The Transverse Myelitis Society

Registered charity 1108179 Registered since 2005

Operates: Throughout England And Wales

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

trustees on the board

1.6y median 1y

average tenure

longest tenure

trustees past 6 years

2.4y

average years in governance

8 vs 1 portfolio

first-time trustees

company-linked trustees

Sector coverage

Disability 9The Advancement Of Health Or Saving Of Lives 9General Charitable Purposes 1

Commercial experience

Health and social care 1

Gaps to watch

Mostly recent joiners - limited long-term continuity

Boards that share trustees

Integrated Neurological Services 1 shared trustee
LEW Gray Family Trust 1 shared trustee

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Related organisations

Integrated Neurological Services 1 shared trustee
LEW Gray Family Trust 1 shared trustee
The Keeble Charitable Trust Similar size; both Disability
Talking in Tune Similar size; both Disability
Yoga for Health and Education Trust Similar size; both Disability
Unlimited Oxfordshire Similar size; both Disability

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Website	www.myelitis.org.uk
Email	lewgray@myelitis.org.uk
Phone	02085680350
Address	35 AVENUE ROAD, BRENTFORD, TW8 9NS

Finances

£18,321 latest income

Year	Income	Spending
2020	£17,867	£10,154
2021	£24,606	£18,647
2022	£17,446	£12,498
2023	£16,478	£8,766
2024	£18,321	£21,588

What it does

What

The Advancement Of Health Or Saving Of LivesDisability

Who

People With Disabilities

How

Provides ServicesProvides Advocacy/advice/informationActs As An Umbrella Or Resource Body

Charitable objects

TO RELIEVE PERSONS SUFFERING FROM TRANSVERSE MYELITIS AND RELATED CONDITIONS AND THEIR FAMILIES AND CARERS, PARTICULARLY BUT NOT EXCLUSIVELY, BY THE PROVISION OR ASSISTANCE IN THE PROVISION OF INFORMATION, SUPPORT AND ADVICE, BY RAISING THE AWARENESS OF THE PUBLIC AND MEDICAL PROFESSIONS OF TRANSVERSE MYELITIS AND BY SUCH OTHER CHARITABLE MEANS AS THE TRUSTEES SHALL IN THEIR ABSOLUTE DISCRETION THINK FIT.

Governing document: CONSTITUTION ADOPTED 4 DECEMBER 2004 AS AMENDED 12 FEBRUARY 2005

Trustees (9)

9trustees

78median age

1aged 70+

Antony John Sumner since 2025
Caroline Elizabeth Cabraal since 2019
Caroline Louise Heaton since 2026
Cynthia Saunderson Morelli since 2025
Fiona Ruth Clowes since 2025
Janet Margaret Ashenden since 2025
Lewis Hyde Grayage 78
Leonie Elizabeth Claire Skelton since 2025
Nicola Jane Nicolle since 2025

Connected charities (2)

LEW Gray Family Trust 1 shared trustee
Integrated Neurological Services 1 shared trustee

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