The Duchenne Research Fund
Registered charity 1119068 Registered since 2007
Operates: Throughout England
Connected trustee network
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How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
4 trustees on the board
- Daniel IAN Baum since 2012
- Dr Sarah Shelley since 2011
- Jeremy Shebson
- Simon Kanter since 2011
14.7y median 15y
average tenure
15y
longest tenure
Trustees past 6 years
- Daniel IAN Baum since 2012
- Dr Sarah Shelley since 2011
- Simon Kanter since 2011
18.3y
average years in governance
First-time vs portfolio trustees
First-time (1)
- Dr Sarah Shelley since 2011
Portfolio (3)
- Daniel IAN Baum since 2012
- Jeremy Shebson
- Simon Kanter since 2011
2
company-linked trustees
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
The Advancement Of Health Or Saving Of Lives 3Education/training 2General Charitable Purposes 2The Prevention Or Relief Of Poverty 2Religious Activities 1
Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.
Business services 1Education 1Health and social care 1
Gaps to watch
- Several long-serving trustees could step down together
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
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Health of the organisation facts side by side - the conclusion is yours
Income v spending, filed accountsiIncome v spendingTotal gross income and expenditure from filed annual returns, Charity Commission, last 5 years.
incomespending£38k latest income · spending exceeded income in 2023 and 2024
Related organisations iRelated organisationsTwo groups, both deterministic from public records. Related organisations share two or more trustees with this board - a real structural link, such as a subsidiary or sister charity. Connected through a shared trustee share exactly one person - a genuine connection, but not the same group. A board with no shared trustee at all may still appear here when it is active in the same charitable field.
Connected through a shared trustee
- JRM Trust 1 shared trustee
- Kanter Jules Charitable Trust 1 shared trustee
- British Friends of Boys Town Jerusalem 1 shared trustee
- The Kemach Foundation 1 shared trustee
- Rachel Charitable Trust 1 shared trustee
Also active in the same field
- The Maurice and Pearl Esterkin Charitable Trust Similar size; both Health
Deterministic, from public records.
Contact
| Website | www.duchenne.org.uk |
| info@duchenne.org.uk | |
| Phone | 020 7724 8824 |
| Address | The Duchenne Research Fund, PO Box 77134, London, N3 9GB |
Finances
£37,788 latest income
| Year | Income | Spending |
|---|---|---|
| 2020 | £48,904 | £220,988 |
| 2021 | £142,376 | £350,299 |
| 2022 | £37,067 | £284,290 |
| 2023 | £57,929 | £322,538 |
| 2024 | £37,788 | £129,302 |
What it does
What
The Advancement Of Health Or Saving Of LivesWho
Children/young PeoplePeople With DisabilitiesOther Charities Or Voluntary BodiesOther Defined GroupsHow
Makes Grants To IndividualsMakes Grants To OrganisationsSponsors Or Undertakes ResearchCharitable objects
TO PROMOTE THE RELIEF OF PERSONS SUFFERING FROM AND TO PROMOTE RESEARCH INTO THE TREATMENT, CURE, CARE AND WELFARE OF THOSE PERSONS SUFFERING FROM DUCHENNE MUSCULAR DYSTROPHY IN ENGLAND AND/OR WALES AND OVERSEAS.
Governing document: TRUST DEED DATED 25/03/2007
Trustees (4)
4trustees
66median age
0aged 70+
- Daniel IAN Baumage band 60-64 since 2012
- Dr Sarah Shelley since 2011
- Jeremy Shebson
- Simon Kanterage band 65-69 since 2011
Connected charities (5)
- The Kemach Foundation 1 shared trustee
- Rachel Charitable Trust 1 shared trustee
- JRM Trust 1 shared trustee
- Kanter Jules Charitable Trust 1 shared trustee
- British Friends of Boys Town Jerusalem 1 shared trustee
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