Registered charity · Flax Bourton
Genetic Alliance UK LTD
- 12 trustees
- Income £886k (2025)
Official record Charity Commission · updated 4th October 2026 · Sources
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Who leads it
- Elizabeth PorterfieldChair · since 2017
- Dr Michael Winter FrcgpTrustee · since 2025
- Dr Shehla Nilofer MohammedTrustee · since 2023
- Emily MerrellTrustee · since 2025
- Gloria Jane ClarkTrustee · since 2017
- Gregor StevensonTrustee · since 2023
- Professor Lara BloomTrustee · since 2023
- Rebecca MiddletonTrustee · since 2025
- Sara Johanne HuntTrustee · since 2017
- Susan Jane MillmanTrustee · since 2017
- Timothy KamomboTrustee · since 2025
- Toby William HannamTrustee · since 2023
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
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About
- What it does
- General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- Where
- Throughout England And Wales, Scotland, Northern Ireland
- Website
- www.geneticalliance.org.uk (opens in a new tab)
- Linked company
- Genetic Alliance UK LTD
- Registered
- 2006
Income and spending
- YearIncomeSpending
- 2025£886k£705k
- 2024£781k£863k
- 2023£742k£769k
Earlier years
- 2022£714k£762k
- 2021£939k£809k
Income trend, 2021 to 2025.
Income source mix, 2025: Government grants 5%. From the charity's annual return.
Charitable objects
THE OBJECTS FOR THE PUBLIC BENEFIT ARE:-A) TO RELIEVE PERSONS AFFECTED BY A GENETIC CONDITIONS;B) TO ADVANCE THE EDUCATION OF THE PUBLIC CONCERNING GENETIC CONDITIONS IN SUCH WAYS AS THE TRUSTEES OF THE CHARITY THINK FIT.
Grants received
19 grants · £1,718,340 total360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.
Top funders
- The National Lottery Community Fund · £1,590,690 (14 grants)
- John Ellerman Foundation · £80,000
- Department of Health and Social Care · £40,000
- The Clothworkers' Foundation · £3,900
- The James Tudor Foundation · £2,500
Most recent
- Department of Health and Social Care
- The National Lottery Community Fund
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
12 trustees on the board
- Elizabeth Porterfield Chair since 2017
- Dr Michael Winter Frcgp since 2025
- Dr Shehla Nilofer Mohammed since 2023
- Emily Merrell since 2025
- Gloria Jane Clark since 2017
- Gregor Stevenson since 2023
- Professor Lara Bloom since 2023
- Rebecca Middleton since 2025
- Sara Johanne Hunt since 2017
- Susan Jane Millman since 2017
- Timothy Kamombo since 2025
- Toby William Hannam since 2023
Trustees past 6 years
- Elizabeth Porterfield Chair since 2017
- Gloria Jane Clark since 2017
- Sara Johanne Hunt since 2017
- Susan Jane Millman since 2017
First-time vs portfolio trustees
First-time (9)
- Elizabeth Porterfield Chair since 2017
- Dr Michael Winter Frcgp since 2025
- Dr Shehla Nilofer Mohammed since 2023
- Emily Merrell since 2025
- Gregor Stevenson since 2023
- Professor Lara Bloom since 2023
- Sara Johanne Hunt since 2017
- Timothy Kamombo since 2025
- Toby William Hannam since 2023
Portfolio (3)
- Gloria Jane Clark since 2017
- Rebecca Middleton since 2025
- Susan Jane Millman since 2017
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
3.2 months of spending held in free reserves · median for charities its size: 4.0 months · was 2.4 in 2021
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1114195
- Status
- Registered
- Governing document
- MEMORANDUM AND ARTICLES OF ASSOCIATION INCORPORATED 6 APRIL 2006 AS AMENDED BY CERTIFICATE OF INCORPORATION ON CHANGE OF NAME DATED 18 MAY 2010AS AMENDED BY SPECIAL RESOLUTION(S) DATED 27 SEP 2016 as amended on 25 Sep 2018 as amended on 17 Oct 2018
- Companies House
- Company number 05772999 · Active
- Contact on the register
- 03001240441 · contactus@geneticalliance.org.uk
- Edition
- Register edition compiled 4th October 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
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