The Governance RegisterEdition 2026 · Compiled 12th July 2026

The Gary Woodward Dyskeratosis Congenita Trust

Registered charity 1113617 Registered since 2006

Operates: Throughout England And Wales

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

5
trustees on the board
9y median 9y
average tenure
9y
longest tenure
2
trustees past 6 years
3.6y
average years in governance
5 vs 0 portfolio
first-time trustees
0
company-linked trustees

Sector coverage

Education/training 5General Charitable Purposes 5The Advancement Of Health Or Saving Of Lives 5

Gaps to watch

  • No commercial or business experience on the board
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Related organisations

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Websitewww.dyskeratosiscongenita.org.uk
Emailenquiries@dyskeratosiscongenita.org.uk
Phone01767689757
AddressPrime Apartments, 483 Green Lanes, LONDON, N13 4FG

Finances

£417 latest income

YearIncomeSpending
2021£200£658
2022£401£791
2023£16£623
2024£853£1,290
2025£417£246

What it does

What

General Charitable PurposesEducation/trainingThe Advancement Of Health Or Saving Of LivesDisability

Who

Children/young PeopleElderly/old PeoplePeople With DisabilitiesThe General Public/mankind

How

Makes Grants To IndividualsMakes Grants To OrganisationsProvides Human ResourcesProvides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes Research

Charitable objects

(A) THE RELIEF OF SICKNESS AND THE PROTECTION AND PRESERVATION OF THE HEALTH OF PERSONS AFFECTED BY DYSKERATOSIS CONGENITA AND ANY RELATED CONDITION AND THEIR FAMILIES AND CARERS IN PARTICULAR BY BUT NOT RESTRICTED TO;(B) THE ADVANCEMENT OF THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC INTO DYSKERATOSIS CONGENITA AND ITS IMPLICATIONS FOR THE FAMILY.(C) THE PROMOTION F RESEARCH INTO THE CAUSES, EFFECTS, TREATMENT AND MANAGEMENT OF DYSKERATOSIS CONGENITA AND TO DISSEMINATE THE USEFUL RESULTS THEREOF.

Governing document: CONSTITUTION ADOPTED 9 AUGUST 2004

Trustees (5)

5trustees
0aged 70+

Connected charities (0)

No charities share a trustee (from current data).

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