The Governance RegisterEdition 2026 · Compiled 12th July 2026

Action Duchenne Limited

Registered charity 1101971 Registered since 2004

Operates: Throughout England And Wales, Scotland, Northern Ireland

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

5
trustees on the board
1.8y median 2y
average tenure
2y
longest tenure
0
trustees past 6 years
5.8y
average years in governance
5 vs 0 portfolio
first-time trustees
5
company-linked trustees

Sector coverage

Education/training 5General Charitable Purposes 5The Advancement Of Health Or Saving Of Lives 5

Commercial experience

Health and social care 5
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Related organisations

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Websitewww.actionduchenne.org
Emailinfo@actionduchenne.org
Phone07535 498 506
Address2nd Floor, South, One Castlepark, Tower Hill, BRISTOL, BS2 0JA

Finances

£590,523 latest income

YearIncomeSpending
2021£494,338£367,861
2022£562,186£359,863
2023£711,864£580,845
2024£612,379£642,358
2025£590,523£673,765

What it does

What

General Charitable PurposesEducation/trainingThe Advancement Of Health Or Saving Of LivesDisability

Who

Children/young PeoplePeople With DisabilitiesThe General Public/mankind

How

Makes Grants To IndividualsProvides ServicesProvides Advocacy/advice/information

Charitable objects

THE RELIEF OF PERSONS WITH DUCHENNES AND BECKER MUSCULAR DYSTROPHY THROUGH SUCH MEANS AS ARE CHARITABLE BY LAW.

Governing document: MEMORANDUM AND ARTICLES OF ASSOCIATION INCORPORATED 15 SEPTEMBER 2003 AS AMENDED BY CERTIFICATE OF INCORPORATION CHANGE NAME DATED 1 OCTOBER 2007. as amended on 03 Feb 2020 as amended on 14 Nov 2025 as amended on 14 Nov 2025 as amended on 14 Nov 2025

Trustees (5)

5trustees
49median age
1aged 70+

Linked company (Companies House)

Action Duchenne Limited · 04899036 · Active

PRI/LTD BY GUAR/NSC (Private, limited by guarantee, no share capital) · incorporated 15/09/2003

3 governing document(s) held from Companies House.

Connected charities (0)

No charities share a trustee (from current data).

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