Myotonic Dystrophy Support Group

Registered charity 1134499 Registered since 2010

Operates: Throughout England And Wales, Scotland, Northern Ireland

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

trustees on the board

6.6y median 5y

average tenure

15y

longest tenure

trustees past 6 years

10y

average years in governance

7 vs 0 portfolio

first-time trustees

company-linked trustees

Sector coverage

Education/training 7General Charitable Purposes 7The Advancement Of Health Or Saving Of Lives 7

Commercial experience

Business services 6Health and social care 1Manufacturing 1

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UPS and Downs South West Similar size; both Disability

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Website	myotonicdystrophysupportgroup.org
Email	CONTACT@MDSGUK.ORG
Phone	01159875869
Address	19-21 MAIN ROAD, GEDLING, NOTTINGHAM, NG4 3HQ

Finances

£336,393 latest income

Year	Income	Spending
2020	£115,341	£80,573
2021	£216,299	£150,968
2022	£109,671	£63,155
2023	£258,791	£117,901
2024	£336,393	£128,492

What it does

What

General Charitable PurposesEducation/trainingThe Advancement Of Health Or Saving Of LivesDisability

Who

Children/young PeopleElderly/old PeoplePeople With DisabilitiesOther Charities Or Voluntary BodiesThe General Public/mankind

How

Makes Grants To IndividualsMakes Grants To OrganisationsProvides Human ResourcesProvides Advocacy/advice/informationSponsors Or Undertakes Research

Charitable objects

THE COMPANY'S OBJECT ARE SPECIFICALLY RESTRICTED TO OFFERING ASSISTANCE, SUPPORT AND INFORMATION TO THOSE PEOPLE AFFECTED BY MYOTONIC DYSTROPHY, THEIR CARERS AND FAMILIES, BOTH DIRECTLY AND INDIRECTLY, AND ANYTHING DONE IN REASONABLE PURSUANCE THERETO.

Governing document: MEMORANDUM AND ARTICLES INCORPORATED 02/02/2010

Trustees (7)

7trustees

74median age

3aged 70+

Succession outlook: 3 of 7 trustees are aged 70 or over.

Michael Walkerage 78 Chair since 2011
Claire Alexandra Mcalonanage 66 since 2021
Dr Ami Ketleyage 41 since 2023
Dr Valeria Di Leo since 2025
Euan Daniel Cummingage 79 since 2017
Linda Ann Perryage 78 since 2023
Peter Charles William Ferrariage 69 since 2016

Linked company (Companies House)

Myotonic Dystrophy Support Group · 07144171 · Active

PRI/LBG/NSC (Private, Limited by guarantee, no share capital, use of 'Limited' exemption) · incorporated 02/02/2010

1 governing document(s) held from Companies House.

Connected charities (0)

No charities share a trustee (from current data).

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