The Governance RegisterEdition 2026 · Compiled 6th September 2026

Alex, the Leukodystrophy Charity

Registered charity 1106008 Registered since 2004

Operates: Afghanistan, Albania, Algeria, Andorra, Angola, Antigua And Barbuda, Argentina, Armenia, Australia, Austria, Azerbaijan, The Bahamas

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

10 trustees on the board

2.8y median 2y
average tenure
11y
longest tenure

Trustees past 6 years

7.4y
average years in governance

First-time vs portfolio trustees

First-time (9)

Portfolio (1)

10
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

Disability 10Education/training 10The Advancement Of Health Or Saving Of Lives 10

Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.

Retail and trade 11Property 5Tech and media 4

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Health of the organisation facts side by side - the conclusion is yours

Income v spending, filed accountsiIncome v spendingTotal gross income and expenditure from filed annual returns, Charity Commission, last 5 years.
2021
2022
2023
2024
2025
incomespending£1.1m latest income
ReservesiReserves12 x free reserves / annual expenditure, from the Part B annual return. The sector median is computed across all Part B filers in the same income band.

2.4 months of spending held in free reserves · median for charities its size: 3.9 months · was 3.1 in 2021

27 from 24 in 2021
EmployeesiEmployeesHeadcount as filed in Part B annual returns, per financial year. Shown exactly as filed; year-on-year figures may be filed on different bases, so a comparison is only shown when the filings are plausibly comparable.

Related organisations iRelated organisationsTwo groups, both deterministic from public records. Related organisations share two or more trustees with this board - a real structural link, such as a subsidiary or sister charity. Connected through a shared trustee share exactly one person - a genuine connection, but not the same group. A board with no shared trustee at all may still appear here when it is active in the same charitable field.

Connected through a shared trustee

Also active in the same field

Deterministic, from public records.

Contact

Websitewww.alextlc.org
Emailinfo@alextlc.org
Phone02077014388
AddressAlex, The Leukodystrophy Charity, 45 Peckham High Street, LONDON

Finances

£1,077,604 latest income

YearIncomeSpending
2021£731,979£707,107
2022£892,298£871,856
2023£949,226£981,812
2024£965,218£972,157
2025£1,077,604£1,026,242

What it does

What

Education/trainingThe Advancement Of Health Or Saving Of LivesDisability

Who

Children/young PeoplePeople With DisabilitiesOther Charities Or Voluntary BodiesOther Defined Groups

How

Makes Grants To IndividualsMakes Grants To OrganisationsProvides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes ResearchOther Charitable Activities

Charitable objects

1. The relief of sickness of people with leukodystrophy (also known as Inherited White Matter Disorders) and their parents and carers;2 To promote medical research into leukodystrophy and the publication of useful results of such research for the benefit of the public; and3 To advance the education of the public in leukodystrophy.

Governing document: MEMORANDUM AND ARTICLES INCORPORATED 01/06/2004AS AMENDED BY SPECIAL RESOLUTION(S) DATED 26/08/2004AS AMENDED BY SPECIAL RESOLUTION(S) DATED 16/07/2013NOW ARTICLES ADOPTED BY SPECIAL RESOLUTION DATED 24/11/2014 as amended on 13 May 2019 as amended on 06 Aug 2023 as amended on 28 Dec 2023

Trustees (10)

10trustees
48median age
0aged 70+

Linked company (Companies House)

Alex, the Leukodystrophy Charity · 05142341 · Active

PRI/LBG/NSC (Private, Limited by guarantee, no share capital, use of 'Limited' exemption) · incorporated 01/06/2004

6 governing document(s) held from Companies House.

Connected charities (1)

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