Dravet Syndrome UK
Registered charity 1128289 Registered since 2009
Operates: Throughout England, Scotland, Northern Ireland
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Sector coverage
Gaps to watch
- No commercial or business experience on the board
- Several long-serving trustees could step down together
- Narrow spread of causes across the board
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Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.
Contact
| Website | www.dravet.org.uk |
| info@dravet.org.uk | |
| Phone | 01246 912 421 |
| Address | PO Box 756, CHESTERFIELD, S43 9EB |
Finances
£561,982 latest income
| Year | Income | Spending |
|---|---|---|
| 2021 | £345,071 | £305,812 |
| 2022 | £342,790 | £364,519 |
| 2023 | £456,074 | £371,118 |
| 2024 | £487,892 | £436,435 |
| 2025 | £561,982 | £796,545 |
What it does
What
The Advancement Of Health Or Saving Of LivesDisabilityWho
Children/young PeoplePeople With DisabilitiesHow
Makes Grants To IndividualsProvides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes ResearchCharitable objects
1) TO FUND RESEARCH INTO DRAVET SYNDROME AND OTHER RELATED GENETIC SODIUM CHANNEL EPILEPSY'S TO BENEFIT SUFFERERS OF DRAVET SYNDROME AND THEIR FAMILIES.2) TO ADVANCE THE EDUCATION OF THE MEDICAL COMMUNITY IN THE SUBJECT OF DRAVET SYNDROME, THEREFORE PROMPTING ACCURATE AND EARLY DIAGNOSIS AND BENEFITING SUFFERERS OF DRAVET SYNDROME AND THEIR FAMILIES.3) TO PROMOTE THE PHYSICAL AND MENTAL HEALTH OF SUFFERERS OF DRAVET SYNDROME AND THEIR FAMILIES THROUGH THE PROVISION OF FINANCIAL ASSISTANCE, SUPPORT, EDUCATION AND PRACTICAL ADVICE.
Governing document: TRUST DEED DATED 31 JANUARY 2009 AS AMENDED BY SUPPLEMENTAL DEED DATED 6 NOVEMBER 2010
Trustees (5)
- Galia Wilson-John Chair since 2015
- Alex Williams since 2023
- John David Rees Lloyd since 2019
- Neil Williamson since 2020
- Stephanie Smith since 2024
Connected charities (0)
No charities share a trustee (from current data).
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