Registered charity · London
The Duchenne Family Support Group
The Duchenne Family Support Group is a registered charity (number 1128653) based in London, governed by 8 trustees and chaired by Dr Stephen Henry Meech. Latest income £51k (2025). Source: Charity Commission register, updated 25th October 2026.
- 8 trustees
- Income £51k (2025)
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Official record Charity Commission · updated 25th October 2026 · Sources · Free, no card or password
Network
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Who leads it
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
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Similar charities are matched by type of organisation or purpose and listed by latest income; shared trustees are formal board links. Neither is proof the organisations work together.
About
- What it does
- Education/training, The Advancement Of Health Or Saving Of Lives, Disability, Other Charitable Purposes
- Where
- Throughout England And Wales, Scotland, Northern Ireland
- Website
- www.dfsg.org.uk (opens in a new tab)
- Linked company
- The Duchenne Family Support Group
- Registered
- 2009
Income and spending
- YearIncomeSpending
- 2025£51k£44k
- 2024£53k£31k
- 2023£55k£47k
Earlier years
- 2022£55k£55k
- 2021£36k£26k
Income trend, 2021 to 2025.
Charitable objects
1 TO PRESERVE AND PROTECT THE HEALTH OF AND RELIEVE PERSONS SUFFERING FROM DUCHENNE MUSCULAR DYSTROPHY AND THEIR FAMILIES2 TO ADVANCE THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC IN THE SUBJECT OF DUCHENNE MUSCULAR DYSTROPHY AND ITS IMPLICATIONS FOR THE FAMILIES OF THOSE SUFFERING FROM THE AFOREMENTIONED CONDITION3 TO PROMOTE RESEARCH INTO THE MANAGEMENT OF DUCHENNE MUSCULAR DYSTROPHY AND TO PUBLICISE THE USEFUL RESULTS THEREOF AND TO SUPPORT ORGANISATIONS PROMOTING CHARITABLE RESEARCH INTO DUCHENNE MUSCULAR DYSTROPHY
Grants received
3 grants · £24,680 total360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.
Top funders
- The National Lottery Community Fund · £17,400 (2 grants)
- Department for Digital, Culture, Media & Sport · £7,280
Most recent
- The National Lottery Community Fund
- The National Lottery Community Fund
- Department for Digital, Culture, Media & Sport
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
8 trustees on the board
- Dr Stephen Henry Meech Chair
- Amanda Elizabeth Revell since 2023
- Catherine Virginia Parker since 2022
- Jacky Wilde since 2023
- Karen Ann Lightly since 2022
- Laura Elliott since 2020
- Sarah Wright since 2022
- Susan Berry since 2017
Trustees past 6 years
- Susan Berry since 2017
First-time vs portfolio trustees
First-time (7)
- Amanda Elizabeth Revell since 2023
- Catherine Virginia Parker since 2022
- Jacky Wilde since 2023
- Karen Ann Lightly since 2022
- Laura Elliott since 2020
- Sarah Wright since 2022
- Susan Berry since 2017
Portfolio (1)
- Dr Stephen Henry Meech Chair
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1128653
- Status
- Registered
- Governing document
- MEMORANDUM AND ARTICLES INCORPORATED 02/03/2007
- Companies House
- Company number 06134522 · Active
- Contact on the register
- 0800 121 4518 · info@dfsg.org.uk
- Edition
- Register edition compiled 25th October 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
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