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Registered charity · London

Alex, the Leukodystrophy Charity

Alex, the Leukodystrophy Charity is a registered charity (number 1106008) based in London, governed by 10 trustees. Latest income £1.1m (2025). Source: Charity Commission register, updated 25th October 2026.

1. The relief of sickness of people with leukodystrophy (also known as Inherited White Matter Disorders) and their parents and carers;2 To promote medical research into leukodystrophy and the publication of useful results of such research for the...

  • 10 trustees
  • Income £1.1m (2025)
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Official record Charity Commission · updated 25th October 2026 · Sources · Free, no card or password

Network

The large node is Alex, the Leukodystrophy Charity. Red nodes are organisations, white nodes are people. Dashed links are historical or inferred. Click any node to explore.

Who leads it

Current trustees as listed by the Charity Commission, which does not publish previous trustees.

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People on this board also govern

Similar charities are matched by type of organisation or purpose and listed by latest income; shared trustees are formal board links. Neither is proof the organisations work together.

About

What it does
Education/training, The Advancement Of Health Or Saving Of Lives, Disability
Where
Afghanistan, Albania, Algeria, Andorra and more
Website
www.alextlc.org (opens in a new tab)
Linked company
Alex, the Leukodystrophy Charity
Registered
2004

Income and spending

  • YearIncomeSpending
  • 2025£1.1m£1.0m
  • 2024£965k£972k
  • 2023£949k£982k
Earlier years
  • 2022£892k£872k
  • 2021£732k£707k

Income trend, 2021 to 2025.

Income source mix, 2023: Government grants under 1%. From the charity's annual return.

Charitable objects

1. The relief of sickness of people with leukodystrophy (also known as Inherited White Matter Disorders) and their parents and carers;2 To promote medical research into leukodystrophy and the publication of useful results of such research for the benefit of the public; and3 To advance the education of the public in leukodystrophy.

Grants received

16 grants · £405,595 total

360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.

Top funders

Most recent

Board analysis

Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

10 trustees on the board

2.8y median 2y
average tenure
11y
longest tenure

Trustees past 6 years

7.6y
average years in governance

First-time vs portfolio trustees

First-time (9)

Portfolio (1)

10
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

Disability 10Education/training 10The Advancement Of Health Or Saving Of Lives 10

Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.

Retail and trade 11Property 5Tech and media 4

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Health of the organisation facts side by side - the conclusion is yours

Income v spending, filed accountsiIncome v spendingTotal gross income and expenditure from filed annual returns, Charity Commission, last 5 years.
2021
2022
2023
2024
2025
incomespending£1.1m latest income
ReservesiReserves12 x free reserves / annual expenditure, from the Part B annual return. The sector median is computed across all Part B filers in the same income band.

2.4 months of spending held in free reserves · median for charities its size: 3.9 months · was 3.1 in 2021

27 from 24 in 2021
EmployeesiEmployeesHeadcount as filed in Part B annual returns, per financial year. Shown exactly as filed; year-on-year figures may be filed on different bases, so a comparison is only shown when the filings are plausibly comparable.

Sources

Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.

Record details
Registered charity number
1106008
Status
Registered
Governing document
MEMORANDUM AND ARTICLES INCORPORATED 01/06/2004AS AMENDED BY SPECIAL RESOLUTION(S) DATED 26/08/2004AS AMENDED BY SPECIAL RESOLUTION(S) DATED 16/07/2013NOW ARTICLES ADOPTED BY SPECIAL RESOLUTION DATED 24/11/2014 as amended on 13 May 2019 as amended on 06 Aug 2023 as amended on 28 Dec 2023
Companies House
Company number 05142341 · Active
Contact on the register
02077014388 · info@alextlc.org
Edition
Register edition compiled 25th October 2026
Labels
Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.

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