Advocacy for Neuroacanthocytosis Patients

Registered charity 1133182 Registered since 2009

Operates: Oxfordshire, Germany, France, Japan, Netherlands, Portugal, Spain, Switzerland, United States, Italy

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

trustees on the board

5y median 5.5y

average tenure

longest tenure

trustees past 6 years

15.7y

average years in governance

4 vs 0 portfolio

first-time trustees

company-linked trustees

Sector coverage

Disability 5The Advancement Of Health Or Saving Of Lives 5Environment/conservation/heritage 1

Commercial experience

Health and social care 6Other services 1Property 1

Boards that share trustees

Brighter Kensington and Chelsea Scheme 1 shared trustee

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Related organisations

Brighter Kensington and Chelsea Scheme 1 shared trustee
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Diamond Blackfan Anaemia Support Group UK Similar size; both Disability
Greater Manchester Head Forward Centre LTD Similar size; both Disability
World Sight Foundation Similar size; both Disability

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Website	www.naadvocacy.org
Email	ginger@naadvocacy.org
Phone	02074608874
Address	Flat 39, Coleherne Court, The Little Boltons, LONDON, SW5 0DN

Finances

£70,666 latest income

Year	Income	Spending
2021	£15,082	£89,196
2022	£90,098	£16,790
2023	£8,847	£33,936
2024	£50,244	£52,008
2025	£70,666	£47,275

What it does

What

The Advancement Of Health Or Saving Of LivesDisability

Who

People With Disabilities

How

Provides Advocacy/advice/informationSponsors Or Undertakes Research

Charitable objects

1 TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF SUFFERERS OF NEUROACANTHOCYTOSIS DISEASES AND THEIR FAMILIES THROUGH THE PROVISION OF SUPPORT, EDUCATION AND PRACTICAL ADVICE2 TO ADVANCE THE EDUCATION OF HEALTH PROFESSIONALS AND THE GENERAL PUBLIC IN AL AREAS RELATING TO NEUROACANTHOCYTOSIS DISEASES

Governing document: MEMORANDUM AND ARTICLES OF ASSOCIATION INCORPORATED 25 AUGUST 2009

Trustees (5)

5trustees

69median age

2aged 70+

Succession outlook: 2 of 5 trustees are aged 70 or over.

Ginger Irvine Chair
Dr Peter George Millsage 81 since 2019
Mary Elizabeth Leigh-Woodage 48 since 2019
Nicola Keatage 42 since 2022
Professor Dr Adrian Danekage 69 since 2024

Linked company (Companies House)

Advocacy for Neuroacanthocytosis Patients · 07000073 · Active

PRI/LBG/NSC (Private, Limited by guarantee, no share capital, use of 'Limited' exemption) · incorporated 25/08/2009

2 governing document(s) held from Companies House.

Connected charities (1)

Brighter Kensington and Chelsea Scheme 1 shared trustee

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