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Registered charity · Chesterfield

Dravet Syndrome UK

  • 5 trustees
  • Income £640k (2026)
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Official record Charity Commission · updated 4th October 2026 · Sources

Network

The large node is Dravet Syndrome UK. Red nodes are organisations, white nodes are people. Sign in free to explore further.

Who leads it

Current trustees as listed by the Charity Commission, which does not publish previous trustees.

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About

What it does
The Advancement Of Health Or Saving Of Lives, Disability
Where
Throughout England, Scotland, Northern Ireland
Website
www.dravet.org.uk (opens in a new tab)
Registered
2009

Income and spending

  • YearIncomeSpending
  • 2026£640k£735k
  • 2025£562k£797k
  • 2024£488k£436k
Earlier years
  • 2023£456k£371k
  • 2022£343k£365k

Income trend, 2022 to 2026.

Charitable objects

1) TO FUND RESEARCH INTO DRAVET SYNDROME AND OTHER RELATED GENETIC SODIUM CHANNEL EPILEPSY'S TO BENEFIT SUFFERERS OF DRAVET SYNDROME AND THEIR FAMILIES.2) TO ADVANCE THE EDUCATION OF THE MEDICAL COMMUNITY IN THE SUBJECT OF DRAVET SYNDROME, THEREFORE PROMPTING ACCURATE AND EARLY DIAGNOSIS AND BENEFITING SUFFERERS OF DRAVET SYNDROME AND THEIR FAMILIES.3) TO PROMOTE THE PHYSICAL AND MENTAL HEALTH OF SUFFERERS OF DRAVET SYNDROME AND THEIR FAMILIES THROUGH THE PROVISION OF FINANCIAL ASSISTANCE, SUPPORT, EDUCATION AND PRACTICAL ADVICE.

Grants received

5 grants · £59,619 total

360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.

Top funders

  • The National Lottery Community Fund · £34,764 (3 grants)
  • SHAREGIFT · £15,000
  • Department for Digital, Culture, Media & Sport · £9,855

Most recent

  • The National Lottery Community Fund £17,6252025-10-06
  • SHAREGIFT £15,0002025-03-21
  • Department for Digital, Culture, Media & Sport £9,8552020-07-24
  • The National Lottery Community Fund £7,8432018-09-21
  • The National Lottery Community Fund £9,2962012-05-10
Board analysis

Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

5 trustees on the board

5.8y median 6y
average tenure
11y
longest tenure

Trustees past 6 years

6.1y
average years in governance

First-time vs portfolio trustees

First-time (5)

0
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

Disability 5The Advancement Of Health Or Saving Of Lives 5

Gaps to watch

  • No commercial or business experience on the board
  • Several long-serving trustees could step down together
  • Narrow spread of causes across the board

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Health of the organisation facts side by side - the conclusion is yours

Income v spending, filed accountsiIncome v spendingTotal gross income and expenditure from filed annual returns, Charity Commission, last 5 years.
2021
2022
2023
2024
2025
incomespending£562k latest income
ReservesiReserves12 x free reserves / annual expenditure, from the Part B annual return. The sector median is computed across all Part B filers in the same income band.

4.6 months of spending held in free reserves · median for charities its size: 4.0 months

7
EmployeesiEmployeesHeadcount as filed in Part B annual returns, per financial year. Shown exactly as filed; year-on-year figures may be filed on different bases, so a comparison is only shown when the filings are plausibly comparable.

Sources

Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.

Record details
Registered charity number
1128289
Status
Registered
Governing document
TRUST DEED DATED 31 JANUARY 2009 AS AMENDED BY SUPPLEMENTAL DEED DATED 6 NOVEMBER 2010
Contact on the register
01246 912 421 · info@dravet.org.uk
Edition
Register edition compiled 4th October 2026
Labels
Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.

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