered charity · Cambridge

The Alkaptonuria Society LTD

  • 8 trustees
  • Income £368k (2025)
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Official record Charity Commission · updated 27th September 2026 · Sources

Network

The large node is The Alkaptonuria Society LTD. Red nodes are organisations, white nodes are people. Sign in free to explore further.

Who leads it

Current trustees as listed by the Charity Commission, which does not publish previous trustees.

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About

What it does
Education/training, The Advancement Of Health Or Saving Of Lives, Disability
Where
Throughout England And Wales
Website
www.akusociety.org (opens in a new tab)
Linked company
The Alkaptonuria Society LTD
Registered
2003

Income and spending

  • YearIncomeSpending
  • 2025£368k£295k
  • 2024£319k£307k
  • 2023£381k£293k
Earlier years
  • 2022£587k£300k
  • 2021£335k£273k

Income trend, 2021 to 2025.

Charitable objects

I) TO ADVANCE THE EDUCATION OF THE PUBLIC INTO ALL MATTERS RELATING TO ALKAPTONURIA DISEASE AND ITS CAUSES, EFFECTS AND TREATMENTS PARTICULARLY BY THE PROVISION AND MAINTENANCE OF AN INTERNET WEBSITE. II) TO RELIEVE THE SUFFERING OF PERSONS SUFFERING FROM THE DISEASE BY THE PROVISION OF INFORMATION AND ADVICE III) THE PROMOTION AND RESEARCH INTO THE CAUSES, EFFECTS, TREATMENT AND MANAGEMENT OF ALKAPTONURIA DISEASE AND DISSEMINATE THE USEFUL RESULTS THEREOF

Grants received

13 grants · £1,077,270 total

360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.

Top funders

Most recent

  • The National Lottery Community Fund £20,0002024-05-13
  • The National Lottery Community Fund £10,0002022-12-02
  • Department for Digital, Culture, Media & Sport £45,0002020-09-15
  • Cambridgeshire Community Foundation £4,7502020-04-07
  • The National Lottery Community Fund £10,0002020-01-31
Board analysis

Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

3.4y median 1y
average tenure
8y
longest tenure

Trustees past 6 years

16y
average years in governance

First-time vs portfolio trustees

First-time (5)

Portfolio (3)

8
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

Disability 8Education/training 8The Advancement Of Health Or Saving Of Lives 8

Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.

Health and social care 10Professional services 4

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Health of the organisation facts side by side - the conclusion is yours

Income v spending, filed accountsiIncome v spendingTotal gross income and expenditure from filed annual returns, Charity Commission, last 5 years.
2021
2022
2023
2024
2025
incomespending£368k latest income · income exceeded spending in 2024 and 2025

Sources

Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.

Record details
Registered charity number
1101052
Status
Registered
Governing document
MEMORANDUM AND ARTICLES INCORPORATED 27/06/2003AS AMENDED BY SPECIAL RESOLUTION(S) DATED 18/11/2003AS AMENDED BY SPECIAL RESOLUTION(S) DATED 14/05/2012
Companies House
Company number 04814120 · Active
Contact on the register
01223322897 · info@akusociety.org
Edition
Register edition compiled 27th September 2026
Labels
Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.

Contains public sector information licensed under the Open Government Licence v3.0. Report an issue · How we handle data