Alex, the Leukodystrophy Charity

Registered charity 1106008 Registered since 2004

Operates: Afghanistan, Albania, Algeria, Andorra, Angola, Antigua And Barbuda, Argentina, Armenia, Australia, Austria, Azerbaijan, The Bahamas

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

trustees on the board

2.7y median 2y

average tenure

11y

longest tenure

trustees past 6 years

8.5y

average years in governance

10 vs 0 portfolio

first-time trustees

company-linked trustees

Sector coverage

Disability 11Education/training 11The Advancement Of Health Or Saving Of Lives 11

Commercial experience

Retail and trade 12Property 6Professional services 5

Boards that share trustees

Mila's Foundation 1 shared trustee

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Related organisations

Mila's Foundation 1 shared trustee
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The Lily Foundation Similar size; both Disability

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Website	www.alextlc.org
Email	info@alextlc.org
Phone	02077014388
Address	Alex, The Leukodystrophy Charity, 45 Peckham High Street, LONDON

Finances

£1,077,604 latest income

Year	Income	Spending
2021	£731,979	£707,107
2022	£892,298	£871,856
2023	£949,226	£981,812
2024	£965,218	£972,157
2025	£1,077,604	£1,026,242

What it does

What

Education/trainingThe Advancement Of Health Or Saving Of LivesDisability

Who

Children/young PeoplePeople With DisabilitiesOther Charities Or Voluntary BodiesOther Defined Groups

How

Makes Grants To IndividualsMakes Grants To OrganisationsProvides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes ResearchOther Charitable Activities

Charitable objects

1. The relief of sickness of people with leukodystrophy (also known as Inherited White Matter Disorders) and their parents and carers;2 To promote medical research into leukodystrophy and the publication of useful results of such research for the benefit of the public; and3 To advance the education of the public in leukodystrophy.

Governing document: MEMORANDUM AND ARTICLES INCORPORATED 01/06/2004AS AMENDED BY SPECIAL RESOLUTION(S) DATED 26/08/2004AS AMENDED BY SPECIAL RESOLUTION(S) DATED 16/07/2013NOW ARTICLES ADOPTED BY SPECIAL RESOLUTION DATED 24/11/2014 as amended on 13 May 2019 as amended on 06 Aug 2023 as amended on 28 Dec 2023

Trustees (11)

11trustees

49median age

0aged 70+

Siriana Baldiniage 53 Chair since 2024
Dr Rahul Raman Singhage 51 since 2025
Emma Jane Hadfield-Hudsonage 47 since 2023
Gil Sarigage 49 since 2024
Iraj Idafarage 56 since 2022
Linda Christine Milneage 60 since 2015
Nick James Leopold Shiroiage 45 since 2024
Sharon Horthage 65 since 2026
Sophia Walkerage 31 since 2026
Thomas Daltonage 24 since 2024
Tulsi Sandys-Winschage 24 since 2023

Linked company (Companies House)

Alex, the Leukodystrophy Charity · 05142341 · Active

PRI/LBG/NSC (Private, Limited by guarantee, no share capital, use of 'Limited' exemption) · incorporated 01/06/2004

6 governing document(s) held from Companies House.

Connected charities (1)

Mila's Foundation 1 shared trustee

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