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Registered charity · London

Sickle Cell and Young Stroke Survivors

Sickle Cell and Young Stroke Survivors is a registered charity (number 1120902) based in London, governed by 3 trustees and chaired by Josephine Nzeribe since 2013. Latest income £7k (2025). Source: Charity Commission register, updated 4th October 2026.

  • 3 trustees
  • Income £7k (2025)
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Official record Charity Commission · updated 4th October 2026 · Sources

Network

The large node is Sickle Cell and Young Stroke Survivors. Red nodes are organisations, white nodes are people. Sign in free to explore further.

Who leads it

Current trustees as listed by the Charity Commission, which does not publish previous trustees.

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Similar charities are matched by type of organisation or purpose and listed by latest income; shared trustees are formal board links. Neither is proof the organisations work together.

About

What it does
General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability and 4 more
Where
Throughout England, Ghana, Nigeria, Tanzania and more
Website
www.scyss.org (opens in a new tab)
Linked company
Sickle Cell & Young Stroke Survivors
Registered
2007

Income and spending

  • YearIncomeSpending
  • 2025£7k£7k
  • 2024£3k£7k
  • 2023£19k£12k
Earlier years
  • 2022£15k£7k
  • 2021£10k£2k

Income trend, 2021 to 2025.

Charitable objects

1) THE RELIEF OF SICKNESS, DISTRESS AND THE PROTECTION AND THE PRESERVATION OF THE HEALTH OF PERSONS AFFECTED BY SICKLE CELL AND STROKE AND ANY RELATED CONDITION AND THEIR FAMILIES AND CARERS IN PARTICULAR BUT NOT RESTRICTED TO -2) THE ADVANCEMENT OF THE EDUCATION OF THE AFFECTED PEOPLE, MEDICAL PROFESSION AND THE GENERAL PUBLIC INTO SICKLE CELL AND STROKE AND ITS IMPLICATIONS FOR THE FAMILY IN THE UK AND AFRICA3) THE PROMOTION OF RESEARCH INTO THE CAUSES, EFFECTS, TREATMENT AND MANAGEMENT OF SICKLE CELL AND STROKE AND TO DISSEMINATE THE USEFUL RESULTS THEREOF4) TO CARRY OUT ANY OTHER ACTIVITY WHICH IS CHARITABLE ACCORDING TO THE LAWS OF ENGLAND AND WALES FOR THE BENEFIT OF CHILDREN AND ADULTS WHO ARE SUFFERING FROM SICKLE CELL AND STROKE IN THE UK AND AFRICA3) TO PROVIDE OR ASSIST IN THE PROVISION OF FACILITIES IN THE INTERESTS OF SOCIAL WELFARE FOR RECREATION OR OTHER LEISURE TIM OCCUPATION OF INDIVIDUALS AFFECTED BY SICKLE CELL DISORDERS, WHO HAVE NEED OF SUCH FACILITIES BY REASON OF THEIR YOUTH, AGE, INFIRMITY OR DISABILITY, FINANCIAL HARDSHIP OR SOCIAL CIRCUMSTANCES WITH THE OBJECT OF IMPROVING THEIR HEALTH AND WELLBEING.

Grants received

7 grants · £46,325 total

360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.

Top funders

Most recent

  • The National Lottery Community Fund £9,9402019-01-18
  • The National Lottery Community Fund £9,9802017-10-11
  • Woodward Charitable Trust £3002017-06-19
  • The National Lottery Community Fund £9,9652016-03-23
  • The National Lottery Community Fund £9,8502014-09-03
Board analysis

Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

3 trustees on the board

12y median 12y
average tenure
13y
longest tenure

Trustees past 6 years

8.1y
average years in governance

First-time vs portfolio trustees

First-time (3)

2
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

Education/training 3General Charitable Purposes 3The Advancement Of Health Or Saving Of Lives 3

Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.

Health and social care 2

Gaps to watch

  • Several long-serving trustees could step down together
  • Small board - little cover if a trustee leaves

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Health of the organisation facts side by side - the conclusion is yours

Income v spending, filed accountsiIncome v spendingTotal gross income and expenditure from filed annual returns, Charity Commission, last 5 years.
2021
2022
2023
2024
2025
incomespending£7k latest income · spending exceeded income in 2024 and 2025

Sources

Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.

Record details
Registered charity number
1120902
Status
Registered
Governing document
CONSTITUTION ADOPTED 1 MAY 2005 AS AMENDED 12 DECEMBER 2006.
Companies House
Company number 05468274 · Active
Contact on the register
02072772777 · info@scyss.org
Edition
Register edition compiled 4th October 2026
Labels
Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.

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