The Alkaptonuria Society LTD

Registered charity 1101052 Registered since 2003

Operates: Throughout England And Wales

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

trustees on the board

3.4y median 1y

average tenure

longest tenure

trustees past 6 years

15.8y

average years in governance

5 vs 0 portfolio

first-time trustees

company-linked trustees

Sector coverage

Disability 8Education/training 8The Advancement Of Health Or Saving Of Lives 8

Commercial experience

Health and social care 10Professional services 4

Boards that share trustees

38TH South West Cheshire Scout Group (Nantwich Parish Church) 1 shared trustee
Sandymount Charitable Trust 1 shared trustee
Orchard 1 shared trustee

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Related organisations

Orchard 1 shared trustee
38TH South West Cheshire Scout Group (Nantwich Parish Church) 1 shared trustee
Sandymount Charitable Trust 1 shared trustee
Headway Sussex Ltd Similar size; both Disability
Self Management UK Limited Similar size; both Disability
Shine Cancer Support Similar size; both Disability

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Website	www.akusociety.org
Email	info@akusociety.org
Phone	01223322897
Address	66 DEVONSHIRE ROAD, CAMBRIDGE, CB1 2BL

Finances

£367,726 latest income

Year	Income	Spending
2021	£335,222	£272,750
2022	£586,708	£300,351
2023	£381,037	£292,618
2024	£319,392	£307,370
2025	£367,726	£294,929

What it does

What

Education/trainingThe Advancement Of Health Or Saving Of LivesDisability

Who

Children/young PeopleElderly/old PeoplePeople With DisabilitiesThe General Public/mankind

How

Provides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes Research

Charitable objects

I) TO ADVANCE THE EDUCATION OF THE PUBLIC INTO ALL MATTERS RELATING TO ALKAPTONURIA DISEASE AND ITS CAUSES, EFFECTS AND TREATMENTS PARTICULARLY BY THE PROVISION AND MAINTENANCE OF AN INTERNET WEBSITE. II) TO RELIEVE THE SUFFERING OF PERSONS SUFFERING FROM THE DISEASE BY THE PROVISION OF INFORMATION AND ADVICE III) THE PROMOTION AND RESEARCH INTO THE CAUSES, EFFECTS, TREATMENT AND MANAGEMENT OF ALKAPTONURIA DISEASE AND DISSEMINATE THE USEFUL RESULTS THEREOF

Governing document: MEMORANDUM AND ARTICLES INCORPORATED 27/06/2003AS AMENDED BY SPECIAL RESOLUTION(S) DATED 18/11/2003AS AMENDED BY SPECIAL RESOLUTION(S) DATED 14/05/2012

Trustees (8)

8trustees

68median age

3aged 70+

Succession outlook: 3 of 8 trustees are aged 70 or over.

Dr Duncan Battyage 64 Chair since 2018
Dr Lakshminarayon RAO Ranganath since 2025
Dr Nicolas Sireauage 53 since 2025
Jessica Barnesage 51 since 2022
Professor James Gallagherage 71 since 2025
Prof George Bou-Ghariosage 67 since 2025
Professor Alan Shenkinage 82
William Anthony Esmondage 68 since 2018

Linked company (Companies House)

The Alkaptonuria Society LTD · 04814120 · Active

PRI/LTD BY GUAR/NSC (Private, limited by guarantee, no share capital) · incorporated 27/06/2003

5 governing document(s) held from Companies House.

Connected charities (3)

Sandymount Charitable Trust 1 shared trustee
Orchard 1 shared trustee
38TH South West Cheshire Scout Group (Nantwich Parish Church) 1 shared trustee

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